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Brasure M, Shamliyan T, Butler M, et al. Finding Evidence on Ongoing Studies [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2010 Dec. (Methods Future Research Needs Reports, No. 1.)

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Finding Evidence on Ongoing Studies [Internet].

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The World Health Organization. International Clinical Trials Registry Platform. [Accessed June 16, 2010]. Available at: http://www​
Higgins JPTGS, editor. Cochrane Handbook for Systematic Reviews of Interventions Version 5.0.2. The Cochrane Collaboration; 2009.
United States National Library of Medicine NIoH. FAQ:—What is the FDAMA? [Accessed May 4, 2010]. Available at: http://www​​.html.
International collaborative group on clinical trial registries. Position paper and consensus recommendations on clinical trial registries. Ad Hoc Working Party of the International Collaborative Group on Clinical Trials Registries. Clinical Trials & Meta-Analysis. 1993 Aug;28(4–5):255–266. [PubMed: 10146333]
Kuehn B. Clinical Trials Registry Expands. JAMA. 2009;302(1):22. [PubMed: 19567428]
O’Kelly M, Julious S, Pyke S, et al. Making available information from studies sponsored by the pharmaceutical industry: some current practices. Pharmaceutical Statistics. 2010 [PubMed: 21275036]
De Angelis C, Drazen JM, Frizelle FA, et al. Clinical trial registration: a statement from the International Committee of Medical Journal Editors. Annals of Internal Medicine. 2004 Sep 21;141(6):477–478. [PubMed: 15355883]
Laine C, Horton R, DeAngelis CD, et al. Clinical trial registration: Looking back and moving ahead. Annals of Internal Medicine. 2007 Aug;147(4):275–277. [PubMed: 17548404]
Moja LP, Moschetti I, Nurbhai M, et al. Compliance of clinical trial registries with the World Health Organization minimum data set: a survey. Trials [Electronic Resource] 2009;10:56. [PMC free article: PMC2734552] [PubMed: 19624821]
Collier R. Clinical trial registries becoming a reality, but long-term effects remain uncertain. Canadian Medical Association Journal. 2009;180(10):1007. [PMC free article: PMC2679826] [PubMed: 19433815]
Drazen JM, Zarin DA. Salvation by registration. New England Journal of Medicine. 2007 Jan 11;356(2):184–185. [PubMed: 17215537]
Zarin DA, Tse T, Ide NC. Trial Registration at between May and October 2005. New England Journal of Medicine. 2005 Dec 29;353(26):2779–2787. [PMC free article: PMC1568386] [PubMed: 16382064]
Dwan K, Altman D, Arnaiz J, et al. Systematic review of the empirical evidence of study publication bias and outcome reporting bias. PLoS ONE [Electronic Resource] 2008;3(8):3081. [PMC free article: PMC2518111] [PubMed: 18769481]
Ramsey S, Scoggins J. Commentary: practicing on the tip of an information iceberg? Evidence of underpublication of registered clinical trials in oncology. Oncologist. 2008 Sep;13(9):925–929. [PMC free article: PMC2675281] [PubMed: 18794216]
Rasmussen N, Lee K, Bero L. Association of trial registration with the results and conclusions of published trials of new oncology drugs. Trials [Electronic Resource] 2009;10:116. [PMC free article: PMC2811705] [PubMed: 20015404]
Ross JS, Mulvey GK, Hines EM, et al. Trial publication after registration in ClinicalTrials.Gov: a cross-sectional analysis. PLoS Medicine/Public Library of Science. 2009 Sep;6(9):e1000144. [PMC free article: PMC2728480] [PubMed: 19901971]
Song F, Parekh-Bhurke S, Hooper L, et al. Extent of publication bias in different categories of research cohorts: a meta-analysis of empirical studies. BMC Medical Research Methodology. 2009;9:79. [PMC free article: PMC2789098] [PubMed: 19941636]
Mathieu S, Boutron I, Moher D, et al. Comparison of registered and published primary outcomes in randomized controlled trials.[Erratum appears in JAMA 2009 Oct 14;302(14):1532] JAMA. 2009 Sep 2;302(9):977–984. [PubMed: 19724045]
Easterbrook P. Directory of registries of clinical trials. Statistics in Medicine. 1992;11(3):345–423. [PubMed: 1609175]
Damle A, Lurie P, Wolfe S. A Policy Study of Clinical Trial Registries and Results Databases. Washington, DC: Public Citizen’s Health Research Group; [Accessed 2007]. Available at: http://www​​/publications/release.cfm.
WHO. International Clinical Trials Registry Platform Search Portal. World Health Organization; [Accessed August 20, 2010]. Available at: http://apps​​.aspx.
IFPMA. IFPMA Clinical Trials Portal. IFPMA; Available at: http:​//clinicaltrials​​/no_cache/en/myportal/index.htm.
23. [Accessed August 27, 2010]. Available at: http:​//
ISCTRN. ISRTCN. [Accessed August 27, 2010]. Available at: http://www​
Gold JL, Studdert DM. Clinical trials registries: a reform that is past due. Journal of Law, Medicine & Ethics. 2005;33(4):811–820. [PubMed: 16686250]
University of Michigan [Accessed November 11, 2010]. Available at: http://www​
Internet Stroke Center at Washington University. Stroke Trials Registry. [Accessed November 11, 2010].
Trials CC. metaRegister of Controlled Trials. [Accessed August 27, 2010]. Available at: http://www​
PhRMA. Available at: http://www​.clinicalstudyresults​.org/home/
Zarin DA, Tse T. Tracking health services research studies. JAMA. 2008 Nov 19;300(19):2252. author reply. [PubMed: 19017910]
31. SurveyMonkey. [Accessed August 10, 2010]. Available at: surveymonkey​.com.
Santaguida P. Pharmacological treatment of dementia. Rockville, MD: Agency for Healthcare Research and Quality; 2004.
Sharma M. Acute stroke: evaluation and treatment. Rockville, MD: Agency for Healthcare Research and Quality; 2005.
Piper M, Seidenfeld J, Aronson N. Islet transplantation in patients with Type I diabetes mellitus. Rockville, MD: Agency for Healthcare Research and Quality; 2004.
Beach M, Cooper L, Robinson K, et al. Strategies for improving minority healthcare quality. Agency for Healthcare Research and Quality; 2005. [PMC free article: PMC4781181] [PubMed: 15164678]


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