My Bibliography

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Wakefield EO, Zempsky WT, Puhl RM, Kashikar-Zuck S, Connelly M, Goodin BR, Edelheit B, Belamkar V, Adetayo T, Evans CT, Theriault C, DelGaudio C, Litt MD. The development and validation of the pain-related stigma scale for adolescents (PReSS-A) with chronic pain. J Pain. 2025 Jun 13;:105463. doi: 10.1016/j.jpain.2025.105463. [Epub ahead of print] PubMed PMID: 40517981; NIHMSID:NIHMS2096935.

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Lee RR, McDonagh JE, Rapley T, Farre A, Connelly M, Palermo TM, Toupin-April K, Wakefield E, Peters S, Cordingley L. "My gut feeling is…": An Ethnographic Study Exploring Interprofessional Communication About Children and Adolescents With Chronic Musculoskeletal Pain in Paediatric Rheumatology. J Pain. 2023 Dec;24(12):2257-2267. doi: 10.1016/j.jpain.2023.07.010. Epub 2023 Jul 16. PubMed PMID: 37454883.

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Boileau NR, Thompson-Phillips KA, Goodin BR, Lynch-Milder MK, Evans CT, Adetayo T, Rudolph AF, Stoll ML, Weiser P, Fobian AD, Gowey MA, Wakefield EO. Pain-Related Stigma and Its Associations With Clinical and Experimental Pain Severity in Youth With Chronic Musculoskeletal Pain Conditions. J Pediatr Psychol. 2023 Oct 20;48(10):842-851. doi: 10.1093/jpepsy/jsad048. PubMed PMID: 37500594; PubMed Central PMCID: PMC10588972.

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Lynch-Jordan AM, Connelly M, Guite JW, King C, Goldstein-Leever A, Logan DE, Nelson S, Stinson JN, Ting TV, Wakefield EO, Williams AE, Williams SE, Kashikar-Zuck S. Clinical Characterization of Juvenile Fibromyalgia in a Multicenter Cohort of Adolescents Enrolled in a Randomized Clinical Trial. Arthritis Care Res (Hoboken). 2023 Aug;75(8):1795-1803. doi: 10.1002/acr.25077. Epub 2023 Feb 16. PubMed PMID: 36537193; PubMed Central PMCID: PMC11284638.

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Wakefield EO, Sandhu P, Zempsky WT. Describing the Challenges for School Nurses Managing Students With Chronic Pain. Topics in Pain Management. 2023 July; 38(12):1. doi: 10.1097/01.TPM.0000946460.70411.a0.

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Wakefield EO, Belamkar V, Sandoval A, Puhl RM, Edelheit B, Zempsky WT, Rodrigues HA, Litt MD. Does Diagnostic Certainty Matter?: Pain-Related Stigma in Adolescents with Juvenile Idiopathic Arthritis. J Pediatr Psychol. 2023 Apr 20;48(4):341-351. doi: 10.1093/jpepsy/jsac092. PubMed PMID: 36892594; PubMed Central PMCID: PMC10118850.

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Kashikar-Zuck S, Barnett KA, Williams SE, Pfeiffer M, Thomas S, Beasley K, Chamberlin LA, Mundo K, Ittenbach RF, Peugh J, Gibler RC, Lynch-Jordan A, Ting TV, Gadd B, Taylor J, Goldstein-Leever A, Connelly M, Logan DE, Williams A, Wakefield EO, Myer GD. FIT Teens RCT for juvenile fibromyalgia: Protocol adaptations in response to the COVID 19 pandemic. Contemp Clin Trials Commun. 2022 Dec;30:101039. doi: 10.1016/j.conctc.2022.101039. eCollection 2022 Dec. PubMed PMID: 36467389; PubMed Central PMCID: PMC9707024.

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Wakefield EO, Kissi A, Mulchan SS, Nelson S, Martin SR. Pain-related stigma as a social determinant of health in diverse pediatric pain populations. Front Pain Res (Lausanne). 2022;3:1020287. doi: 10.3389/fpain.2022.1020287. eCollection 2022. Review. PubMed PMID: 36452885; PubMed Central PMCID: PMC9701705.

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Wakefield EO, Belamkar V, Litt MD, Puhl RM, Zempsky WT. "There's Nothing Wrong With You": Pain-Related Stigma in Adolescents With Chronic Pain. J Pediatr Psychol. 2022 Apr 8;47(4):456-468. doi: 10.1093/jpepsy/jsab122. PubMed PMID: 34871426; PubMed Central PMCID: PMC9216484.

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Mulchan SS, Wakefield EO, Martin SR, Ayr-Volta L, Krenicki K, Zempsky WT. Navigating Ethical Challenges for Pediatric Sickle Cell Pain Management in the Context of the Opioid Epidemic. Clin J Pain. 2021 Nov 22;38(2):88-94. doi: 10.1097/AJP.0000000000001007. Review. PubMed PMID: 34803155.

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Wakefield EO, Mathew ES, Zempsky WT. Supporting the Imperfect Use of Amplified Pain Syndrome. JAMA Pediatr. 2021 Sep 1;175(9):977. doi: 10.1001/jamapediatrics.2021.1488. PubMed PMID: 34125155.

