Don’t Worry and Be Positive: What helps the most in functional recovery one year after hip fracture? An exit interview
Associated Data
Abstract
Background
Studies that examined factors associated with functional recovery one year following hip fractures came mainly from clinicians’ or researchers’ perspectives. Few studies examine factors that facilitate functional recovery from the patients’ perspective.
Methods
Subjects (n=62) were community-dwelling older adults age 65+ who sustained a hip fracture, received surgical repairs, and post-acute rehabilitation. Data were collected at one-year following post-acute rehabilitation. Content analysis was used for the descriptive study.
Results
Participants reported that rehabilitation services greatly facilitated their recovery. Participants also recognized the importance of their own internal drive or motivation, and noted that it was essential to maintain a positive attitude and to fully engage in the recommended rehabilitation activities.
Conclusion
The keys to functional recovery were active participation in rehabilitation and following instructions from care providers. In addition, self-determination, positive attitude, and social support play significant roles in making rehabilitation work.
Hip fractures cause significant mortality, morbidity, and disability among older adults ( Latham, Jette, Warren & Wirtalla, 2006; Frihagen, Nordsletten & Madsen, 2007; Hershkovitz, Kalandariov, Hermush, Weiss & Brill, 2007; Press, Grinshpun, Berzak, Friger & Clarfield, 2007) account for 266,000 hospital discharges (Department of Health and Human Services 2007) and 600,000 nursing home admissions, and cost Medicare 2.8 billion dollars each year (Schneider & Guralnik, 1990; Latham, Jette, Warren & Wirtalla, 2006;Titler, Dochterman, Kim, Kanak, Shever, Picone, Everett & Budreau, 2007). More than four percent of hip fracture patients die during initial hospitalization and 18 to 33 percent will die within a year of fracture (Schroder & Erlandsen, 1993; Pitto, 1994; Latham, Jette, Warren & Wirtalla, 2006; Frihagen, Nordsletten & Madsen, 2007; Hershkovitz, Kalandariov, Hermush, Weiss & Brill, 2007); between 26 and 65 percent of patients lose their ability to walk or do not recover their pre-fracture ambulatory status within the year following their fracture (Koval & Zuckerman, 1994; Wolinsky, Fitzgerald, & Stump, 1997; Binder, Brown, Sinacore, Steger-May, Yarasheski & Schechtman, 2004; Latham, Jette, Warren & Wirtalla, 2006; Hershkovitz, Kalandariov, Hermush, Weiss & Brill, 2007).
The compromised mobility and self-care ability affect not only the individual’s functional independence, but also the family and society as a whole. The older population in the U.S. is expected to reach 71.5 million in 2030 when all baby boomers will have turned 65 (U.S. Census Bureau, 2004). Given that hip fracture is associated with increasing age, the incidence of hip fracture is bound to increase. The healthcare cost and ability of society to provide needed care to older persons with hip fracture is a crucial healthcare issue.
Studies focusing on hip fracture rehabilitation and functional outcomes can be categorized into three groups. The first group, clinical research, focused on surgical treatments (e.g., internal fixation vs. heimiarthoplasty) or rehabilitation (rehabilitation hospital vs. SNF rehabilitation) on selected functional outcomes during the acute care and post-acute hospitalization period (Young, German, Brant, Kenzora & Magaziner, 1996; Rodriguez-Merchan, 2002; Isotalo, Rantanen, Aarimaa, & Gullichsen, 2002; Latham, Jette, Warren & Wirtalla, 2006; Hershkovitz, Kalandariov, Hermush, Weiss & Brill, 2007). These types of studies have helped our understanding on which treatment modality would produce better functional recovery, such as mobility or activities of daily living (ADLs). The second type are epidemiological studies which mainly focus on hip fracture prevalence and incidence rates, postacute care mortality and disability rates one year after hip fracture, or postacute care discharge location (Young, Brant, German, Kenzora, & Magaziner, 1997; Magaziner et al., 2000; Ingemarsson, Frandin, Mellstrom, & Moller, 2003; Rosell & Parker, 2003; Latham, Jette, Warren & Wirtalla, 2006; Chevalley, Guilley, Herrmann, Hoffmeyer, Rapin & Rizzoli, 2007). These studies provide valuable information for policy makers and healthcare providers to make informed decision on health manpower planning and scarce health resources allocation. The third type are outcome evaluations studies. Outcome studies primarily center on factors associated with functional recovery, including sociodemographics (e.g., age, gender, income, marital status), health status (e.g., osteoporosis, diabetes), functional status (e.g., mobility, activities of daily living), and social support (e.g., frequency of contacts with children, friends) (Young et al., 1996; Adunsky, Lusky, Arad, & Heruti, 2003; Boonen et al., 2004; Kristensen, Foss & Kehlet, 2007; Grinshpun, Berzak, Friger & Clarfield, 2007). Study results on determinants were very useful and played important roles in shaping or modifying treatment methods and interventions to foster functional recovery.
