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Patient-Reported Outcomes in Performance Measurement

, PhD, , MA, , PhD, , PhD, , MD, PhD, , PhD, and , PhD.

Author Information and Affiliations
Research Triangle Park (NC): RTI Press; .
Publication No.: RTI-BK-0014-1509ISBN-13: 978-1-934831-14-4


Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

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Any views or opinions presented in this book are solely those of the authors and do not necessarily represent those of RTI International or Northwestern University Feinberg School of Medicine.

The RTI Press mission is to disseminate information about RTI research, analytic tools, and technical expertise to a national and international audience. RTI Press publications are peer-reviewed by at least two independent substantive experts and one or more Press editors.

RTI International is an independent, nonprofit research organization dedicated to improving the human condition by turning knowledge into practice. RTI offers innovative research and technical services to governments and businesses worldwide in the areas of health and pharmaceuticals, education and training, surveys and statistics, advanced technology, international development, economic and social policy, energy and the environment, and laboratory testing and chemistry services.

This publication is part of the RTI Press Book series.

© 2015 Research Triangle Institute. All rights reserved. This book is protected by copyright. Credit must be provided to the author and source of the book when the content is quoted. No part of this book may be reproduced in any form by any electronic or mechanical means (including photocopying, recording, or information storage and retrieval) without permission in writing from the publisher.

This work is distributed under the terms of a Creative Commons Attribution-NonCommerical-No Derivs license (CC BY-NC-ND), a copy of which is available at https://creativecommons.org/licenses/by-nc-nd/4.0/legalcode

Bookshelf ID: NBK424378PMID: 28211667DOI: 10.3768/rtipress.2015.bk.0014.1509


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