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Institute of Medicine (US) Committee on Cancer Research Among Minorities and the Medically Underserved; Haynes MA, Smedley BD, editors. The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved. Washington (DC): National Academies Press (US); 1999.

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The Unequal Burden of Cancer: An Assessment of NIH Research and Programs for Ethnic Minorities and the Medically Underserved.

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Committee and Staff Biographies

M. Alfred Haynes, M.D., is an epidemiologist and community physician having recently retired as President and Dean of the Drew Postgraduate Medical School and Founding Director of the Drew-Meharry-Morehouse Consortium Cancer Center. In addition to his academic positions at Drew University and the Johns Hopkins University, Dr. Haynes has served as a medical officer in the U.S. Public Health Service on the Cheyenne River Indian Reservations. He has served on a number of national governmental committees for various agencies, including the National Center for Health Statistics; the Agency for International Development; the President's Committee on Health Education; the Epidemiology, Biostatistics and Bioengineering Cluster of the President's Panel of Biomedical Research; and others. Dr. Haynes also chaired the Board of Scientific Counselors of the Division of Cancer Prevention and Control of the National Cancer Institute and was a member of the Advisory Board of the Fogarty International Center. Dr. Haynes is a member of the Institute of Medicine, the Alpha Omega Alpha Honors Medical Society, and Past-President of the American College of Preventive Medicine.

Regina M. Benjamin, M.D., M.B.A., is a medical practitioner in rural Bayou La Batre, Alabama. She is also a clinical professor and serves as a preceptor for rural medical/family medicine clerkships at the University of Alabama-Birmingham and the University of South Alabama Medical Schools. Dr. Benjamin became the first Young Physician (under age 40) elected to the American Medical Association (AMA) Board of Trustees, as well as its first African-American woman. She also serves as President of the AMA Education and Research Foundation. Dr. Benjamin attended Morehouse School of Medicine and received her M.D. from the University of Alabama Birmingham and her M.B.A. degree from Tulane University. She is a Diplomat of the American Board of Family Practice, and a Fellow of the American Academy of Family Physicians, and is a member of the Institute of Medicine. She was appointed to the Clinical Laboratory Improvement Act Committee (CLIAC), and is a member of the Council on Graduate Medical Education (COGME).

Charles L. Bernett, M.D., Ph.D., is Associate Professor of Medicine at the Lakeside Veterans Administration Hospital, Senior Faculty Fellow at the Institute of Health Science Research and Policy Studies, and Chairman of the Health Policy Program for the Robert H. Lurie Cancer Center of Northwestern University (one of the 31 NCI designated comprehensive cancer centers in the United States). His research includes health outcomes, medical decision making, and health economy and financing. More recently, his research has focused on sociocultural barriers to health care, with studies evaluating the prevalence of low literacy among cancer patients who are lower socioeconomic status. Dr. Bennett is a member of the Health Service Committee of the American Society of Clinical Oncology, the Optimization for Health Care of the American Society of Hematology, and the Outcomes Committee of the National Comprehensive Cancer Center Network. He has a particular interest in strategies to improve the enrollment and conduct of clinical trials for cancer patients.

Baruch S. Blumberg, M.D., Ph.D., is currently Distinguished Scientist at Fox Chase Cancer Center in Philadelphia, and University Professor of Medicine and Anthropology at the University of Pennsylvania. He was Master of Balliol College, Oxford University, from 1989 to 1994 and, prior to that, Associate Director for Clinical Research at Fox Chase from 1964. He was on the staff of the National Institutes of Health, Maryland, from 1957 to 1964. He earned an M.D. degreem from the College of Physicians and Surgeons, Columbia University, and a Ph.D. in biochemistry from Oxford University. His research has covered many areas including clinical research, epidemiology, virology, genetics, and anthropology. He was awarded the Nobel Prize in 1976 for "discoveries concerning new mechanisms for the origin and dissemination of infectious diseases" and specifically for the discovery of the hepatitis B virus. In 1993, he was elected to the National Inventors Hall of Fame for the invention of the hepatitis B vaccine and the diagnostic test for hepatitis B. He has taught medical anthropology at the University of Pennsylvania and elsewhere, and has been a Visiting Professor in India (Bangalore); Singapore; University of Kentucky (Lexington); Indiana University (Bloomington); the University of Otago, Dunedin, New Zealand; and Stanford University in California. He is a member of the Institute of Medicine (IOM) and the National Academy of Sciences (NAS). He is currently a member on the Committee on Human Rights of the NAS, IOM, and National Academy of Engineering (NAE).

