NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.
Gliklich RE, Bibeau K, Eisenberg F, et al. Outcome Measures Framework: Information Model Report: Registry of Patient Registries [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2018 Feb.
Outcome Measures Framework: Information Model Report: Registry of Patient Registries [Internet].
Show details- 1.
- Gliklich R, Dreyer N, Leavy M, eds. Registries for Evaluating Patient Outcomes: A User’s Guide. 3(2). Prepared by the Outcome DEcIDE Center [Outcome Sciences, Inc., a Quintiles company] under Contract No. 290 2005 00351 TO7. AHRQ Publication No. 13(14)-EHC111. Rockville, MD: Agency for Healthcare Research and Quality. April 2014. [PubMed: 24945055]
- 2.
- Gliklich RE, Leavy MB, Karl J, et al. A framework for creating standardized outcome measures for patient registries. J. Comp. Eff. Res. 2014; 3(5):473–480. [PubMed: 25350799]
- 3.
- Anees M, Asghar A, Mahmood KT. Management of valvular heart diseases. J. Pharm. Sci. & Res. 2010;2(11):740–744.
- 4.
- Aletaha D, Neogi T, Silman AJ, et al. 2010. Rheumatoid arthritis classification criteria. Arthritis and Rheum. 2010;62(9):2569–81. [PubMed: 20872595]
- 5.
- Felson DT, Anderson JJ, Boers M, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. The Committee on Outcome Measures in Rheumatoid Arthritis Clinical Trials. Arthritis Rheum. 1993;36:729–40. [PubMed: 8507213]
- 6.
- Scott DL, Panayi GS, van Riel PL, et al. Disease activity in rheumatoid arthritis: preliminary report of the Consensus Study Group of the European Workshop for Rheumatology Research. Clin Exp Rheumatol. 1992;10:521–5. [PubMed: 1458708]
- 7.
- van Gestel AM, Anderson JJ, van Riel PL, et al. ACR and EULAR improvement criteria have comparable validity in rheumatoid arthritis trials. J Rheumatol. 1999;26:705–11. [PubMed: 10090187]
- 8.
- Wolfe F, Lassere M, van der Heijde D, et al. Preliminary core set of domains and reporting requirements for longitudinal observational studies in rheumatology. J Rheumatol. 1999;26:484–9. [PubMed: 9972992]
- 9.
- OMERACT handbook. http://omeract
.org/pdf/OMERACT_Handbook .pdf. Accessed October 14, 2015. - 10.
- http://www
.omeract.org/index.html. Accessed February 18, 2015. - 11.
- Boers M, Kirwan JR, Wells G, et al. Developing core outcome measurement sets for clinical trials: OMERACT filter 2.0. J Clin Epidemiol. 2014 Jul;67(7):745–53. PMID: 24582946. [PubMed: 24582946]
- 12.
- Boers M, Kirwan JR, Tugwell P, et al. The OMERACT Handbook. July 2014. http://www
.omeract.org /pdf/OMERACT_Handbook.pdf. Accessed February 18, 2015. - 13.
- OMERACT. OMERACT reference list. http://www
.omeract.org /pdf/OMERACT%20Reference%20List.pdf. Accessed February 18, 2015. - 14.
- Idzerda L, Rader T, Tugwell P, et al. Can we decide which outcomes should be measured in every clinical trial? A scoping review of the existing conceptual frameworks and processes to develop core outcome sets. J Rheumatol. 2014 May;41(5):986–93. PMID: 24584917. [PubMed: 24584917]
- 15.
- Boers M, Idzerda L, Kirwan JR, et al. Toward a generalized framework of core measurement areas in clinical trials: a position paper for OMERACT 11. J Rheumatol. 2014 May;41(5):978–85. PMID: 24584922. [PubMed: 24584922]
- 16.
- Leavy, Michelle (Quintiles). Conversation with: Maarten Boers (VU University Medical Center). 05 January 2015.
- 17.
