PubMed

National Institutes of Health State-of-the-Science Conference Statement: Family History and Improving Health.

Berg AO, Baird MA, Botkin JR, Driscoll DA, Fishman PA, Guarino PD, Hiatt RA, Jarvik GP, Millon-Underwood S, Morgan TM, Mulvihill JJ, Pollin TI, Schimmel SR, Stefanek ME, Vollmer WM, Williams JK.

Ann Intern Med. 2009 Nov 2. [Epub ahead of print] No abstract available. PMID: 19884615 [PubMed - as supplied by publisher]Related articlesFree article

NIH State-of-the-Science Conference Statement: Family History and Improving Health.

Baird MA, Berg AO, Botkin JR, Driscoll DA, Fishman PA, Guarino PD, Hiatt RA, Jarvik GP, Millon-Underwood S, Morgan TM, Mulvihill JJ, Pollin TI, Schimmel SR, Stefanek ME, Vollmer WM, Williams JK.

NIH Consens State Sci Statements. 2009 Aug 26;26(1). [Epub ahead of print]PMID: 19721470 [PubMed - as supplied by publisher]Related articlesFree article

Clinical report--Forgoing medically provided nutrition and hydration in children.

Diekema DS, Botkin JR; Committee on Bioethics; American Academy of Pediatrics.

Pediatrics. 2009 Aug;124(2):813-22. Epub 2009 Jul 27.PMID: 19651596 [PubMed - indexed for MEDLINE]Related articles

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS.

J Pediatr. 2009 Oct;155(4):578-83.PMID: 19595370 [PubMed - indexed for MEDLINE]Related articles

Assessing the new criteria for newborn screening.

Botkin JR.

Health Matrix Clevel. 2009 Winter;19(1):163-86. No abstract available. PMID: 19459543 [PubMed - indexed for MEDLINE]Related articles

Developing a National Registry for conditions identifiable through newborn screening.

Botkin JR, Anderson R, Staes C, Longo N.

Genet Med. 2009 Mar;11(3):176-82.PMID: 19367191 [PubMed - indexed for MEDLINE]Related articles

Patients' views on identifiability of samples and informed consent for genetic research.

Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS.

Am J Bioeth. 2008 Oct;8(10):62-70.PMID: 19003716 [PubMed - indexed for MEDLINE]Related articles

Expanding newborn screening: process, policy, and priorities.

Moyer VA, Calonge N, Teutsch SM, Botkin JR; United States Preventive Services Task Force.

Hastings Cent Rep. 2008 May-Jun;38(3):32-9.PMID: 18581935 [PubMed - indexed for MEDLINE]Related articles

Informed consent for genetic research.

Botkin JR.

Curr Protoc Hum Genet. 2005 Nov;Chapter 1:Unit 1.16.PMID: 18428370 [PubMed - indexed for MEDLINE]Related articles

Interpersonal responses among sibling dyads tested for BRCA1/BRCA2 gene mutations.

Hamann HA, Smith TW, Smith KR, Croyle RT, Ruiz JM, Kircher JC, Botkin JR.

Health Psychol. 2008 Jan;27(1):100-9.PMID: 18230020 [PubMed - indexed for MEDLINE]Related articles

Ethical considerations in clinical care of the "VIP".

Schenkenberg T, Kochenour NK, Botkin JR.

J Clin Ethics. 2007 Spring;18(1):56-63. No abstract available. PMID: 17546935 [PubMed - indexed for MEDLINE]Related articles

Newborn screening technology: proceed with caution.

Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond B, Berg A, Ross LF.

Pediatrics. 2006 May;117(5):1793-9. No abstract available. PMID: 16651338 [PubMed - indexed for MEDLINE]Related articlesFree article

Research for newborn screening: developing a national framework.

Botkin JR.

Pediatrics. 2005 Oct;116(4):862-71.PMID: 16199695 [PubMed - indexed for MEDLINE]Related articlesFree article

Communication analysis of BRCA1 genetic counseling.

Ellington L, Roter D, Dudley WN, Baty BJ, Upchurch R, Larson S, Wylie JE, Smith KR, Botkin JR.

J Genet Couns. 2005 Oct;14(5):377-86.PMID: 16195944 [PubMed - indexed for MEDLINE]Related articles

Addressing the "petty tyranny" of IRBs.

Botkin JR.

Am J Med Genet A. 2005 Apr 30;134(3):240-1. No abstract available. PMID: 15742367 [PubMed - indexed for MEDLINE]Related articles

Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs.

Grosse SD, Boyle CA, Botkin JR, Comeau AM, Kharrazi M, Rosenfeld M, Wilfond BS; CDC.

MMWR Recomm Rep. 2004 Oct 15;53(RR-13):1-36. Review.PMID: 15483524 [PubMed - indexed for MEDLINE]Related articlesFree article

Ethical issues in identifying and recruiting participants for familial genetic research.

