NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.

Butler M, Kane RL, Larson S, et al. Closing the Quality Gap: Revisiting the State of the Science (Vol. 7: Quality Improvement Measurement of Outcomes for People With Disabilities). Rockville (MD): Agency for Healthcare Research and Quality (US); 2012 Oct. (Evidence Reports/Technology Assessments, No. 208.7.)

  • This publication is provided for historical reference only and the information may be out of date.

This publication is provided for historical reference only and the information may be out of date.

Cover of Closing the Quality Gap: Revisiting the State of the Science (Vol. 7: Quality Improvement Measurement of Outcomes for People With Disabilities)

Closing the Quality Gap: Revisiting the State of the Science (Vol. 7: Quality Improvement Measurement of Outcomes for People With Disabilities).

Show details

Appendix BCare Coordination Evidence Tables

Appendix Table B1. Care coordination studies (MS Word, 38K)

Appendix Table B2. Outcomes used in care coordination studies (MS Word, 52K)


Boult C, Reider L, Frey K, et al. Early effects of “Guided Care” on the quality of health care for multimorbid older persons: a cluster-randomized controlled trial. The journals of gerontology. Series A, Biological sciences and medical sciences. 2008 Mar;63(3):321–7. [PubMed: 18375882]
Claiborne N. Effectiveness of a Care Coordination Model for Stroke Survivors: A Randomized Study. Health & Social Work. 2006;31(2):87–96. [PubMed: 16776026]
Claiborne N. Efficiency of a Care Coordination Model: A Randomized Study with Stroke Patients. Research on Social Work Practice. 2006;16(1):57–66.
Cooley W, McAllister JW, Sherrieb K, et al. Improved outcomes associated with medical home implementation in pediatric primary care. Pediatrics. 2009 Jul;124(1):358–64. [PubMed: 19564320]
Criscione T, et al. An Evaluation of Care Coordination in Controlling Inpatient Hospital Utilization of People with Developmental Disabilities. Mental Retardation. 1995 Dec;33(6):364–73. [PubMed: 8569486]
Dicianno BE, Fairman AD, Juengst SB, et al. Using the spina bifida life course model in clinical practice: an interdisciplinary approach. Pediatric Clinics of North America. 2010 Aug;57(4):945–57. [PubMed: 20883884]
Eklund K, Wilhelmson K. Outcomes of coordinated and integrated interventions targeting frail elderly people: a systematic review of randomised controlled trials. Health & Social Care in the Community. 2009 Sep;17(5):447–58. [PubMed: 19245421]
Esposito D, Taylor EF, Andrews K, et al. Evaluation of the Medicaid Value Program: Health Supports for Consumers with Chronic Conditions: District of Columbia, Medical Assistance Administration Case Study. Mathematica Policy Research, Inc; 2007.
Fitzgibbon TM, Popalisky J, Myers K, et al. Care management for children with special needs: part I: the role of health plans. The Journal of ambulatory care management. 2009 Jul–Sep;32(3):197–204. [PubMed: 19542809]
Fitzgibbon TM, Popalisky J, Myers K, et al. Care management for children with special needs: Part II: the role of primary care. Journal of Ambulatory Care Management. 2009 Jul–Sep;32(3):205–15. [PubMed: 19542810]
Friedman B, Wamsley BR, Liebel DV, et al. Patient Satisfaction, Empowerment, and Health and Disability Status Effects of a Disease Management-Health Promotion Nurse Intervention among Medicare Beneficiaries with Disabilities. Gerontologist. 2009 Dec;49(6):778–92. [PubMed: 19587109]
Hebert R, Raiche M, Dubois M-F, et al. Impact of PRISMA, a coordination-type integrated service delivery system for frail older people in Quebec (Canada): A quasi-experimental study. Journals of Gerontology Series B-Psychological Sciences & Social Sciences. 2010 Jan;65B(1):107–18. [PubMed: 19414866]
Hughes SL, Weaver FM, Giobbie-Hurder A, et al. Effectiveness of team-managed home-based primary care: a randomized multicenter trial. JAMA. 2000 Dec 13;284(22):2877–85. [PubMed: 11147984]
