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National Collaborating Centre for Women's and Children's Health (UK). Spasticity in Children and Young People with Non-Progressive Brain Disorders: Management of Spasticity and Co-Existing Motor Disorders and Their Early Musculoskeletal Complications. London: RCOG Press; 2012 Jul. (NICE Clinical Guidelines, No. 145.)

Appendix BDeclarations of interest

All GDG members' interests were recorded on declaration forms provided by NICE. The forms covered consultancies, fee-paid work, shareholdings, fellowships and support from the healthcare industry. GDG members' interests are listed in this section. This appendix includes all interests declared on or before 13 July 2012. No material conflicts of interest were identified during development of the guideline.

Table C.1GDG members' declarations of interest

GDG memberInterest
Paul Eunson (Chair)Non-personal pecuniary
Lothian Health Board received funding (to be used for books, meetings and study leave for departmental staff) in relation to membership of a European working group on intrathecal baclofen, and in relation to a physicians advisory panel for Medtronic (resigned from the advisory panel when offered position of GDG chair)

Personal non-pecuniary

Member of British and European working parties developing consensus documents for use of intrathecal baclofen in management of spasticity in children and adults; co-author of article published in the European Journal of Paediatric Neurology (Bernard Dan, Francesco Motta, Johann SH Vies, Michael Vloeberghs, Jules G Becher, Paul Eunson, Vincent Gautheron, Sonnhild Lutjen, Volker Mall, Samuel Ignacio Pascual-Pascual, Petra Pauwels, Geir Ketil Røste, Consensus on use of intrathecal baclofen therapy in paediatric spasticity, European Journal of Paediatric Neurology, 19 June 2009, e-pub ahead of press); wrote two chapters for a textbook (aimed at healthcare professionals) on use of intrathecal baclofen; gave a lecture at the Royal College of Paediatrics and Child Health (RCPCH) in relation to management of motor disorders in children with cerebral palsy; presented a paper relating to spasticity at the Society of British Neurosurgeons
Gordon AllanNo interests declared
Liz BarnesPersonal pecuniary

Received travel and subsistence expenses from HemiHelp in relation to a presentation about ‘The Hemiplegia Handbook’ (see below)

Non-personal pecuniary

HemiHelp received funding from Ipsen for editorial input to a botulinum toxin type A information sheet

Personal non-pecuniary

Trustee of HemiHelp with responsibility for information services; involved in producing information sheets relating to treatments covered by the guideline (including botulinum toxin, orthopaedic surgery, and orthoses); HemiHelp has not recommended or endorsed any particular drug or orthosis; contributed to chapters about social care, family life, education, etc as joint author of ‘The Hemiplegia Handbook’ (published by Mac Keith Press)
Lucinda CarrPersonal pecuniary

Received books from Mac Keith Press in lieu of payment as co-author on two chapters of a book (Stroke and cerebrovascular disease, international review of child neurology, Mac Keith Press 2009) relating to outcome and rehabilitation after stroke in children; received travel and subsistence expenses in relation to two European consensus group meetings sponsored by Allergan on the use of botulinum toxin in children with cerebral palsy, and received an honorarium in relation to one of the meetings; both meetings resulted in publication of articles in the European Journal of Paediatric Neurology (neither publication recommended a specific botulinum toxin product)

Personal non-pecuniary

Contributed to guidelines on use of botulinum toxin in children with cerebral palsy; made presentations to the Dystonia Society, made a cerebral palsy information video for NHS Choices, and spoke about cerebral palsy on BBC Casenotes; wrote a chapter (an overview of cerebral palsy) of a book (Oxford textbook of orthopaedics and trauma, Oxford University Press, in press)
Stephanie CawkerPersonal pecuniary

Received an educational grant from Ipsen towards fees, travel and accommodation to attend an international hip management course in Liverpool

Personal non-pecuniary

Member of the national committee of the Association of Paediatric Physiotherapists; clinical interest liaison officer at the Chartered Society of Physiotherapy
Elspeth DixonPersonal pecuniary

Tutor for an Open College Network validated postural care course, and using it in current NHS job

Personal non-pecuniary

Member of an informal focus group on postural care that includes healthcare professionals and families from around the country; the group has not made any public statements on spasticity
Christina GerickePersonal non-pecuniary

European delegate and council member of the British Association of Occupational Therapists
Alec MussonPersonal pecuniary

