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Centre for Clinical Practice at NICE (UK). Coeliac Disease: Recognition and Assessment of Coeliac Disease [Internet]. London: National Institute for Health and Clinical Excellence (UK); 2009 May. (NICE Clinical Guidelines, No. 86.)

  • This publication is provided for historical reference only and the information may be out of date.

This publication is provided for historical reference only and the information may be out of date.

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Coeliac Disease: Recognition and Assessment of Coeliac Disease [Internet].

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Patient-centred care

This guideline offers best practice advice on the recognition and assessment of coeliac disease and the care of children and adults who are undergoing the diagnostic process for coeliac disease.

This diagnostic process should take into account patients’ needs and preferences. People with symptoms and/or signs suggestive of coeliac disease should have the opportunity to make informed decisions, in partnership with their healthcare professionals. If patients do not have the capacity to make decisions, healthcare professionals should follow the Department of Health (2001) guidelines – ‘Reference guide to consent for examination or treatment’ (available from Healthcare professionals should also follow a code of practice accompanying the Mental Capacity Act (summary available from

If the patient is under 16, healthcare professionals should follow guidelines in ‘Seeking consent: working with children’ (available from

Good communication between healthcare professionals and patients is essential. It should be supported by evidence-based written information tailored to the patient’s needs. Diagnosis, treatment and care, and the information patients are given about it, should be culturally appropriate. It should also be accessible to people with additional needs such as physical, sensory or learning disabilities, and to people who do not speak or read English.

If the patient agrees, families and carers should have the opportunity to be involved in decisions about diagnosis, treatment and care.

Families and carers should also be given the information and support they need.

Care of young people in transition between paediatric and adult services should be planned and managed according to the best practice guidance described in ‘Transition: getting it right for young people’ (available from

Adult and paediatric healthcare teams should work jointly to provide assessment and services to young people with coeliac disease. Diagnosis and management should be reviewed throughout the transition process, and there should be clarity about who is the lead clinician to ensure continuity of care.

Copyright © 2009, National Institute for Health and Clinical Excellence.

All rights reserved. This material may be freely reproduced for educational and not-for-profit purposes. No reproduction by or for commercial organisations, or for commercial purposes, is allowed without the express written permission of NICE.

Bookshelf ID: NBK11695


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