Moon S. Chen, Ph.D. M.P.H., is Professor and Chair, Division of Health Behavior and Health Promotion, School of Public Health at the Ohio State University's College of Medicine and Public Health. Dr. Chen's research interests are in cardiovascular and cancer health education and promotion, especially among Asian-American and other ethnic minority communities. He is a charter member of the editorial board for the Journal of Cancer Education, and founding editor-in-chief of the Asian-American and Pacific Islander Journal of Health. Dr. Chen has served as a consultant to the Ministry of Public Health of the People's Republic of China; the U.S. Centers for Disease Control; and National Institutes of Health; and State public health departments in Ohio, Michigan, Virginia, and Hawaii; and was a member of the USA delegation to the United Kingdom conference on Black and Ethnic Minority Health in London in 1997.

Gilbert Friedell, M.D., is Director for Cancer Control at the University of Kentucky Markey Cancer Center. In his present position, he conveys breast cancer information to the public and to health professionals through the Kentucky Cancer Program Outreach Division, the nationally praised Kentucky Cancer Registry, and the Region 9 Cancer Information Service for Kentucky, Tennessee, and Arkansas—all organizations he helped to create. Throughout his career, Dr. Friedell has put particular emphasis on reaching the medically underserved with outreach programs in which trained, low-income, community-based women encourage their peers to receive mammograms and other cancer screenings. For several years, he served on the National Cancer Institute's Breast Cancer Task Force, and from 1971 to 1983 he was the Director of the NCI National Bladder Cancer Project. He is currently a member of the U.S. Department of Health and Human Services' National Action Plan on Breast Cancer, the Kentucky Breast Cancer Advisory Committee, and chair of the Steering Committee of NCI's Appalachia Leadership Initiative on Cancer. Dr. Friedell graduated from the University of Minnesota Medical School and received his training in pathology in Boston. Among his many honors, Dr. Friedell recently received an Avon Breast Cancer Leadership Award for outstanding contributions to breast cancer education, outreach, patient advocacy, support services, and research, especially in medically underserved communities.

Anna R. Giuliano, Ph.D., is Assistant Professor, Department of Family and Community Medicine, Epidemiology Section; and Director, Minority Cancer Prevention and Control Program, Arizona Cancer Center, University of Arizona. She currently serves as Principal Investigator for several projects at the University of Arizona: Native Women's Healing Circle, Juntos Contra El Cancer (Community-Based Cancer Education Program), and Young Women's Health Study (Efforts of Smoking on Persistent HPV Infection). Dr. Giuliano is involved internationally as a consultant on nutritional issues in Haiti, Kenya, and Tajikistan. She has authored numerous articles for several national, as well as international, peer-reviewed journals. Dr. Giuliano received her Ph.D. in Nutritional Biochemistry from Tufts University.

James Wilburn Hampton, M.D., is Medical Director, Troy and Dollie Smith Cancer Center at Integris Baptist Medical Center in Oklahoma City and Clinical Professor of Medicine at the University of Oklahoma. He is a Chickasaw. Dr. Hampton's research interests have spanned physiology and pathophysiology of cancer; thrombosis, hemostasis; leukemia; multiple myeloma and lymphoma especially Waldenstroms macroglobulinemia. He has pioneered observations on epidemiology of cancer in all American Indians/Alaska Natives in the Twentieth Century. He chairs a Network for Cancer Control Research in this special population for the National Cancer Institute. He serves on the AMA Consortium on Minority Affairs Governing Committee, the American Cancer Society Task Force for Cancer in the Socioeconomic Disadvantaged, the Steering Committee of the Intercultural Cancer Council, and the Advisory Committee for the Armed Forces control of prostate cancer. Dr. Hampton's specialty is hematology/medical oncology and he is a member of the fifteen state American Oncology Resources, a private practice organization which conducts clinical investigation in cancer.