Beskow LM, Botkin JR, Daly M, Juengst ET, Lehmann LS, Merz JF, Pentz R, Press NA, Ross LF, Sugarman J, Susswein LR, Terry SF, Austin MA, Burke W.

Am J Med Genet A. 2004 Nov 1;130A(4):424-31.PMID: 15455364 [PubMed - indexed for MEDLINE]Related articles

Fertility intentions following testing for a BRCA1 gene mutation.

Smith KR, Ellington L, Chan AY, Croyle RT, Botkin JR.

Cancer Epidemiol Biomarkers Prev. 2004 May;13(5):733-40.PMID: 15159303 [PubMed - indexed for MEDLINE]Related articlesFree article

Are there characteristics of infectious diseases that raise special ethical issues?

Smith CB, Battin MP, Jacobson JA, Francis LP, Botkin JR, Asplund EP, Domek GJ, Hawkins B.

Dev World Bioeth. 2004 May;4(1):1-16.PMID: 15086371 [PubMed - indexed for MEDLINE]Related articles

Prenatal diagnosis and the selection of children.

Botkin JR.

Fla State Univ Law Rev. 2003 Winter;30(2):265-93. No abstract available. PMID: 15083831 [PubMed - indexed for MEDLINE]Related articles

Preventing exploitation in pediatric research.

Botkin JR.

Am J Bioeth. 2003 Autumn;3(4):31-2. No abstract available. PMID: 14744322 [PubMed - indexed for MEDLINE]Related articles

Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption.

Venne VL, Botkin JR, Buys SS.

Am J Med Genet A. 2003 May 15;119A(1):41-6.PMID: 12707957 [PubMed - indexed for MEDLINE]Related articles

Effects of spouses on distress experienced by BRCA1 mutation carriers over time.

Wylie JE, Smith KR, Botkin JR.

Am J Med Genet C Semin Med Genet. 2003 May 15;119C(1):35-44.PMID: 12704636 [PubMed - indexed for MEDLINE]Related articles

Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing.

Botkin JR, Smith KR, Croyle RT, Baty BJ, Wylie JE, Dutson D, Chan A, Hamann HA, Lerman C, McDonald J, Venne V, Ward JH, Lyon E.

Am J Med Genet A. 2003 Apr 30;118A(3):201-9.PMID: 12673648 [PubMed - indexed for MEDLINE]Related articles

"Genetic exceptionalism" in medicine: clarifying the differences between genetic and nongenetic tests.

Green MJ, Botkin JR.

Ann Intern Med. 2003 Apr 1;138(7):571-5.PMID: 12667027 [PubMed - indexed for MEDLINE]Related articlesFree article

Planning the genome institute's future.

Uhlmann WR, Bennett R, Botkin JR, Botstein D, Boughman JA, Chakravarti A, Clayton EW, Kahn J, Koenig B, Murray TH, Olson MV, Rowley J, Terry S, Valle D.

Science. 2003 Mar 7;299(5612):1515; author reply 1515. No abstract available. PMID: 12624247 [PubMed - indexed for MEDLINE]Related articles

Voluntary disclosure of BRCA1 mutation test results.

Smith KR, Zick CD, Mayer RN, Botkin JR.

Genet Test. 2002 Summer;6(2):89-92.PMID: 12215247 [PubMed - indexed for MEDLINE]Related articles

Salmeterol and inhaled corticosteroids in patients with persistent asthma.

Botkin JR, Clayton E, Nelson R, Wilfond B, Munger MA.

JAMA. 2001 Dec 26;286(24):3075; author reply 3077-8. No abstract available. PMID: 11754662 [PubMed - indexed for MEDLINE]Related articles

Ethical issues and practical problems in preimplantation genetic diagnosis.

Botkin JR.

J Law Med Ethics. 1998 Spring;26(1):17-28, 3. Review.PMID: 11067582 [PubMed - indexed for MEDLINE]Related articles

Genetic testing, adverse selection, and the demand for life insurance.

Zick CD, Smith KR, Mayer RN, Botkin JR.

Am J Med Genet. 2000 Jul 3;93(1):29-39.PMID: 10861679 [PubMed - indexed for MEDLINE]Related articles

Attitudes toward the genetic testing of children among adults in a Utah-based kindred tested for a BRCA1 mutation.

Hamann HA, Croyle RT, Venne VL, Baty BJ, Smith KR, Botkin JR.

Am J Med Genet. 2000 May 1;92(1):25-32.PMID: 10797419 [PubMed - indexed for MEDLINE]Related articles

Can pediatricians define and apply the concept of brain death?

Harrison AM, Botkin JR.

Pediatrics. 1999 Jun;103(6):e82.PMID: 10353979 [PubMed - indexed for MEDLINE]Related articles

Familial context of genetic testing for cancer susceptibility: moderating effect of siblings' test results on psychological distress one to two weeks after BRCA1 mutation testing.

Smith KR, West JA, Croyle RT, Botkin JR.

