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Cover of Evaluating Human Genetic Diversity

Evaluating Human Genetic Diversity

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Washington (DC): National Academies Press (US); .
ISBN-10: 0-309-05931-3

Excerpt

This report examines the scientific merits and value of research on human genetic or genomic variation and the organizational, policy, and ethical issues that such research poses in a more-general context than the proposed HGDP (Human Genome Diversity Project). Chapter 2 discusses the scientific basis and usefulness of a worldwide systematic survey of human genetic variation. Chapters 3 and 4 address technical and logistical problems posed by such a project with respect to sampling design, obtaining and maintaining sufficient genetic material, access to research materials and information, and data handling. Chapter 5 examines ethical, legal, and social issues. Chapter 6 treats the organization of the project and research priorities.

Contents

This study by the National Research Council's Commission on Life Sciences was sponsored by the National Institutes of Health and the National Science Foundation under contract no. N01-OD-4-2139.

Points of view in this document are those of the authors and do not necessarily represent the official position of the sponsoring agencies.

NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance. In preparing its report, the committee invited people with different perspectives to present their views. Such invitation does not imply endorsement of those views.

Copyright © 1997, National Academy of Sciences.
Bookshelf ID: NBK100427PMID: 22973582DOI: 10.17226/5955

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