Attended a national study day for botulinum toxin physiotherapist injectors that was sponsored by Allergen, Ipsen, Medtronic and Caiyside Imaging Ltd; will receive travel, accommodation and subsistence expenses in relation to a course on advanced clinical applications and injection techniques for botulinum toxin type A in the management of spasticity that is sponsored by Ipsen (the GDG's recommendations in relation to botulinum toxin were made before course registration took place); funded by Leeds Teaching Hospitals NHS Trust to visit a team in the USA that performs selective dorsal rhizotomy (SDR); gave a lecture at a neurology network meeting that was sponsored by Medtronic
James RobbPersonal pecuniary

Received royalties from sale of a book (Editors Luqmani R, Robb JE, Porter DE, Keating JF, Textbook of orthopaedics, trauma and rheumatology, Mosbey Elsevier, 2008) and received a copy of the book; will receive an honorarium as co-author of chapters (on orthopaedic management of cerebral palsy, and hereditary and developmental neuromuscular disorders, respectively) in another book (Editors Benson, Fixsen, Macnicol and Parsch, Children's orthopaedics and fractures, third edition, Springer, 2010); received travel and accommodation expenses for an international meeting on hip management in cerebral palsy held in Liverpool (personal remit was to consider salvage surgery for the dislocated hip; a position statement is expected to be published)

Personal non-pecuniary

Member of a working party aiming to establish a Scottish screening programme for hip surveillance in children and young people with cerebral palsy; invited to write a review article on the management of the hip in people with cerebral palsy
Trudy WardPersonal pecuniary

Receives health expert witness fees for work undertaken as instructions to the courts through Triangle (www​.triangle.org.uk); court instruction work relates to children with complex health needs and disability; receives funding through Triangle (mainly from local authorities) for training related to disabled children; received the Action for Sick Children Norah Rees Award comprising a one-off payment, a crystal award, free attendance at the conference, and payment of travel expenses; receives travel expenses relating to position as representative of the Royal College of Nursing (RCN) on the Care Quality Commission review of support for families with disabled children; receives travel expenses from the RCN as representative on the Council for Disabled Children

Personal non-pecuniary

Chair of the RCN and Young People's Continuing and Community Care Forum, which supports RCN members working with children and young people with acute, long-term and palliative care needs within community settings; represents the RCN on the Council for Disabled Children
Jane WilliamsPersonal pecuniary

Receives travel expenses for attending meetings of the British Academy of Childhood Disability (BACD), the British Association of Community Child Health (BACCH) and meetings of the RCPCH; received fees from BACD as a guest lecturer on a non-related topic

Personal non-pecuniary

Chair of BACD; member of BACCH, British Paediatric Neurology Association (BPNA), European Academy of Childhood Disability (EACD), and editorial board of Developmental Medicine and Child Neurology (Mac Keith Press); referred patients to a team involved in intrathecal baclofen research; refers patients for assessment for botulinum toxin treatment; editing a book on children with disability to be published by Mac Keith Press (the book will include chapters on cerebral palsy and the management of spasticity)

Table C.2NCC staff members' declarations of interest

NCC-WCH staffInterest
Lauren Bardisa-EzcurraNo interests declared
Zosia BecklesNo interests declared
Shona Burman-RoyNo interests declared
Katherine CullenNo interests declared
Juliet KennyNo interests declared
Moira MugglestoneNo interests declared
M Stephen MurphyNo interests declared

Table C.3External advisors' declarations of interest

External advisorInterest
Christopher MorrisPersonal pecuniary

Receives a royalty for editing a book (Paediatric orthoses)

Non-personal pecuniary

Runs a childhood disability research unit funded by Cerebra, which conducts research including evaluation of orthoses

Personal non-pecuniary

Published papers and gave presentations expressing opinions about orthotic management
Andrew RobertsNo interests declared
Copyright © 2012, National Collaborating Centre for Women's and Children's Health.

No part of this publication may be reproduced, stored or transmitted in any form or by any means, without the prior written permission of the publisher or, in the case of reprographic reproduction, in accordance with the terms of licences issued by the Copyright Licensing Agency in the UK. Enquiries concerning reproduction outside the terms stated here should be sent to the publisher at the UK address printed on this page.

The use of registered names, trademarks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant laws and regulations and therefore for general use.

Cover of Spasticity in Children and Young People with Non-Progressive Brain Disorders
Spasticity in Children and Young People with Non-Progressive Brain Disorders: Management of Spasticity and Co-Existing Motor Disorders and Their Early Musculoskeletal Complications.
NICE Clinical Guidelines, No. 145.
National Collaborating Centre for Women's and Children's Health (UK).
London: RCOG Press; 2012 Jul.

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