Cancer Epidemiol Biomarkers Prev. 1999 Apr;8(4 Pt 2):385-92.PMID: 10207644 [PubMed - indexed for MEDLINE]Related articlesFree article

Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journals.

Botkin JR, McMahon WM, Smith KR, Nash JE.

JAMA. 1998 Jun 10;279(22):1808-12.PMID: 9628712 [PubMed - indexed for MEDLINE]Related articlesFree article

Genetic testing for susceptibility to adult-onset cancer. The process and content of informed consent.

Geller G, Botkin JR, Green MJ, Press N, Biesecker BB, Wilfond B, Grana G, Daly MB, Schneider K, Kahn MJ.

JAMA. 1997 May 14;277(18):1467-74. Review.PMID: 9145720 [PubMed - indexed for MEDLINE]Related articles

Psychological responses to BRCA1 mutation testing: preliminary findings.

Croyle RT, Smith KR, Botkin JR, Baty B, Nash J.

Health Psychol. 1997 Jan;16(1):63-72.PMID: 9028816 [PubMed - indexed for MEDLINE]Related articles

Whose genes are they and how can we identify them?

Botkin JR.

Science. 1996 Nov 8;274(5289):903-4. No abstract available. PMID: 8966561 [PubMed - indexed for MEDLINE]Related articles

A model protocol for evaluating the behavioral and psychosocial effects of BRCA1 testing.

Botkin JR, Croyle RT, Smith KR, Baty BJ, Lerman C, Goldgar DE, Ward JM, Flick BJ, Nash JE.

J Natl Cancer Inst. 1996 Jul 3;88(13):872-82. No abstract available. PMID: 8656439 [PubMed - indexed for MEDLINE]Related articlesFree article

Fetal privacy and confidentiality.

Botkin JR.

Hastings Cent Rep. 1995 Sep-Oct;25(5):32-9.PMID: 8530268 [PubMed - indexed for MEDLINE]Related articles

Medical students in a time of HIV: education and the duty to treat.

Post SG, Botkin JR, Headrick LA.

Med Educ. 1995 Mar;29(2):128-32.PMID: 7623699 [PubMed - indexed for MEDLINE]Related articles

Adolescents and AIDS prevention. The pediatrician's role.

Post SG, Botkin JR.

Clin Pediatr (Phila). 1995 Jan;34(1):41-5. Review. No abstract available. PMID: 7720327 [PubMed - indexed for MEDLINE]Related articles

Genetic counseling: making room for beneficence.

Botkin JR.

J Clin Ethics. 1995 Summer;6(2):182-4. No abstract available. PMID: 7496028 [PubMed - indexed for MEDLINE]Related articles

Decedents' reported preferences for physician-assisted death: a survey of informants listed on death certificates in Utah.

Jacobson JA, Kasworm EM, Battin MP, Botkin JR, Francis LP, Green D.

J Clin Ethics. 1995 Summer;6(2):149-57. No abstract available. PMID: 7496020 [PubMed - indexed for MEDLINE]Related articles

Coverage of genetic technologies under national health reform.

Mehlman MJ, Botkin JR, Scarrow A, Woodhall A, Kass J, Siebenschuh E.

Am J Hum Genet. 1994 Nov;55(5):1054-60.PMID: 7977343 [PubMed - indexed for MEDLINE]Related articlesFree article

Equitable distribution in pediatric heart transplantation. Arguments in favor of a national list.

Leonhardt DE, Botkin JR, Shaddy RE.

Arch Pediatr Adolesc Med. 1994 Mar;148(3):316-20. Review.PMID: 8130869 [PubMed - indexed for MEDLINE]Related articles

Wrongful birth: medical, legal, and philosophical issues.

Botkin JR, Mehlman MJ.

J Law Med Ethics. 1994 Spring;22(1):21-8. No abstract available. PMID: 8173656 [PubMed - indexed for MEDLINE]Related articles

AIDS and the medical student: the risk of contagion and the duty to treat.

Post SG, Botkin JR.

JAMA. 1992 Sep 2;268(9):1189, 1192-3. No abstract available. PMID: 1501347 [PubMed - indexed for MEDLINE]Related articles

Carrier screening for cystic fibrosis: a pilot study of the attitudes of pregnant women.

Botkin JR, Alemagno S.

Am J Public Health. 1992 May;82(5):723-5.PMID: 1566951 [PubMed - indexed for MEDLINE]Related articlesFree article

Selective abortion for familial Alzheimer disease?

Post SG, Botkin JR, Whitehouse P.

Obstet Gynecol. 1992 May;79(5 ( Pt 1)):794-8.PMID: 1565367 [PubMed - indexed for MEDLINE]Related articles

Ethics and evidence.

Botkin JR.

J Clin Ethics. 1992 Spring;3(1):63-4. No abstract available. PMID: 11643057 [PubMed - indexed for MEDLINE]Related articles