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Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development.
Knighting K, Pilkington G, Noyes J, et al.
Southampton (UK): NIHR Journals Library; 2021 Feb. (Health Services and Delivery Research, No. 9.6.)
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Cerebral palsy in under 25s: assessment and management.
National Guideline Alliance (UK).
London: National Institute for Health and Care Excellence (NICE); 2017 Jan. (NICE Guideline, No. 62.)
Investing in the Health and Well-Being of Young Adults.
Committee on Improving the Health, Safety, and Well-Being of Young Adults; Board on Children, Youth, and Families; Institute of Medicine; National Research Council; Bonnie RJ, Stroud C, Breiner H, editors.
Washington (DC): National Academies Press (US); 2015 Jan 27.
GeneReviews® [Internet].
Adam MP, Mirzaa GM, Pagon RA, et al., editors.
Seattle (WA): University of Washington, Seattle; 1993-2023.
Cystic Fibrosis: Diagnosis and management.
London: National Institute for Health and Care Excellence (NICE); 2017 Oct 25. (NICE Guideline, No. 78.)
The transition from children’s services to adult services for young people with attention deficit hyperactivity disorder: the CATCh-uS mixed-methods study.
Janssens A, Eke H, Price A, et al.
Southampton (UK): NIHR Journals Library; 2020 Nov. (Health Services and Delivery Research, No. 8.42.)
Opportunities for Improving Programs and Services for Children with Disabilities.
National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Committee on Improving Health Outcomes for Children with Disabilities; Byers E, Valliere FR, Houtrow AJ, editors.
Washington (DC): National Academies Press (US); 2018 May 11.
Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.
National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Population Health and Public Health Practice; Committee on Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action; Martinez RM, Osei-Anto HA, McCormick M, editors.
Washington (DC): National Academies Press (US); 2020 Sep 10.
StatPearls [Internet].
Treasure Island (FL): StatPearls Publishing; 2023 Jan-.
Endotext [Internet].
Feingold KR, Anawalt B, Blackman MR, et al., editors.
South Dartmouth (MA): MDText.com, Inc.; 2000-.
Facilitating the transition of young people with long-term conditions through health services from childhood to adulthood: the Transition research programme.
Colver A, Rapley T, Parr JR, et al.
Southampton (UK): NIHR Journals Library; 2019 May. (Programme Grants for Applied Research, No. 7.4.)
Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a longitudinal qualitative study.
Renedo A, Miles S, Chakravorty S, et al.
Southampton (UK): NIHR Journals Library; 2020 Nov. (Health Services and Delivery Research, No. 8.44.)
Handbook of Life Course Health Development [Internet].
Halfon N, Forrest CB, Lerner RM, et al., editors.
Cham (CH): Springer; 2018.
The Future of Disability in America.
Institute of Medicine (US) Committee on Disability in America; Field MJ, Jette AM, editors.
Washington (DC): National Academies Press (US); 2007.
PDQ Cancer Information Summaries [Internet].
Bethesda (MD): National Cancer Institute (US); 2002-.
Urinary Incontinence in Neurological Disease: Management of Lower Urinary Tract Dysfunction in Neurological Disease.
National Clinical Guideline Centre (UK).
London: Royal College of Physicians (UK); 2012 Aug. (NICE Clinical Guidelines, No. 148.)
Emergency and acute medical care in over 16s: service delivery and organisation.
National Guideline Centre (UK).
London: National Institute for Health and Care Excellence (NICE); 2018 Mar. (NICE Guideline, No. 94.)
Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study.
Morris S, Hudson E, Bloom L, et al.
Southampton (UK): NIHR Journals Library; 2022 Mar. (Health and Social Care Delivery Research, No. 10.5.)
Database of Abstracts of Reviews of Effects (DARE): Quality-assessed Reviews [Internet].
York (UK): Centre for Reviews and Dissemination (UK); 1995-.
Improving the Health, Safety, and Well-Being of Young Adults: Workshop Summary.
Board on Children, Youth, and Families; Institute of Medicine; National Research Council.
Washington (DC): National Academies Press (US); 2013 Sep 27.
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