Findings from these clinical, epidemiological, outcome evaluation studies have improved our understanding of the hip fracture functional recovery process and associated outcomes. However, most of these studies come from the perspective of clinicians or researchers, but not patients themselves. Hip fracture patients--the victims and the key players in the recovery process--often did not have the opportunity to contribute their ideas as to what helped them the most in their functional recovery one year after hip fractures. The desire to better understand why some hip fracture survivors return to their prefracture function and others do not lead this study to explore factors associated with functional recovery from patients’ perspective.
Methods
The goal of this research study was to explore the perceptions of older adults about their functional recovery one year post hip fracture. This study was part of a larger longitudinal study entitled, “Rehabilitation and Functional Recovery after Hip Fracture (Reheb&Hipfx)” funded by a National Institutes on Aging grant. The major goals of the Reheb&Hipfx study were to explore the effectiveness of post-acute rehabilitation on functional recovery and on the costs incurred during recovery among elderly hip fracture patients.
Study Sample and Data Source
Using convenience sampling, 62 participants from the Rehab&Hipfx study (N= 280) were invited and completed an exit interview immediately following the 12 month post hip fracture follow-up data collection. The exit interview was a thematic survey containing open-ended questions which explored areas that influenced functional recovery and the participants’ willingness to engage in rehabilitation activities. Interview questions focused on the following four areas: 1) satisfaction with functional recovery post-fracture; 2) factors that facilitated or hindered their post-acute recuperation experiences; 3) areas that would improve the functional recovery process; and 4) the advice they would give to other hip fracture patients to help with recovery (Appendix 1). The responses were transcribed verbatim by two well-trained interviewers: a physical therapist and a physician assistant. Both clinicians were familiar with hip fracture care and received three sessions of interview training at the Center on Aging and Health at Johns Hopkins. Both interviewers were also certified to use the Functional Independence Measures (FIM) instrument. Eligibility criteria for this sub-study were the same as the Rehab&Hipfx study and were determined 12 months prior to the sub-study. Briefly, eligibility included: (a) age 65 years or older, (b) community-dwelling, (c) admitted to one of the five predetermined rehabilitation sites with a primary diagnosis of acute hip fracture (ICD9-CM 820.0–820.9), (d) having received a surgical procedure (ICD9-CM 81.21, 81.40, 81.51,81.52) (International Classification of Diseases, 9th Revision, Clinical Modification, 5th Edition, 1997), (e) having a non-pathological fracture, and (f) having no evidence of metastatic cancer. The study was approved by the Internal Review Boards of the Johns Hopkins Bloomberg School of Public Health and each participating rehabilitation facility in Baltimore, Maryland.
Table 1 shows the sociodemographic characteristics of the study participants (n=62). The average age of the patients was 78 years, with a range of 65 to 91. The majority of the patients were female (76%), Caucasian (92%), and living with others (45%). Average years of education were 12.6, and 17 percent had an annual income of $50,000 or more.