Victor A. McKusick, M.D., Sc.D., D. Med. Sci. (h.c.), F.A.C.P., F.R.C.P., is currently Professor of Medical Genetics at The Johns Hopkins University. Previously, he served as Director, Division of Medical Genetics, Dept. of Medicine, Johns Hopkins University School of Medicine, 1957–1973; William Osler Professor and Director, Dept. of Medicine, The Johns Hopkins University School of Medicine; and Physician-in-Chief, Johns Hopkins Hospital, 1973–1985. Among his other professional activities, he has served as editor-in-chief of the journal Medicine (1985 to present); founding editor (with F. H. Ruddle) of Genomics (international journal of gene mapping and nucleotide sequencing emphasizing analyses of the human and other complex genomes); and founder and president, the Human Genome Organizations (HUGO). He is a master of the American College of Physicians and a founding member of the American Board of Medical Genetics. His current research interests are in the cataloging of human genes and genetic disorders, including collation of information on the human gene map and on the nature of the basic defect in disorders, on the one hand, with information on the clinical natural history and genetic characteristics of the disorder on the other. He is a member of Phi Beta Kappa, Alpha Omega Alpha, Association of American Physicians (Kober medal, 1990), American Genetic Association (Honorary Life Member), American Society of Human Genetics (Pres., 1974; William A. Allan Award, 1977, excellence in education award, 1997), the National Academy of Sciences, 1973 (James Murray Luck Award, 1982) and American Philosophical Society (Benjamin Franklin medal, 1996). He has held numerous consultant appointments, and has received 18 honorary degrees and many awards including the Lasker Award for special achievement in medical research.

Sarah Moody-Thomas, Ph.D., is Associate Director of the Louisiana State University Medical Center (LSUMC), Stanley S. Scott Cancer Center. She is Professor in the Department of Psychiatry and Psychology at LSUMC and the University of New Orleans, respectively. Dr. Thomas came to LSUMC from the University of New Orleans, where she served as Professor and Chair of the Department of Psychology. She earned her B.S. from Southern University and her Ph.D. in Clinical Psychology, with a co-major in public administration, from the University of Georgia. Dr. Thomas's expertise includes school-based interventions (particularly smoking prevention for African-American adolescents), community outreach, health education, and clinical research recruitment. She is chairperson of the Louisiana Coalition of the National Black Leadership Initiative on Cancer, a member of the Board of Directors of the New Orleans Chapter of the Susan G. Komen Breast Cancer Foundation, and the Greater New Orleans Unit of the American Cancer Society. She has initiated and actively participated in local, regional, and national efforts to broaden the cadre of participants in all aspects of cancer clinical research.

Lawrence Miike, M.D., J.D., is Director of the Department of Health for the State of Hawaii. He serves as the chief health and environmental official for the state. Under Dr. Miike's direction are 13 community hospitals; emergency medical services systems; adult, adolescent and children's mental health programs; alcohol and substance abuse programs, environmental monitoring, regulation and hazard response; comprehensive public health services; and health promotion and disease prevention programs. Dr. Miike holds a degree in medicine from the University of California, San Francisco, and a law degree from the University of California, Los Angeles. His professional life has been spent shaping health policy, at both the national and state level. He worked for various agencies in Washington, D.C., to help shape policies on health care reform, medical malpractice, medical ethics, and cancer-testing techniques. Dr. Miike served on the staff of the National Center for Health Services Research, the Office of Technology Assessment, among other federal agencies.

Larry Norton, M.D., is Associate Professor of Oncology at Mount Sinai School of Medicine. He is also Head, Breast Disease Management Team at Memorial Sloan-Kettering Cancer Center and Chief, Breast Oncology Service at Memorial Hospital for Cancer and Allied Disease. Dr. Norton's expertise is in cell kinetics and bioelectrochemistry. His interests include treatment of human cancer, including theory of tumor growth kinetics, electrochemistry of tumors, and enhancing chemotherapy with induced currents. Dr. Norton is a member of the American Society of Clinical Oncology, American Association for Cancer Research, Cell Kinetics Society, and the New York Cancer Society. He received his AB degree from the University of Rochester and his M.D. degree from the College of Physicians and Surgeons, Columbia University.

Madison Powers, D. Phil., is Senior Research Scholar at the Kennedy Institute of Ethics and Associate Professor of Philosophy at Georgetown University. His academic interests are political, legal, and moral philosophy; distributive justice and resource allocation; concepts of privacy in law and morality; law, ethics, and health policy; and genetics and reproductive ethics. Dr. Powers has written extensively on ethical issues in genetic testing, human subjects research, and patient confidentiality. He received his B.A. and M.A. from Vanderbilt University, and D. Phil. from the University College, Oxford. Dr. Powers is a co-recipient of a Health Policy Investigator Award from the Robert Wood Johnson Foundation and a Publication Grant from the National Library of Medicine, and has served as a consultant to several advisory committees and boards of the National Institutes of Health (NIH).