Judge KS, Bass DM, Snow AL, et al. Partners in Dementia Care: A Care Coordination Intervention for Individuals with Dementia and Their Family Caregivers. Gerontologist. 2011 Apr;51(2):261–72. [PubMed: 21242317]
Marek KD, Popejoy L, Petroski G, et al. Nurse care coordination in community-based long-term care. Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing/Sigma Theta Tau. 2006;38(1):80–6. [PubMed: 16579328]
Mastal M, Susan P. Measuring the Effectiveness of Managed Care for Adults with Disabilities. CHCS Resource Paper. 2005
McCusker J, Verdon J. Do geriatric interventions reduce emergency department visits? A systematic review. Journals of Gerontology Series A-Biological Sciences & Medical Sciences. 2006 Jan;61(1):53–62. [PubMed: 16456194]
Melis RJF, van Eijken MIJ, Boon ME, et al. Process evaluation of a trial evaluating a multidisciplinary nurse-led home visiting programme for vulnerable older people. Disability & Rehabilitation. 2010;32(11):937–46. [PubMed: 19860600]
Nishikawa BR, Daaleman TP, Nageswaran S. Association of provider scope of practice with successful transition for youth with special health care needs. Journal of Adolescent Health. 2011 Feb;48(2):209–11. [PubMed: 21257122]
Oeseburg B, Wynia K, Middel B, et al. Effects of case management for frail older people or those with chronic illness: a systematic review. Nursing Research. 2009 May–Jun;58(3):201–10. [PubMed: 19448524]
Ornstein K, Smith KL, Foer DH, et al. To the hospital and back home again: a nurse practitioner-based transitional care program for hospitalized homebound people. Journal of the American Geriatrics Society. 2011 Mar;59(3):544–51. [PubMed: 21391944]
Palsbo SE, Ho PS. Consumer evaluation of a disability care coordination organization. Journal of health care for the poor and underserved. 2007 Nov;18(4):887–901. [PubMed: 17982213]
Palsbo SE, Diao G. The business case for adult disability care coordination. Archives of Physical Medicine & Rehabilitation. 2010 Feb;91(2):178–83. [PubMed: 20159118]
Raphael JL, Zhang Y, Liu H, et al. Association of medical home care and disparities in emergency care utilization among children with special health care needs. Academic pediatrics. 2009 Jul–Aug;9(4):242–8. [PubMed: 19608125]
Schuster CR, Mitchell JM, Gaskin DJ. Partially capitated managed care versus FFS for special needs children. Health care financing review. 2007 Summer;28(4):109–23. [PMC free article: PMC4195005] [PubMed: 17722755]
Singh GK, Strickland BB, Ghandour RM, et al. Geographic disparities in access to the medical home among US CSHCN. Pediatrics. 2009 Dec;124(6, Suppl 4):S352–60. [PubMed: 19948599]
Stewart D. Transition to adult services for young people with disabilities: current evidence to guide future research. Developmental Medicine & Child Neurology. 2009 Oct;51 Suppl 4:169–73. [PubMed: 19740226]
Strickland BB, Singh GK, Kogan MD, et al. Access to the medical home: new findings from the 2005–2006 National Survey of Children with Special Health Care Needs. Pediatrics. 2009 Jun;123(6):e996–1004. [PubMed: 19482751]
Tourigny A, Durand PJ, Bonin L, et al. Quasi-Experimental Study of the Effectiveness of an Integrated Service Delivery Network for the Frail Elderly. Canadian Journal on Aging. 2004 Fall;23(3):231–46. [PubMed: 15660297]
Turchi RM, Berhane Z, Bethell C, et al. Care coordination for CSHCN: associations with family-provider relations and family/child outcomes. Pediatrics. 2009 Dec;124 Suppl 4:S428–34. [PubMed: 19948609]
Van Achterberg T, Stevens FC, Crebolder HF, et al. Coordination of care: Effects on the continuity and quality of care. International Journal of Nursing Studies. 1996 Dec;33(6):638–50. [PubMed: 8970861]
Wise PH, Huffman LC, Brat G. Quality AfHRa. Rockville (MD): Agency for Healthcare Research and Quality; 2007. A Critical Analysis of Care Coordination Strategies for Children With Special Health Care Needs. http://www​.ncbi.nlm.nih​.gov/pubmed/20734510. [PubMed: 20734510]