Table 1
Comparisons of Sociodemographic Characteristics at Baseline between Patients Satisfied and Patients Not Satisfied with their Functional Recovery (n=62)
| Patients with exit interviews | |||
|---|---|---|---|
| Characteristics | Satisfied with recovery | Satisfied with recovery | P-value |
| (Yes) | (No) | ||
| (n = 53) | (n = 9) | ||
| Age | |||
| 65–74 | 22.6 | 33.3 | 0.53* |
| 75–84 | 62.3 | 44.4 | |
| 85+ | 15.1 | 22.2 | |
| Mean (sd) | 78.6(6.7 | 76.9 (7.4) | 0.49 |
| Range | [65–91] | [66–86] | |
| Gender | |||
| Female | 75.5 | 757.8 | 1.00* |
| Male | 24.5 | 22.2 | |
| Race | |||
| White | 90.4 | 100.0 | 1.00* |
| Non-White | 9.6 | 0.0 | |
| Marital status | |||
| Currently married | 41.5 | 33.3 | 0.73* |
| Not currently married | 58.5 | 66.7 | |
| Living arrangement | |||
| Living alone | 45.3 | 44.4 | 1.00* |
| Living with others | 54.7 | 55.6 | |
| Education in years | |||
| Mean (sd) | 12.8 (3.6) | 11.9 (3.0) | 0.68 |
| Range | [0–20] | [7–16] | |
| Income | |||
| Less $9,999 | 0.0 | 0.0 | 1.00* |
| $10,000 to $24,999 | 55.6 | 66.7 | |
| $25,000 to $49,999 | 22.2 | 33.3 | |
| $50,000 or more | 22.2 | 0.0 | |
| MMSE | |||
| Mean (sd) | 28.0 (1.8) | 28.6 (1.9) | 0.44 |
| Range | [24–30] | [25–30] | |
| Cormobidity | |||
| Mean (sd) | 2.1 (1.3) | 2.1 (1.2) | 1.00 |
| Range | [0–5] | [0–3] | |
Data Analysis
Data analysis was done using basic content analysis (Crabtree & Miller, 1992) and started with the first interview. Although the interview guide used in this study contained specific themes and directed participants to address what facilitated their recovery process, the analysis of the responses was done using the participants’ own words to capture their particular responses and ideas about the thematic areas. The analysis, therefore, was consistent with “in vivo” coding (Dowd, 1991). The following is an example of in vivo coding:
- The code identified was “be positive”:
- …Have a positive attitude
- …Be positive and never give up
- …Don’t feel helpless--try not to depend on others, do it yourself
- …Be always positive
A code list including a definition of each code was developed and continually revised as new codes were added. Then, codes were grouped based on similarities and differences. For example, a number of codes that focused on the factors that helped individuals through the recovery process were identified in the data. This theme was referred to as factors that facilitate recovery post hip fracture. Using the above coding strategy, 25 codes were identified and collapsed into four major themes (Table 2): (1) facilitators of the recovery process; (2) factors that hindered recovery; (3) system recommendations to facilitate recovery; and (4) peer advice to facilitate recovery.
Table 2
Theme Development
| Theme | Facilitators of Recovery | Factors that Hinder Recovery | System Recommendations to Facilitate Recovery | Peer Advice to Facilitate Recovery |
|---|---|---|---|---|
| Codes (# of times noted) | Professionals (40) Social support (13) Determination (12) Spirituality (4) Individualized care: Verbal encouragement (4) Lifestyle factors (4) Goals (3) Environment (1) | Medical complications/comorbidities (4) Unpleasant sensations (3) Age (1) | More care (26) Better care (9) Additional information (8) Elimination of unpleasant sensations (4) Spirituality (3) Social support (2) Policy (1) | Participate (48) Positive attitude (20) Listen to providers (19) Determination (13) Be careful (8) Push through pain (6) Don’t worry (4) |
Confirmability and Credibility of the Qualitative Data
Confirmability refers to the degree of agreement among different analysts’ interpretations of the data. To achieve confirmability, data were initially coded by the first reviewer who was a geriatric nurse practitioner and researcher familiar with the hip fracture recovery trajectory. The coded data were then given to a second researcher, an epidemiologist and gerontologist who has studied patients post hip fracture across the entire recovery trajectory. The second reviewer independently coded the transcripts, compared her coding to the coding of the first reviewer, and then discussed the findings with the first reviewer. As the discrepancies were identified the reviewers went back to the data to clarify their interpretations. This type of iterative process was continued until consensus was achieved.
Credibility of the data refers to the believability, fit, and applicability of the findings to the phenomena under study (Habermann-Little, 1991). In order to address credibility, the findings were presented to an interdisciplinary group of clinicians and researchers (one physician, four epidemiologists, three exercise trainers, and one physical and one occupational therapist) familiar with the hip fracture recovery trajectory to establish if the findings “made sense” and were consistent with the existing knowledge related to the current understanding of the recovery process post hip fracture. The findings were presented informally in a small group as well as one-on-one in the clinical setting. These individuals were asked to verbally confirm or refute the findings.
