Table 4. Resources for health professionals, patients, and families [Resources]

Name of OrganizationExplanation
  • Administration on Aging
  • Department of Health and Human Services
  • 330 Independence Avenue, SW
  • Washington, DC 20201
  • (202) 619-1006
  • Fax: (202) 619-7586
  • Internet:
  • http://www.aoa.dhhs.gov
The Administration on Aging (AoA) coordinates delivery of services specified by the Older Americans Act. Services are coordinated and provided through 57 State agencies and 657 areas. The range of services provided by these Agencies on Aging (AAA) varies, but all include nutrition, access, in-home, and community services. Addresses and phone numbers of State and local AAAs are available from the national office. The Elder Care Locator (800-667-1116) provides a toll-free access number to locate State agency networks.
  • Alzheimer's Association
  • 919 North Michigan Avenue, Suite 100
  • Chicago, IL 60611-1676
  • (312) 335-8700 800-272-3900 for information and local chapter referrals nationwide (24- hour telephone line)
  • Internet address: http://www.alz.org
The Alzheimer's Association is a national voluntary organization with 220 local chapters and more than 2,000 support groups. The Alzheimer's Association funds research, promotes public awareness, advocates legislation for patients and families, and provides support services, including support groups, adult day care programs, respite care programs, and telephone helplines through its national, local chapter, and volunteer network.
Alzheimer's Disease Centers (access through ADEAR; see next entry)The National Institute on Aging, a component of the National Institutes of Health, supports 28 Alzheimer's Disease Centers across the country. This program provides clinical services, conducts basic and clinical research, disseminates professional and public information, and sponsors educational activities. A growing number of satellite clinics associated with this program are helping to expand diagnostic and treatment services in rural and minority communities and collect research data from a more diverse population.
  • Alzheimer's Disease Education and Referral Center
  • P.O. Box 8250
  • Silver Spring, MD 20907-8250
  • 800-438-4380
  • Fax: (301) 495-3334
  • Internet address: adear@alzheimers.org
The Alzheimer's Disease Education and Referral (ADEAR) Center, a service of the National Institute on Aging, provides information and publications on Alzheimer's disease for health professionals, people with Alzheimer's disease and their families, and the public. The ADEAR Center serves as a national resource for information on diagnosis, treatment issues, patient care, caregiver needs, long-term care, education, research, and ongoing programs. In addition, the Center provides referrals to national and State resources.
Other Resources
  • American Association of Retired Persons (AARP)
  • Washington, DC
  • (202) 434-2277
  • 800-424-3410
  • AARP Pharmacy Price Quote Center
  • 800-456-2226 (open 24 hours a day)
  • American Bar Association Commission on Legal
  • Problems of the Elderly
  • Washington, DC
  • (202) 662-8690
  • Children of Aging Parents
  • Levittown, PA
  • (215) 945-6900
  • Consortium to Establish a Registry for Alzheimer's Disease (CERAD)
  • Durham, NC
  • (919) 286-6406 or 6405
  • Insurance Consumer Helpline
  • Washington, DC
  • 800-942-4242
  • Medicare Beneficiaries Defense Fund
  • New York, NY
  • (212) 869-3850
  • 800-333-4114
  • Medicare Hotline
  • Baltimore, MD
  • 800-638-6833
  • National Association for Continence
  • Spartanburg, SC
  • 800-BLADDER
  • (800-252-3337
  • National Citizens' Coalition for Nursing Home Reform
  • Washington, DC
  • (202) 332-2275
  • National Hospice Organization
  • Arlington, VA
  • (703) 243-5900
  • 800-658-8898
  • National Parkinson's Foundation
  • East Coast: Miami, FL
  • 800-327-4545
  • West Coast: Encino, CA
  • 800-522-8855
  • National Stroke Association
  • Englewood, CO
  • (303) 771-1700
  • 800-STROKES
  • Social Security Information
  • 800-772-1213
  • (open 7 am-7 pm in all time zones)
  • U.S. Department of Veterans Affairs
  • Regional Office, Veterans Assistance
  • Washington, DC
  • (202) 418-4343
  • 800-827-1000

From: 19, Early Identification of Alzheimer's Disease and Related Dementias

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