PubMed

Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue.

Willison DJ, Swinton M, Schwartz L, Abelson J, Charles C, Northrup D, Cheng J, Thabane L.

BMC Med Ethics. 2008 Nov 19;9:18.PMID: 19019239 [PubMed - indexed for MEDLINE]Related articlesFree article

Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?

Willison DJ, Steeves V, Charles C, Schwartz L, Ranford J, Agarwal G, Cheng J, Thabane L.

BMC Med Ethics. 2009 Jul 24;10:10.PMID: 19630941 [PubMed - indexed for MEDLINE]Related articlesFree article

Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

Willison DJ, Schwartz L, Abelson J, Charles C, Swinton M, Northrup D, Thabane L.

J Am Med Inform Assoc. 2007 Nov-Dec;14(6):706-12. Epub 2007 Aug 21.PMID: 17712084 [PubMed - indexed for MEDLINE]Related articlesFree article

Lay public's understanding of equipoise and randomisation in randomised controlled trials.

Robinson EJ, Kerr CE, Stevens AJ, Lilford RJ, Braunholtz DA, Edwards SJ, Beck SR, Rowley MG.

Health Technol Assess. 2005 Mar;9(8):1-192, iii-iv.PMID: 15763039 [PubMed - indexed for MEDLINE]Related articlesFree article

Clinical research without consent in adults in the emergency setting: a review of patient and public views.

Lecouturier J, Rodgers H, Ford GA, Rapley T, Stobbart L, Louw SJ, Murtagh MJ.

BMC Med Ethics. 2008 Apr 29;9:9. Review.PMID: 18445261 [PubMed - indexed for MEDLINE]Related articlesFree article

Eliciting public preferences for healthcare: a systematic review of techniques.

Ryan M, Scott DA, Reeves C, Bate A, van Teijlingen ER, Russell EM, Napper M, Robb CM.

Health Technol Assess. 2001;5(5):1-186.PMID: 11262422 [PubMed - indexed for MEDLINE]Related articlesFree article

Attaining adequate consent for the use of electronic patient records: an opt-out strategy to reconcile individuals' rights and public benefit.

Clark AM, Findlay IN.

Public Health. 2005 Nov;119(11):1003-10. Epub 2005 Sep 26.PMID: 16185734 [PubMed - indexed for MEDLINE]Related articles

American Society of Clinical Oncology policy statement: oversight of clinical research.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2377-86. Epub 2003 Apr 29.PMID: 12721281 [PubMed - indexed for MEDLINE]Related articles

American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2397-406. Epub 2003 Apr 11.PMID: 12692171 [PubMed - indexed for MEDLINE]Related articles

Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.

Robling MR, Hood K, Houston H, Pill R, Fay J, Evans HM.

J Med Ethics. 2004 Feb;30(1):104-9.PMID: 14872086 [PubMed - indexed for MEDLINE]Related articlesFree article

Access to medical records for research purposes: varying perceptions across research ethics boards.

Willison DJ, Emerson C, Szala-Meneok KV, Gibson E, Schwartz L, Weisbaum KM, Fournier F, Brazil K, Coughlin MD.

J Med Ethics. 2008 Apr;34(4):308-14.PMID: 18375687 [PubMed - indexed for MEDLINE]Related articles

Family pediatrics: report of the Task Force on the Family.

Schor EL; American Academy of Pediatrics Task Force on the Family.

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.PMID: 12777595 [PubMed - indexed for MEDLINE]Related articlesFree article

Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatment.

Vermeulen E, Schmidt MK, Aaronson NK, Kuenen M, van der Valk P, Sietses C, van den Tol P, van Leeuwen FE.

J Clin Pathol. 2009 Mar;62(3):275-8. Epub 2008 Nov 18.PMID: 19017681 [PubMed - indexed for MEDLINE]Related articles

Privacy and the secondary use of data for health research: experience in Canada and suggested directions forward.

Willison D.

J Health Serv Res Policy. 2003 Jul;8 Suppl 1:S1:17-23.PMID: 12869333 [PubMed - indexed for MEDLINE]Related articles

Study of cohort-specific consent and patient control in phase I cancer trials.

Daugherty CK, Ratain MJ, Minami H, Banik DM, Vogelzang NJ, Stadler WM, Siegler M.

J Clin Oncol. 1998 Jul;16(7):2305-12.PMID: 9667244 [PubMed - indexed for MEDLINE]Related articles

Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews.

Asai A, Ohnishi M, Nishigaki E, Sekimoto M, Fukuhara S, Fukui T.

BMC Med Ethics. 2002 Jan 9;3:E1. Epub 2002 Jan 9.PMID: 11825345 [PubMed - indexed for MEDLINE]Related articlesFree article

Personal privacy and public health: potential impacts of privacy legislation on health research in Canada.

Harris MA, Levy AR, Teschke KE.

Can J Public Health. 2008 Jul-Aug;99(4):293-6.PMID: 18767274 [PubMed - indexed for MEDLINE]Related articles

Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.

Tekola F, Bull S, Farsides B, Newport MJ, Adeyemo A, Rotimi CN, Davey G.

BMC Med Ethics. 2009 Aug 22;10:13.PMID: 19698115 [PubMed - indexed for MEDLINE]Related articlesFree article

Low risk research using routinely collected identifiable health information without informed consent: encounters with the Patient Information Advisory Group.

Metcalfe C, Martin RM, Noble S, Lane JA, Hamdy FC, Neal DE, Donovan JL.

J Med Ethics. 2008 Jan;34(1):37-40.PMID: 18156520 [PubMed - indexed for MEDLINE]Related articlesFree article

Decisions to use complementary and alternative medicine (CAM) by male cancer patients: information-seeking roles and types of evidence used.

Evans M, Shaw A, Thompson EA, Falk S, Turton P, Thompson T, Sharp D.

BMC Complement Altern Med. 2007 Aug 4;7:25.PMID: 17683580 [PubMed - indexed for MEDLINE]Related articlesFree article