Wolff JL, Giovannetti ER, Boyd CM, et al. Effects of Guided Care on Family Caregivers. Gerontologist. 2010 Aug;50(4):459–70. [PMC free article: PMC2908533] [PubMed: 19710354]
Wood D, Winterbauer N, Sloyer P, et al. A longitudinal study of a pediatric practice-based versus an agency-based model of care coordination for children and youth with special health care needs. Maternal & Child Health Journal. 2009 Sep;13(5):667–76. [PubMed: 18766431]
Wood DL, McCaskill QE, Winterbauer N, et al. A multi-method assessment of satisfaction with services in the Medical Home by parents of children and youth with special health care needs (CYSHCN) Maternal and Child Health Journal. 2009 Jan;13(1):5–17. [PubMed: 18274884]
Danzer E, Gerdes M, D’Agostino JA, et al. Prospective, interdisciplinary follow-up of children with prenatally diagnosed giant omphalocele: short-term neurodevelopmental outcome. Journal of Pediatric Surgery. 2010 Apr;45(4):718–23. [PubMed: 20385277]
Temkin-Greener H, Bajorska A, Mukamel DB. Variations in service use in the program of all-inclusive care for the elderly (PACE): Is more better? The Journals of Gerontology: Series A: Biological Sciences and Medical Sciences. 2008 Jul;63A(7):731–8. [PubMed: 18693228]
Boisclair-Fahey A. Can individualized health care plans help increase continence in children with dysfunctional elimination syndrome? Journal of School Nursing. 2009 Oct;25(5):333–41. [PubMed: 19342536]
Dise-Lewis JE, Lewis HC, Reichardt CS. BrainSTARS: pilot data on a team-based intervention program for students who have acquired brain injury. Journal of Head Trauma Rehabilitation. 2009 May–Jun;24(3):166–77. [PubMed: 19461364]
Douglas SL, Daly BJ, Kelley CG, et al. Chronically critically ill patients: Health-related quality of life and resource use after a disease management intervention. American Journal of Critical Care. 2007 Sep;16(5):447–57. [PMC free article: PMC2040111] [PubMed: 17724242]
Nolan KW, Orlando M, Liptak GS. Care coordination services for children with special health care needs: Are we family-centered yet? Families, Systems, & Health. 2007 Sep;25(3):293–306.
Wade SL, Oberjohn K, Burkhardt A, et al. Feasibility and preliminary efficacy of a web-based parenting skills program for young children with traumatic brain injury. Journal of Head Trauma Rehabilitation. 2009 Jul–Aug;24(4):239–47. [PubMed: 19625863]
Xenakis N, Goldberg J. The Young Women’s Program: A health and wellness model to empower adolescents with physical disabilities. Disability & Health Journal. 2010 Apr;3(2):125–9. [PubMed: 21122778]
Ziviani J, Darlington Y, Feeney R, et al. From policy to practice: A program logic approach to describing the implementation of early intervention services for children with physical disability. Evaluation & Program Planning. 2011 Feb;34(1):60–8. [PubMed: 20546894]
Ziviani J, Feeney R, Rodger S, et al. Systematic review of early intervention programmes for children from birth to nine years who have a physical disability. Australian Occupational Therapy Journal. 2010 Aug;57(4):210–23. [PubMed: 20854595]
Raphael D, Brown I, Renwick R. Psychometric properties of the full and short versions of the Quality of Life Instrument Package: Results from the Ontario province-wide study. International Journal of Disability, Development and Education. 1999 Jun;46(2):157–68.
Wade DT, Legh-Smith J, Langton Hewer R. Social activities after stroke: measurement and natural history using the Frenchay Activities Index. Int Rehabil Med. 1985;7(4):176–81. [PubMed: 4093249]
Wade DT. Measuring arm impairment and disability after stroke. International Disability Studies. 1989 Apr–Jun;11(2):89–92. [PubMed: 2698395]
Bookshelf ID: NBK114216


  • PubReader
  • Print View
  • Cite this Page
  • PDF version of this title (1.0M)

Recent Activity

Your browsing activity is empty.

Activity recording is turned off.

Turn recording back on

See more...