- Boers M, Kirwan JR, Wells G, et al. Developing core outcome measurement sets for clinical trials: OMERACT filter 2.0. J Clin Epidemiol. 2014 Jul;67(7):745–53. PMID: 24582946. [PubMed: 24582946]
- 18.
- Centers for Medicare and Medicaid Services. Measures Management System Blueprint, V11.2. https://www
.cms.gov/Medicare /Quality-Initiatives-Patient-Assessment-Instruments /MMS/MMS-Blueprint .html. Accessed March 5, 2016. - 19.
- National Quality Measures Clearinghouse. Template of Measure Attributes. Agency for Healthcare Research and Quality. https://www
.qualitymeasures .ahrq.gov/help-and-about /summaries /template-of-measure-attributes. Accessed February 15, 2016. - 20.
- Centers for Medicare and Medicaid Services. A Blueprint for the CMS Measures Management System, Volume 11.2, January 2016. https://www
.cms.gov/Medicare /Quality-Initiatives-Patient-Assessment-Instruments /MMS /Downloads/Blueprint112.pdf. - 21.
- Midwives Alliance of North America -- definitions. Midwives Alliance of North America. http://mana
.org/definitions.html. Accessed October 24, 2012. - 22.
- National Quality Measures Clearinghouse. Glossary. Agency for Healthcare Research and Quality. https://www
.qualitymeasures .ahrq.gov/about/glossary.aspx. Accessed February 15, 2016. - 23.
- Appendix C: Glossary. Selecting quality and resource use measures: a decision guide for community quality collaboratives. AHRQ Publication No. 09(10)-0073. Rockville (MD): Agency for Healthcare Research and Quality; 2010 May. http://www
.ahrq.gov/professionals /quality-patient-safety /quality-resources /tools /perfmeasguide/perfmeasappc.html. Accessed May 16, 2013. - 24.
- Centers for Medicare and Medicaid Services. A Blueprint for the CMS Measures Management System. https://www
.cms.gov/Medicare /Quality-Initiatives-Patient-Assessment-Instruments /MMS /Downloads/Blueprint112.pdf - 25.
- Faculty of Public Health, University of Indonesia. Health professional survey by IndoPacific Edelman. SlideShare Inc.https://www
.slideshare .net/edelmanindonesia /2010-health-professionals-survey. Accessed October 20, 2011. - 26.
- Tobacco Free Initiative (TFI). WHO/CDC global health professional survey (GHPS). Geneva: World Health Organization (WHO). http://www
.who.int/tobacco /surveillance/ghps/en/index.html. Accessed October 21, 2011. - 27.
- TheFreeDictionary: Diagnostic imaging. Huntingdon Valley (PA): Farlex, Inc.; 2012. http:
//medical-dictionary .thefreedictionary .com/Medical+imaging. Accessed October 24, 2012. - 28.
- TheFreeDictionary: Site visit. Huntingdon Valley (PA): Farlex, Inc.; 2011. http:
//medical-dictionary .thefreedictionary.com/site+visit. Accessed October 21, 2011. - 29.
- Merriam-Webster, Inc. Laboratory. http://www
.merriam-webster .com/dictionary /laboratory?show=0&t=1309525629. Accessed October 21, 2011. - 30.
- TheFreeDictionary: Clinical laboratory. Huntingdon Valley (PA): Farlex, Inc.; 2011. http:
//medical-dictionary .thefreedictionary .com/clinical+laboratory. Accessed October 21, 2011. - 31.
- Public Health Accreditation Board (PHAB). PHAB acronyms and glossary of terms. 2009 Jul 15. p.30.
- 32.
- National Quality Measures Clearinghouse. Template of measure attributes. Agency for Healthcare Research and Quality; 27 Mar. 2015. Accessed February 15, 2016.
- 33.
- Lau LM, Lam SH. Applying the desiderata for controlled medical vocabularies to drug information databases. Proc AMIA Symp 1999:97–101. [PMC free article: PMC2232711] [PubMed: 10566328]
- 34.