Results
Participants who were satisfied with their functional recovery (n=53) shared their experiences of factors that facilitated functional recovery; those who were not satisfied (n=9) shared their experiences of factors that hindered recovery. The other two themes were system recommendations to facilitate functional recovery and intrinsic or peer advice to future hip fracture patients on factors that facilitate functional recovery.
Facilitators of Recovery
Participants described a number of factors that facilitated recovery, including professional care; social support, determination, spirituality, individualized care, lifestyle factors, goals, and environment (Table 2).
Professional care
Participants repeatedly noted that the professionals (e.g., physical therapists, nurses) they encountered during their post-acute inpatient rehabilitation program had a major impact on their recovery. This included interactions with orthopedic surgeons, nurses, and therapy staff (i.e., physical and occupational therapists). Participants felt buoyed by seeing the physician frequently and having what they perceived as “very good doctors” or “good surgeons,” as well as getting “correct” or “professional” care from rehabilitation care providers. The participants seem to reflect on the entire team of providers in the rehabilitation setting and did not single out one provider over the other in terms of the help and support received. Participants particularly recognized the skill of the provider, evaluated based on successful surgical outcomes or providing information that facilitated recovery. Communication and a positive attitude on the part of the professional providers also seemed to be important to the hip fracture participants.
Social support and spirituality
Following professional care, participants reported that support from family and friends was essential to their recovery. Specifically, participants described the verbal encouragement from family and friends as helping them maintain an optimistic attitude during rehabilitation. For example, “the help, encouragement, and support that I got from my family and friends are essential to …” and “people around me lifted up my spirits.” In addition, participants reported that spirituality and a belief in a supreme being helped them maintain their optimism through the recovery process.
Determination
Participants noted that a major factor facilitating their recovery process was their own determination to walk again. Specifically, participants reported that they were determined to exercise and participate in physical activities as advised by medical professionals both during inpatient rehabilitation and after discharged to home. Examples of comments related to “determination” included, “my determination to walk again,” “my mental attitude – never give up,” and “my determination to learn and improve.” They believed this helped them with their entire recovery process.
Lifestyle factors and environment
Participants reported that beyond their own beliefs and determination, positive lifestyle activities also facilitated their recovery. Health-promoting behaviors that facilitated recovery included eating healthy food, taking appropriate medications and vitamins and, most importantly, engaging in regular exercise. One participant recognized that an environment that encouraged healthy behaviors (i.e., facilitated physical activity) was an important facilitator of exercise.
Identification of goals
The identification of goals by participants included such things as getting back home, regaining independence, or get well and be able to walk again like before. These were recognized as a useful way in which to facilitate the recovery process.
Factors that Hindered Recovery
Participants who were not satisfied with their functional recovery (n=9) identified a number of factors that hindered the recovery process. Generally these focused on challenges and unpleasant sensations, which the participants could interpret to mean that they should not or could not participate in rehabilitation activities or recover fully from the hip fracture.
Medical complications/comorbidities
Medical complications or underlying disease was perceived as the major barrier to recovery. Complications included such things as surgical complications (e.g., loosening of hardware) or subsequent falls. Participants did not indicate if these complications resulted in their inability to actively engage in rehabilitation because (a) it was medically contraindicated or (b) they were self-imposed restrictions.
Unpleasant sensations
Several participants reported that pain was a limiting factor in their recovery process. Pain on hip and thigh of the affected leg directly influenced rehabilitation participation. Conversely, there were many participants who would recommend to other hip fracture patients that they take the pain medications prescribed and that they listen to what healthcare providers said to help relieve pain and facilitate rehabilitation.
System Recommendations to Facilitate Recovery
Participants suggested that several system-related factors should be changed to facilitate the recovery process. The participants requested that they receive additional physical therapy sessions and nursing care at home following post acute rehabilitation discharge. Some individuals also recommended that better and more care be given. Better care was described as more qualified surgeons and care providers who provide more education about the hip fracture recovery process. A few participants suggested policy changes to improve care services, to provide additional home rehabilitation sessions, and to incorporate social supports.