Susan C. Scrimshaw, Ph.D., is Dean, School of Public Health, and Professor of Community Health Sciences and Anthropology, University of Illinois-Chicago. Previously, she served as Professor of Public Health and Anthropology at University of California, Los Angeles and Associate Dean for Academic Programs for the School of Public Health of UCLA. Dr. Scrimshaw is an anthropologist who is especially tuned to Hispanic and African American public health issues. Dr. Scrimshaw's research interests are cross-cultural work on health access; health behavior; improving pregnancy outcomes; rapid anthropological assessment; combining qualitative and quantitative methods; Latino culture in the U.S. and Latin America; women's health; and managing cultural diversity. Dr. Scrimshaw is a member of the Institute of Medicine (IOM).

Fernando Trevino, Ph.D., is Professor and Chair of the Department of Public Health and Preventive Medicine and Executive Director of the Graduate Program in Public Health at the University of North Texas Health Science Center at Fort Worth. Prior to accepting these positions, Dr. Trevino served as Executive Director of the American Public Health Association in Washington, D.C. He also served as the Executive Editor of the American Journal of Public Health. Dr. Trevino was Dean of the School of Health Professions and Professor of Health Administration at Southwest Texas State University. Dr. Trevino has served on numerous national committees and panels including the U.S. Preventive Services Task Force, the National Committee on Vital and Health Statistics and the Institute of Medicine's Access to Health Care Monitoring Panel. He holds a Ph.D. degree in Preventive Medicine and Community Health from the University of Texas Medical Branch at Galveston, an M.P.H. degree from the University of Texas School of Public Health and a B.S. degree in Psychology from the University of Houston. Dr. Trevino has published and lectured extensively on national statistical data policy and Mexican American and minority health issues.

Institute of Medicine Staff

Brian D. Smedley, Ph.D., is a Senior Program Officer in the Health Sciences Policy Division and is Study Director for the Cancer Research Among Minorities and the Medically Underserved study. Dr. Smedley came to the IOM from the American Psychological Association, where he worked on a wide range of social, health, and education policy topics in his capacity as Director for Public Interest Policy. Prior to working at the APA, Dr. Smedley served as a Congressional Science Fellow, sponsored by the American Association for the Advancement of Science, and as a postdoctoral research fellow in the Education Policy Division of the Educational Testing Service in Princeton, N.J. Smedley received an A.B. degree in Psychology and Social Relations from Harvard University, and M.A. and Ph.D. degrees in clinical psychology from the University of California, Los Angeles. Smedley's previous research includes studies of the academic and psychosocial adjustment of African-American students at predominantly White and Historically Black Colleges and Universities (HBCUs).

Yvette J. Benjamin, B.A., B.S., PA-C, M.P.H., is a Research Associate at the National Academy of Sciences, Institute of Medicine in the Division of Health Sciences Policy. She is a Physician Assistant, who completed her training at George Washington University, Washington, D.C., in 1986. Ms. Benjamin holds a B.A. in psychology from The University of the Incarnate Word in San Antonio, Texas, and a B.S. in biology, from George Washington University. In 1995 Ms. Benjamin received her MPH from the George Washington University, School of Public Health, with a concentration in health policy. Ms. Benjamin has had extensive experience both as a clinician and as a researcher. At the IOM since 1993, Ms. Benjamin has provided support for several studies including Xenograft Transplantation: Ethics and Public Policy, Military Nursing Research, the Future of Academic Health Centers, and Environmental Justice: Research, Education and Health Policy Needs.

Thelma L. Cox is Senior Project Assistant in the Division of Health Sciences Policy. During her eight years at the Institute of Medicine, she has also provided assistance to the Division of Health Care Services and the Division of Biobehavioral Sciences and Mental Disorders. Ms. Cox has worked on several IOM projects, including: Designing a Strategy for Quality Review and Assurance in Medicare; Evaluating the Artificial Heart Program of the National Heart, Lung, and Blood Institute; Advising the National Library of Medicine on Information Center Services in Technology Assessment and Health Services Research; Study of FDA Advisory Committees, Federal Regulation of Methadone Treatment; Legal and Ethical Issues Relating to the Inclusion of Women in Clinical Studies; Depressive Symptoms in Primary Care Patients: Implications for Prevention; Social and Behavioral Science Base for HIV/AIDS Prevention and Intervention; and Review of the Fialuridine (FIAU/FIAC) Clinical Trials. Ms. Cox has received the National Research Council Recognition Award and the IOM Staff Achievement Award.

Copyright © 1999, National Academy of Sciences.
Bookshelf ID: NBK1783


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