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Wakefield EO, Puhl RM, Litt MD, Zempsky WT. "If It Ever Really Hurts, I Try Not to Let Them Know:" The Use of Concealment as a Coping Strategy Among Adolescents With Chronic Pain. Front Psychol. 2021;12:666275. doi: 10.3389/fpsyg.2021.666275. eCollection 2021. PubMed PMID: 34149560; PubMed Central PMCID: PMC8209248.

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Mulchan SS, Wakefield EO, Santos M. What COVID-19 Teaches Us About Implicit Bias in Pediatric Health Care. J Pediatr Psychol. 2021 Feb 19;46(2):138-143. doi: 10.1093/jpepsy/jsaa131. PubMed PMID: 33486504; PubMed Central PMCID: PMC7928717.

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Wakefield EO, Zempsky WT, Puhl RM, Litt MD. Conceptualizing pain-related stigma in adolescent chronic pain: a literature review and preliminary focus group findings. Pain Rep. 2018 Sep;3(Suppl 1):e679. doi: 10.1097/PR9.0000000000000679. eCollection 2018 Sep. PubMed PMID: 30324171; PubMed Central PMCID: PMC6172824.

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Wakefield EO, Pantaleao A, Popp JM, Dale LP, Santanelli JP, Litt MD, Zempsky WT. Describing Perceived Racial Bias Among Youth With Sickle Cell Disease. J Pediatr Psychol. 2018 Aug 1;43(7):779-788. doi: 10.1093/jpepsy/jsy015. PubMed PMID: 29562253.

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Wakefield EO, Kutner EC. Improving adherence in pediatric pain: An introduction to motivational interviewing. Topics in Pain Management. 2018; 33(10):1-8. doi: 10.1097/01.TPM.0000532713.05830.bc.

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Zempsky WT, Wakefield EO, Santanelli JP, New T, Smith-Whitley K, Casella JF, Palermo TM. Widespread Pain Among Youth With Sickle Cell Disease Hospitalized With Vasoocclusive Pain: A Different Clinical Phenotype?. Clin J Pain. 2017 Apr;33(4):335-339. doi: 10.1097/AJP.0000000000000403. PubMed PMID: 27322398; NIHMSID:NIHMS795021.

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Wakefield EO, Popp JM, Dale LP, Santanelli JP, Pantaleao A, Zempsky WT. Perceived Racial Bias and Health-Related Stigma Among Youth with Sickle Cell Disease. J Dev Behav Pediatr. 2017 Feb/Mar;38(2):129-134. doi: 10.1097/DBP.0000000000000381. PubMed PMID: 28059954.

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Wakefield EO, Jerson BT. Social influences in the evaluation and treatment of biopsychosocial contributors to adolescent chronic pain. Topics in Pain Management. 2017; 32(9):1-8. doi: 10.1097/01.TPM.0000515416.01386.7d.

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Namerow LB, Kutner EC, Wakefield EC, Rzepski BR, Sahl RA. Pain Amplification Syndrome: A Biopsychosocial Approach. Semin Pediatr Neurol. 2016 Aug;23(3):224-230. doi: 10.1016/j.spen.2016.10.006. Epub 2016 Oct 20. Review. PubMed PMID: 27989330.

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Zempsky WT, O'Hara EA, Santanelli JP, New T, Smith-Whitley K, Casella J, Palermo TM. Development and validation of the Youth Acute Pain Functional Ability Questionnaire (YAPFAQ). J Pain. 2014 Dec;15(12):1319-27. doi: 10.1016/j.jpain.2014.09.008. Epub 2014 Sep 30. PubMed PMID: 25277425; PubMed Central PMCID: PMC4253024.

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Robinson MR, Daniel LC, O'Hara EA, Szabo MM, Barakat LP. Insurance status as a sociodemographic risk factor for functional outcomes and health-related quality of life among youth with sickle cell disease. J Pediatr Hematol Oncol. 2014 Jan;36(1):51-6. doi: 10.1097/MPH.0000000000000013. PubMed PMID: 24136028; PubMed Central PMCID: PMC4418500.

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Zempsky WT, O'Hara EA, Santanelli JP, Palermo TM, New T, Smith-Whitley K, Casella JF. Validation of the sickle cell disease pain burden interview-youth. J Pain. 2013 Sep;14(9):975-82. doi: 10.1016/j.jpain.2013.03.007. Epub 2013 May 20. PubMed PMID: 23701707; PubMed Central PMCID: PMC3759569.

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Nissen CW, O'Hara EA, McCarthy M, Kostyun R. Development and validation of the elbow demand rating scale. Sports Health. 2013 Jul;5(4):360-2. doi: 10.1177/1941738112475122. PubMed PMID: 24459555; PubMed Central PMCID: PMC3899901.

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Dale LP, O'Hara EA, Keen J, Porges SW. Infant regulatory disorders: temperamental, physiological, and behavioral features. J Dev Behav Pediatr. 2011 Apr;32(3):216-24. doi: 10.1097/DBP.0b013e3181e32c4f. PubMed PMID: 21057324; PubMed Central PMCID: PMC3069147.

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Intersectional Stigma among LGBTQIA+ Adolescents with Chronic Primary Musculoskeletal Pain and Its Association with Functioning and Depressive Symptoms. Health psychology : official journal of the Division of Health Psychology, American Psychological Association. . NIHMSID: NIHMS2074872.