More care/better care
The most common system-related suggestion by participants was to increase the amount of care provided. More care included more direct physical and occupational therapy and more education about the recovery process and optimizing physical function post hip fracture. Requests for additional care were frequently geared toward follow-up and care in the home setting after discharge from the inpatient rehabilitation. Better care included providers having more training and better emergency management.
Spirituality/social support
A small number of participants reported that they would have liked exposure to spiritual support options throughout the course of their rehabilitation program. Likewise, some participants felt that additional social and spiritual supports were needed from family and friends.
Peer advice to facilitate recovery
Finally, we asked all participants to offer one piece of advice that they would give to new hip fracture patients to help them with their recovery. Building on their own personal experiences of the recovery process post hip fracture, the participants had several recommendations for other individuals: (a) stay engaged in the therapy process, (b) do what was recommended by the healthcare providers, (c) keep positive and determined to recover, (d) pursue pain management as indicated, and (e) be cautious so that future fractures are prevented.
Participate and listen to healthcare providers
The most prevalent suggestions provided by participants were to listen to what healthcare providers tell you to do, and to participate as much as possible in rehabilitation activities. For example, “listen to the advice from medical staff, such as doctors, therapists, nurses” and “do a lot of physical and occupational therapy even it’s painful!”
Determination and a positive attitude
Participants strongly recommended that older adults who sustain hip fractures maintain a positive attitude, avoid worry, and remain determined throughout the recovery process. For example, some participants suggested the following: “keep on trying and never give up”; “sitting around isn’t going to help”; “go and exercise!”; “get up and do as much as you can and don’t worry”; and “be positive!”
Be careful
Participants who experienced a hip fracture and the recovery process recommended that others be careful to avoid subsequent trauma, and prevent anything that would impede the recovery process. In particular, warnings were given to prevent future falls. For example, participants noted “to be very careful with recovery and follow all the safety instructions from the medical staff.”
Relieve pain or work through pain
Some participants recommended that new hip fracture patients take the necessary measures to alleviate pain so they could optimally participate in therapy. Other participants suggested that the individual work through the pain. For example, “do your physical therapy even though it may hurt” and “use all offered medications that could alleviate pain and relax muscles.”
Discussion
This study provided insight from the patients’ perspectives through the use of in-person interviews 12 months following post-acute inpatient rehabilitation. Overall, the participants in this study had a positive experience with rehabilitation and attributed their successful recovery to exposure to physical therapy and occupational therapy. The patients recognized and acknowledged that it was the rehabilitation experience that helped them return to their prefracture function and mobility. This finding adds important information to the benefit of the rehabilitation experience from patients’ perspectives. Previous studies on determinants related to functional recovery at one year following hip surgery varies. These include increasing age, comorbidities, lengthy acute hospital stay, chronic or acute cognitive deficits and depressive symptomatology while hospitalized, worse prefracture ADL and IADL, unsteady gait, discharge to institution (Young et al., 1997; Koot et al., 2000). These studies did not include rehabilitation as a significant predictor of functional recovery.
Exposure to rehabilitation alone, however, may not be sufficient to result in an optimal recovery process. Participants in this study also attributed their functional recovery to professional care by their surgeons and support and encouragement from other professional staff. The rehabilitation setting and staff within the rehabilitation setting promote and encourage the rehabilitation process throughout all care activities (Resnick, Slocum, Ra, & Moffett, 1996). In addition, the environment needed to be one that was conducive to recovery. Assuring older adults post hip fracture that they are in a safe environment with grab bars and hand rails to facilitate function, where personal items are easily accessible, and pathways are uncluttered and well lit is important in facilitating optimal functional activities.
Participants in this study reiterated the importance of self-determination and their own personal desires to get better and to recover. This has been noted previously among older adults in rehabilitation settings (Resnick, 2002) and in the Exercise Plus Program following hip fracture (Resnick et al., 2005). Self-determination, as defined by Deci and Ryan (Deci & Ryan, 1985, p.38), is the “capacity to choose and to have those choices be the determinants of one’s action”; perceived self-efficacy (Bandura, 2004) is a person’s belief that personal action can succeed in bringing about desired changes. In this study, patients stressed mental attitude that “determination to walk again,” “determination to learn and improve,” a “positive attitude,” and a “never give up” frame of mind helped in their post-acute functional recovery. Self-determination and perceived self-efficacy may propel the individual to do more exercise and be more cooperative with instructions given by health professionals, hence, better functional recovery.
