BOX 3-4Policy and Educational Infrastructure

  • Genetic Information Non-Discrimination Act (GINA)
  • Consensus or decisions on what should be reported to patients
  • Adequate consent and consistent IRB approach
  • Flexible approach to counseling that does not require one-on-one sessions with certified genetic counselor
  • Education of clinicians
  • Education of patients and family members

From: 3, Taking Advantage of New Tools and Techniques

Cover of Redesigning the Clinical Effectiveness Research Paradigm
Redesigning the Clinical Effectiveness Research Paradigm: Innovation and Practice-Based Approaches: Workshop Summary.
Institute of Medicine (US) Roundtable on Value & Science-Driven Health Care; Olsen LA, McGinnis JM, editors.
Washington (DC): National Academies Press (US); 2010.
Copyright © 2010, National Academy of Sciences.

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