Table 16Sub themes for information from patient experience scoping study

Sub themes for diabetesSub themes for cardiovascular diseaseSub themes for cancer
Importance of information and adviceSatisfaction with information: Feeling informedIndividualised approach
Problems with informationImportance of informationHonesty/realism
Not wanting informationWanting more informationReassurance/hope
Feedback on conditionWanting individualised informationFormat and quality
Sources of further helpFormatResponsibility/control
Education and groupsDeliveryInformation: Diagnosis
Peer supportTimingInformation: Treatment
Need for emotional supportNot wanting to knowInformation: Prognosis
Involvement of family/friends
Changing information
Inconsistent information
Sharing information

From: 10, Enabling patients to actively participate in their care

Cover of Patient Experience in Adult NHS Services: Improving the Experience of Care for People Using Adult NHS Services
Patient Experience in Adult NHS Services: Improving the Experience of Care for People Using Adult NHS Services: Patient Experience in Generic Terms.
NICE Clinical Guidelines, No. 138.
National Clinical Guideline Centre (UK).
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