In addition to being determined, the participants in this study described being resilient in the face of the acute hip fracture. Resilience has been described as an individual’s capacity to make a “psycho-social comeback in adversity” (Kadner, 1989). Resilience in women older than 85 is defined as the ability to achieve, retain, or regain a level of physical or emotional health after devastating illness or loss (Felten & Hall, 2001). Resilient individuals tend to manifest adaptive behavior, especially with regard to social functioning, morale, and somatic health (Wagnild & Young, 1990), and are less likely to succumb to illness (O’Connell & Mayo, 1988; Caplan, 1990). Older women who have successfully recovered from orthopedic or other stressful events have been noted to describe themselves as resilient and determined (Felten, 2000; Felten & Hall, 2001). Community-dwelling older adults who are resilient were noted to have better function, mood, and quality of life than those who were less resilient (Glantz & Johnson, 1999; Wagnild, 2003; Hardy, Concato & Gill, 2004). Stressful events such as hip fractures are actually perceived differently by those who consider themselves to be resilient (Hardy, Concato, & Gill, 2002). This variation in response to stressful events further supports the importance of resilience with regard to recovery of function and willingness to engage in activities such as rehabilitation to regain and maintain optimal health following a hip fracture.
Following professional care and self-determination, patients described social support from family and friends as playing a significant role in helping their functional recovery. This finding confirms previous studies that social support is independently associated with better functional recovery among elderly hip fracture patients (Roberto, 1992; Young et al., 2005). Better understanding of social support mechanisms at home and in communities can facilitate functional recovery. Support mechanisms and resources available to patients are important and should be an integrating part of post-acute care discharge planning.
Participants who were not satisfied with their functional recovery at one year reported that factors hindering their functional recovery included older age, medical complications, comorbidities, and unpleasant sensations such as pain. Modifiable barriers such as unpleasant sensations should be anticipated and addressed to optimize the rehabilitation process. Likewise, attempts should be made to prevent commonly noted adverse events post fracture, such as deep vein thrombosis, pressure ulcers, pneumonia, and urinary tract infections, through early mobilization and medical management with anticoagulation as appropriate to the individual patient.
When asked about what might improve functional recovery for hip fracture patients, participants in this study unanimously reported that more information about the rehabilitation process post hip fracture and increasing and extending physical therapy and occupational therapy at post-acute inpatient settings would be beneficial. It is possible that these individuals needed the ongoing support, encouragement, and confidence-building they received from the professional staff in the rehabilitation setting. Several recent studies have tested the impact of home-based exercise programs following hip fracture (Resnick, Magaziner, Orwig & Zimmerman, 2002; Mangione & Palombaro, 2005), and the participants in these studies were willing to engage in additional exercise activities following discharge from rehabilitation.
Participants in this study were optimistic in their advice to other patients post hip fracture. They encouraged these individuals to be positive, to do what they were told to do in the rehabilitation setting, to keep on working with the therapists, and to avoid worry. While this small sample is likely not to be representative of all individuals post hip fracture, their optimism following this type of acute event should be carefully considered. All too often for older adults and their professional and nonprofessional caregivers, hip fractures are perceived as the beginning of a functional and emotional decline. As noted by the participants in this study, recovery can occur with optimal medical management, the support of professional therapists and other healthcare providers, determination on the part of the individual, and that the support and encouragement of others in the social network are equally important.
PRACTICE
This article provides nurses and other direct patient care providers with an awareness that functional recovery among older adults with hip fracture is complex and multidimensional. To reach optimal functional recovery, self-determination, positive attitude, and social support of the patient play significant roles in making rehabilitation work.
Limitations
Participants in this study were recruited from the Baltimore metropolitan area; therefore sociodemographic and geographical variations may limit the generalizability of the findings to other populations or cities. The Rehab&Hipfx study had stringent eligibility criteria because it was designed to evaluate the effectiveness of rehabilitation. Due to these inherent data source limitations, the findings of this study may be applicable only to hip fracture patients with similar characteristics. While the study findings were found to be credible with rehabilitation clinicians and researchers, they were not verified with post hip fracture patients. Finally, because the themes were determined by the interview guide, additional exploratory research exploring functional recovery experiences from the perspective of post hip fracture patients is warranted.
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