Contents

• THE NATIONAL ACADEMIES
• COMMITTEE ON THE RYAN WHITE CARE ACT: DATA FOR RESOURCE ALLOCATION, PLANNING, AND EVALUATION
• Reviewers
• Acknowledgments
• Executive Summary
• 1. Introduction
  • IMPETUS FOR THIS STUDY
  • STUDY CHARGE
  • STUDY METHODS
  • GUIDING PRINCIPLES
  • ORGANIZATION OF THE REPORT
  • REFERENCES
• 2. Overview of the HIV/AIDS Epidemic and the Ryan White CARE Act
  • OVERVIEW OF THE HIV/AIDS EPIDEMIC
  • PAYING FOR HIV/AIDS CARE
  • HISTORY OF THE CARE ACT
  • CURRENT STRUCTURE OF THE ACT
  • OVERVIEW OF CARE ACT ALLOCATION FORMULAS
  • REFERENCES
• 3. Public Health and HIV/AIDS Surveillance
  • PUBLIC HEALTH SURVEILLANCE
  • AIDS AND HIV CASE REPORTING
  • OTHER METHODS FOR ESTIMATING HIV PREVALENCE
  • REFERENCES
• 4. HIV Reporting Data and Title I and II Formulas
  • CAPABILITY OF STATE HIV REPORTING SYSTEMS TO PROVIDE DATA FOR THE FORMULAS
  • COMPARABILITY OF DATA QUALITY ACROSS JURISDICTIONS
  • RELATIVE DISEASE BURDEN AND RANKING OF NEED ACROSS JURISDICTIONS
  • SENSITIVITY OF THE FORMULA ALLOCATIONS TO CHANGES IN THE UNDERLYING INPUT DATA
  • METHODS FOR IMPROVING DATA FOR THE FORMULAS
  • RECOMMENDATIONS
  • REFERENCES
• 5. Estimating Resource Needs
  • FACTORS AFFECTING RESOURCE NEEDS
  • TITLE I SUPPLEMENTAL AWARD PROCESS
  • CRITERIA FOR ASSESSING MEASURES OF RESOURCE NEEDS
  • ANALYSIS OF TITLE I SUPPLEMENTAL APPLICATIONS
  • FINDINGS
  • AVAILABLE DATA SOURCES
  • PROPOSED APPROACH
  • RECOMMENDATIONS
  • REFERENCES
• 6. Measuring Quality of Care
  • CURRENT HRSA/HAB QUALITY-OF-CARE ACTIVITIES
  • FOUR-DIMENSIONAL CONCEPTUAL FRAMEWORK FOR HIV QUALITY ASSESSMENT
  • PRINCIPLES FOR SELECTING QUALITY-OF-CARE MEASURES
  • EXISTING QUALITY-OF-CARE MEASURES FOR HIV/AIDS
  • FINDINGS
  • RECOMMENDATIONS
  • REFERENCES
• 7. Findings and Recommendations
• Appendixes
  • A Acronyms
  • B Financial Resources of States for HIV/AIDS Reporting
  • C Analyses of the Sensitivity of the Formula Allocations to Underlying Changes in Input Data
  • D Methodological Details of HCSUS Analyses
  • E Tables of HIV/AIDS Quality Measures from Selected Sources
  • F Biographies

This study was supported by Contract No. 200-2000-00629 Task Order #9 between the National Academy of Sciences and the Health Resources and Services Administration (HRSA) and the Centers for Disease Control and Prevention (CDC). Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project.

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.