NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.

Institute of Medicine (US) Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule; Nass SJ, Levit LA, Gostin LO, editors. Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington (DC): National Academies Press (US); 2009.

Cover of Beyond the HIPAA Privacy Rule

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research.

Show details


This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report:

CLARA D. BLOOMFIELD, Distinguished University Professor, The Ohio State University Comprehensive Cancer Center and James Cancer Hospital and Solove Research Institute, Columbus

ALEXANDER M. CAPRON, Professor of Law and Medicine, Gould School of Law, University of Southern California, Los Angeles

ANN CAVOUKIAN, Information and Privacy Commissioner of Ontario, Office of the Information and Privacy Commissioner, Canada

DEBORAH COLLYAR, President, PAIR: Patient Advocates in Research, Danville, CA

EDWARD GOLDMAN, Associate Vice President and Deputy General Counsel, University of Michigan Health System, Ann Arbor

EMMETT B. KEELER, Senior Mathematician, Pardee RAND Graduate School, University of California–Los Angeles School of Public Health, Los Angeles

BETSY KOHLER, Executive Director, North American Association of Central Cancer Registries, Springfield, IL

MELISSA L. MARKEY, Associate, Hall, Render, Killian, Heath & Lyman, P.L.L.C., Troy, MI

DEVON McGRAW, Director, Health Privacy Project, Center for Democracy & Technology, Washington, DC

LYNNE WARNER STEVENSON, Director, Cardiomyopathy and Heart Failure Program, Brigham and Women’s Hospital, Cardiovascular Division, Boston, MA

MARCY WILDER, Partner, Hogan & Hartson, L.L.P., Washington, DC

Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the conclusions or recommendations nor did they see the final draft of the report before its release. The review of this report was overseen by Neal A. Vanselow, M.D., Chancellor Emeritus and Professor Emeritus of Medicine at the Tulane University Medical Center, and Bradford H. Gray, Ph.D., Editor, The Milbank Quarterly, and Principle Research Associate, The Urban Institute. Appointed by the National Research Council and the Institute of Medicine, they were responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the authoring committee and the institution.

Copyright © 2009, National Academy of Sciences.
Bookshelf ID: NBK9566


Recent Activity

Your browsing activity is empty.

Activity recording is turned off.

Turn recording back on

See more...