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Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; Board on the Health of Select Populations; Institute of Medicine. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington (DC): National Academies Press (US); 2015 Feb 10.

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Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness.

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DQuestionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms1

Symptoms/ManifestationsTools or QuestionnairesAccess Link
FatigueThe Chalder Fatigue Scalea http://www​.goodmedicine​.org.uk/files/assessment,​%20chalder%20fatigue%20scale.pdf
 Multidimensional Fatigue Inventorya http://www​.cdc.gov/cfs​/pdf/wichita-data-access/mfi-doc.pdf
 Fisk Fatigue Impact Scalea http://www​.actaneurologica​.be/acta/download​/2003-4/01Kos%20et%20al.pdf
 The Krupp Fatigue Severity Scalea http://www​.abiebr.com​/set/17-assessment-outcomes-followingacquiredtraumatic-brain-injury​/177-fatigue-severity-scale-fss
 Checklist of Individual Strengthb http://www​.ncbi.nlm.nih​.gov/pmc/articles​/PMC1739950/pdf/v057p00353.pdf
 DePaul Symptom Questionnaireb,c http://condor​.depaul.edu/ljason/cfs
 CDC Symptom Inventory for CFSb,c http://www​.institutferran​.org/documentos​/cdc_full_symptom_inventory.pdf
 NOVA formd http://www​.nova.edu/nim​/patients/forms/fatigue-scale.pdf
Substantial decrease or impairment in function: adultsWork and Social Adjustment Scale (WSAS)a serene​.me.uk/tests/wsas.pdf
 Energy Index Point Scorea http://www​.treatmentcenterforcfs​.com/energy_index_score
 SF-36b (RAND-36 is available as a free version of SF-36) http://www​.sf-36.org​/tools/pdf/SF-6v1_Standard_Sample.pdf
 The Lawton Instrumental Activities of Daily Living (IADL) Scaled http:​//consultgerirn​.org/uploads/File/trythis/try_this_23​.pdf
 Katz Index of Independence in Activities of Daily Livingd http://clas​.uiowa.edu​/socialwork/files/socialwork​/NursingHomeResource​/documents/Katz​%20ADL_LawtonIADL.pdf
 FIQR (Fibromyalgia Impact Questionnaire Revised)d http://fiqrinfo​.ipage​.com/FIQR%20FORM.pdf
Substantial decrease or impairment in function: childrenShort form of the Child Health Questionnaireb http://jech​.bmj.com/content/59/1/75​.full.pdf+html
 Pediatrics Quality of Life Inventory (PedsQL)d http://www​.pedsql.org
 Functional Disability Inventory (FDI)d http://www​.commondataelements​.ninds.nih.gov​/Doc/NOC/Functional​_Disability_Inventory​_Parent_Form_NOC_Request.pdf
Post-exertional malaise>CDC Symptom Inventory for CFSb,c http://www​.institutferran​.org/documentos​/cdc_full_symptom_inventory.pdf
 DePaul symptom questionnaireb,c http://condor​.depaul.edu/jason/cfs
Sleep problemsSleep Assessment Questionnaired http://www​.completehealthsleep​.com/DesktopModules​/DocumentViewer​/Documents%5CDocumentId5_​%5CSleep%20Assessment​%20Questionnaire.pdf
 Pittsburgh Sleep Quality Index (PSQI)d http:​//consultgerirn​.org/uploads/File/trythis/try_this_6_1​.pdf
 PROMIS Sleep questionnaired http://www​.ncbi.nlm.nih​.gov/pmc/articles​/PMC3261577/pdf/nihms335121.pdf
Cognitive symptomsWood Mental Fatigue Inventorya http://www​.pubfacts.com​/detail/7902751/A-brief-mental-fatigue-questionnaire
 Checklist Individual Strength Questionnaireb http://www​.ncbi.nlm.nih​.gov/pmc/articles​/PMC1739950/pdf/v057p00353.pdf
 The Cognitive Failures Questionnaireb http://www​.yorku.ca/rokada​/psyctest/cogfail.pdf
Orthostatic intoleranceOrthostatic Grading Scaled http://www​.thestudentroom​.co.uk/attachment​.php?attachmentid=139109&d​=1333233284
 COMPASS 31d http://www​.nymc.edu/fhp​/centers/syncope/COMPASS%2031.pdf
PainPROMISb http://www​.assessmentcenter.net
 SF-36b http://www​.sf-36.org​/tools/pdf/SF-6v1_Standard_Sample.pdf
 McGill Pain Questionnaired http://www​.ama-cmeonline​.com/pain_mgmt/pdf/mcgill.pdf
 Brief Pain Inventoryd http://www​.npcrc.org​/files/news/briefpain_short.pdf
 Pain diagramd http://alaska​.providence​.org/locations/pvmc​/Documents/Pain%20Diagram.pdf
a

Questionnaires used or tested in ME/CFS patients that may be useful tools in a clinical setting.

b

Questionnaires used or tested in ME/CFS patients that may be difficult to apply in a clinical setting.

c

Questionnaires that evaluate the full range of ME/CFS symptomatology (fatigue, decrease in function, post-exertional malaise [PEM], sleep problems, cognitive symptoms, pain).

d

Questionnaires not formally tested in ME/CFS patients that may be useful tools in a clinical setting.

Footnotes

1

Further evidence of utility is needed.

Copyright 2015 by the National Academy of Sciences. All rights reserved.
Bookshelf ID: NBK284903

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