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Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations.

Sharp RR, Foster MW.

Environ Health Perspect. 2002 Apr;110 Suppl 2:145-8.PMID: 11929722 [PubMed - indexed for MEDLINE]Related articlesFree article

American Society of Clinical Oncology policy statement: oversight of clinical research.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2377-86. Epub 2003 Apr 29.PMID: 12721281 [PubMed - indexed for MEDLINE]Related articles

A review of improved ethical practices in environmental and public health research: case examples from native communities.

Quigley D.

Health Educ Behav. 2006 Apr;33(2):130-47. Review.PMID: 16531510 [PubMed - indexed for MEDLINE]Related articles

Research in American Indian and Alaska Native communities: navigating the cultural universe of values and process.

Norton IM, Manson SM.

J Consult Clin Psychol. 1996 Oct;64(5):856-60.PMID: 8916611 [PubMed - indexed for MEDLINE]Related articles

American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2397-406. Epub 2003 Apr 11.PMID: 12692171 [PubMed - indexed for MEDLINE]Related articles

Enhancing American Indian and Alaska Native health research: a multi-faceted challenge.

Manson SM, Buchwald DS.

J Interprof Care. 2007 Oct;21 Suppl 2:31-9.PMID: 17896244 [PubMed - indexed for MEDLINE]Related articles

Childhood cancer among Alaska Natives.

Lanier AP, Holck P, Ehrsam Day G, Key C.

Pediatrics. 2003 Nov;112(5):e396.PMID: 14595083 [PubMed - indexed for MEDLINE]Related articlesFree article

Barriers to cancer clinical trial participation among Native elders.

LaVallie DL, Wolf FM, Jacobsen C, Buchwald D.

Ethn Dis. 2008 Spring;18(2):210-7.PMID: 18507276 [PubMed - indexed for MEDLINE]Related articles

Exception from informed consent: viewpoint of institutional review boards--balancing risks to subjects, community consultation, and future directions.

Ernst AA, Fish S.

Acad Emerg Med. 2005 Nov;12(11):1050-5.PMID: 16264073 [PubMed - indexed for MEDLINE]Related articles

An analysis of research guidelines on the collection and use of human biological materials from American Indian and Alaskan Native communities.

Sharp RR, Foster MW.

Jurimetrics. 2002 Winter;42(2):165-86.PMID: 15119331 [PubMed - indexed for MEDLINE]Related articles

The role of community advisory boards: involving communities in the informed consent process.

Strauss RP, Sengupta S, Quinn SC, Goeppinger J, Spaulding C, Kegeles SM, Millett G.

Am J Public Health. 2001 Dec;91(12):1938-43.PMID: 11726369 [PubMed - indexed for MEDLINE]Related articlesFree article

Informed consent for research on stored blood and tissue samples: a survey of institutional review board practices.

White MT, Gamm J.

Account Res. 2002 Jan-Mar;9(1):1-16.PMID: 12705242 [PubMed - indexed for MEDLINE]Related articles

Sharing results from complex disease genetics studies: a community based participatory research approach.

Boyer BB, Mohatt GV, Pasker RL, Drew EM, McGlone KK.

Int J Circumpolar Health. 2007 Feb;66(1):19-30.PMID: 17451131 [PubMed - indexed for MEDLINE]Related articles

Communicating with communities about emergency research.

Richardson LD, Quest TE, Birnbaum S.

Acad Emerg Med. 2005 Nov;12(11):1064-70.PMID: 16264076 [PubMed - indexed for MEDLINE]Related articles

Ethical considerations in research with socially identifiable populations.

American Academy of Pediatrics Committee on Native American Child Health; American Academy of Pediatrics Committee on Community Health Services.

Pediatrics. 2004 Jan;113(1 Pt 1):148-51.PMID: 14702468 [PubMed - indexed for MEDLINE]Related articlesFree article

A case study of the South Puget Intertribal Planning Agency's comprehensive cancer control planning and community mobilization process.

Nass C, Simmons J, Bowen D, Guthrie T.

Prev Chronic Dis. 2008 Apr;5(2):A53. Epub 2008 Mar 15.PMID: 18341788 [PubMed - indexed for MEDLINE]Related articlesFree article

Disseminating research on community health and well-being: a collaboration between Alaska Native villages and the academe.

Legaspi A, Orr E.

Am Indian Alsk Native Ment Health Res. 2007;14(1):24-43.PMID: 17602411 [PubMed - indexed for MEDLINE]Related articles

Informed consent for population-based research involving genetics.

Beskow LM, Burke W, Merz JF, Barr PA, Terry S, Penchaszadeh VB, Gostin LO, Gwinn M, Khoury MJ.

JAMA. 2001 Nov 14;286(18):2315-21.PMID: 11710898 [PubMed - indexed for MEDLINE]Related articles

Access, relevance, and control in the research process: lessons from Indian country.

Manson SM, Garroutte E, Goins RT, Henderson PN.

J Aging Health. 2004 Nov;16(5 Suppl):58S-77S.PMID: 15448287 [PubMed - indexed for MEDLINE]Related articles

Culturally competent research with American Indians and Alaska Natives: findings and recommendations of the first symposium of the work group on American Indian Research and Program Evaluation Methodology.

Caldwell JY, Davis JD, Du Bois B, Echo-Hawk H, Erickson JS, Goins RT, Hill C, Hillabrant W, Johnson SR, Johnson SR, Kendall E, Keemer K, Manson SM, Marshall CA, Running Wolf P, Santiago RL, Schacht R, Stone JB.

Am Indian Alsk Native Ment Health Res. 2005;12(1):1-21. Review.PMID: 17602391 [PubMed - indexed for MEDLINE]Related articles