- Health Information Technology Standards Panel (HITSP). United States Health Information Knowledgebase (USHIK). Data element details: provider characteristics. Agency for Healthcare Research and Quality (AHRQ); 2010. http://ushik
.ahrq.gov/dr .ui.drData_Page?system =hitsp&Search =xxKEYIDxx&KeyOrgID =32&KeyRID =85875000&Referer =DataElement. Accessed October 21, 2011. - 35.
- National Committee on Vital and Health Statistics. http://ncvhs
.hhs.gov. Accessed July 3, 2009. - 36.
- Centers for Disease Control and Prevention. Behavioral Risk Factor Surveillance System. https://www
.cdc.gov/brfss/. Accessed June 5, 2017. - 37.
- Data Governance Institute. Defining data governance. http://www
.datagovernance .com/defining-data-governance/. Accessed February 15, 2016. - 38.
- Society of Thoracic Surgeons. Guidelines on Use of STS National Database and Database-Derived Information. http://www
.sts.org/about-sts /policies/guidelines-use-sts-national-database-and-database-derived-information. Accessed February 15, 2016. - 39.
- Society of Thoracic Surgeons. Bylaws. http://www
.sts.org/about-sts/bylaws. Accessed February 15, 2016. - 40.
- Cella D, Yount S, Rothrock N, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap cooperative group during its first two years. Med Care. 2007 May;45(5 Suppl 1):S3–S11. http://www
.ncbi.nlm.nih .gov/pubmed/17443116. Accessed February 13, 2016. [PMC free article: PMC2829758] [PubMed: 17443116] - 41.
- openEHR Foundation. openEHR. Available at: http://www
.openehr.org/what_is_openehr. Accessed February 15, 2016. - 42.
- Garde, S, Knaup, P, Hovenga, EJS & Heard, S. Towards Semantic Interoperability for Electronic Health Records: Domain knowledge governance for openEHR archetypes. Methods of Information in Medicine 2007;46(3):332–343. http://dx.doi.org/doi:10
.1160/ME5001. [PubMed: 17492120] - 43.
- National Library of Medicine. Value Set Authority Center: VSAC Support Center. https://www
.nlm.nih.gov /vsac/support/index.html. Accessed February 15, 2016. - 44.
- National Library of Medicine. VSAC Authoring Best Practices. https://www
.nlm.nih.gov /vsac/support/authorguidelines /bestpractices.html. Accessed February 15, 2016. - 45.
- National Quality Forum. Consensus Development Process. http://www
.qualityforum .org/Measuring_Performance /Consensus_Development_Process .aspx. Accessed February 15, 2016. - 46.
- National Quality Forum. Measure Incubator Goals. https://www
.qualityforum .org/Incubator_Goals.aspx. Accessed February 13, 2016. - 47.
- National Quality Forum. National Priorities Partnership (2016). https://www
.qualityforum .org/Setting_Priorities /NPP/National _Priorities_Partnership.aspx. Accessed February 15, 2016. - 48.
- National Quality Forum. Measure Application Partnership. Available at: http://www
.qualityforum .org/Setting_Priorities /Partnership/Measure _Applications_Partnership.aspx. Accessed February 15, 2016. - 49.
- National Quality Forum. NQF Begins Annual Review of Quality Measures for Federal Programs. http://www
.qualityforum .org/2015_Measures _Under_Consideration.aspx. - 50.
- Agency for Healthcare Research and Quality. National Quality Measures Clearinghouse. http://www
.qualitymeasures .ahrq.gov/index.aspx. Accessed February 13, 2016. - 51.
- National Quality Measures Clearinghouse. NGC/NQMC Expert Panel (August 2007 to July 2013). Agency for Healthcare Research and Quality. https://www
.guideline .gov/about/expert-panel.aspx. Accessed March 15, 2016. - 52.
- National Library of Medicine. UMLS Metathesaurus License. https://uts
.nlm.nih.gov/license.html. Accessed February 15, 2016.
- References - Outcome Measures Framework: Information Model ReportReferences - Outcome Measures Framework: Information Model Report
Your browsing activity is empty.
Activity recording is turned off.
See more...