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Results: 1 to 20 of 47

1.

Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study.

Doyle M.

Patient. 2014 Sep 18. [Epub ahead of print]

PMID:
25231828
[PubMed - as supplied by publisher]
2.

PedsQLâ„¢ Gastrointestinal Symptoms Scales and Gastrointestinal Worry Scales in pediatric patients with functional and organic gastrointestinal diseases in comparison to healthy controls.

Varni JW, Bendo CB, Denham J, Shulman RJ, Self MM, Neigut DA, Nurko S, Patel AS, Franciosi JP, Saps M, Yeckes A, Langseder A, Saeed S, Pohl JF.

Qual Life Res. 2014 Aug 23. [Epub ahead of print]

PMID:
25148757
[PubMed - as supplied by publisher]
3.

Emerging communities of child-healthcare practice in the management of long-term conditions such as chronic kidney disease: qualitative study of parents' accounts.

Carolan I, Smith T, Hall A, Swallow VM.

BMC Health Serv Res. 2014 Jul 7;14:292. doi: 10.1186/1472-6963-14-292.

PMID:
25001236
[PubMed - in process]
Free PMC Article
4.

[The efficacy of e-health management on weight control in adolescents: a systematic review].

Su MC, Lin CL, Tsao LI.

Hu Li Za Zhi. 2014 Feb;61(1):74-84. doi: 10.6224/JN.61.1.74. Review. Chinese.

PMID:
24519346
[PubMed - indexed for MEDLINE]
5.

[Time and use of discussion forums in type 1 diabetes: contribution to patient education].

Harry I, Gagnayre R.

Sante Publique. 2013 Jul-Aug;25(4):399-409. French.

PMID:
24404722
[PubMed - indexed for MEDLINE]
6.

Paediatric nurses' perception of the child-family dyad's autonomy in managing a chronic disease situation: the experience of an Italian paediatric department.

Bagnasco A, Petralia P, Furnari S, Ghio S, Calza S, Sasso L.

J Prev Med Hyg. 2013 Jun;54(2):124-9.

PMID:
24396995
[PubMed - indexed for MEDLINE]
7.

Does the duration and time of sleep increase the risk of allergic rhinitis? Results of the 6-year nationwide Korea youth risk behavior web-based survey.

Kwon JA, Lee M, Yoo KB, Park EC.

PLoS One. 2013 Aug 27;8(8):e72507. doi: 10.1371/journal.pone.0072507. eCollection 2013.

PMID:
24015253
[PubMed - indexed for MEDLINE]
Free PMC Article
8.

After Dr Google: peer-to-peer health care.

Fox S.

Pediatrics. 2013 Jun;131 Suppl 4:S224-5. doi: 10.1542/peds.2012-3786K.

PMID:
23729765
[PubMed - indexed for MEDLINE]
Free Article
9.

Development of a novel tool for engaging children and parents in asthma self-management.

Nkoy FL, Stone BL, Fassl BA, Koopmeiners K, Halbern S, Kim EH, Poll J, Hales JW, Lee D, Maloney CG.

AMIA Annu Symp Proc. 2012;2012:663-72. Epub 2012 Nov 3.

PMID:
23304339
[PubMed - indexed for MEDLINE]
Free PMC Article
10.

Communicating inherited genetic risk between parent and child: a meta-thematic synthesis.

Rowland E, Metcalfe A.

Int J Nurs Stud. 2013 Jun;50(6):870-80. doi: 10.1016/j.ijnurstu.2012.09.002. Epub 2012 Sep 29.

PMID:
23026156
[PubMed - indexed for MEDLINE]
11.

Parents' views on growth hormone treatment for their children: psychosocial issues.

van Dongen N, Kaptein AA.

Patient Prefer Adherence. 2012;6:547-53. doi: 10.2147/PPA.S33157. Epub 2012 Jul 25.

PMID:
22927747
[PubMed]
Free PMC Article
12.

Engagement of parents in on-line social support interventions.

Paterson BL, Brewer J, Stamler LL.

J Pediatr Nurs. 2013 Apr;28(2):114-24. doi: 10.1016/j.pedn.2012.05.001. Epub 2012 Jun 15. Review.

PMID:
22710151
[PubMed - indexed for MEDLINE]
13.

Automated telecommunication to obtain longitudinal follow-up in a multicenter cross-sectional COPD study.

Stewart JI, Moyle S, Criner GJ, Wilson C, Tanner R, Bowler RP, Crapo JD, Zeldin RK, Make BJ, Regan EA, For The Copdgene Investigators.

COPD. 2012 Aug;9(5):466-72. doi: 10.3109/15412555.2012.690010. Epub 2012 Jun 7.

PMID:
22676387
[PubMed - indexed for MEDLINE]
Free PMC Article
14.

Nurse educators establishing new venues in global nursing education.

Shishani K, Allen C, Shubnikov E, Salman K, Laporte RE, Linkov F.

J Prof Nurs. 2012 Mar-Apr;28(2):132-4. doi: 10.1016/j.profnurs.2011.11.008.

PMID:
22459145
[PubMed - indexed for MEDLINE]
15.

Breathe Easier Online: evaluation of a randomized controlled pilot trial of an Internet-based intervention to improve well-being in children and adolescents with a chronic respiratory condition.

Newcombe PA, Dunn TL, Casey LM, Sheffield JK, Petsky H, Anderson-James S, Chang AB.

J Med Internet Res. 2012 Feb 8;14(1):e23. doi: 10.2196/jmir.1997.

PMID:
22356732
[PubMed - indexed for MEDLINE]
Free PMC Article
16.

Adolescent and parental utilities for the health states associated with pelvic inflammatory disease.

Trent M, Lehmann HP, Qian Q, Thompson CB, Ellen JM, Frick KD.

Sex Transm Infect. 2011 Dec;87(7):583-7. doi: 10.1136/sextrans-2011-050187. Epub 2011 Oct 14.

PMID:
22001169
[PubMed - indexed for MEDLINE]
17.

Internet use and eHealth literacy of low-income parents whose children have special health care needs.

Knapp C, Madden V, Wang H, Sloyer P, Shenkman E.

J Med Internet Res. 2011 Sep 29;13(3):e75. doi: 10.2196/jmir.1697.

PMID:
21960017
[PubMed - indexed for MEDLINE]
Free PMC Article
18.

Health information management and perceptions of the quality of care for children with tracheotomy: a qualitative study.

Berry JG, Goldmann DA, Mandl KD, Putney H, Helm D, O'Brien J, Antonelli R, Weinick RM.

BMC Health Serv Res. 2011 May 23;11:117. doi: 10.1186/1472-6963-11-117.

PMID:
21605385
[PubMed - indexed for MEDLINE]
Free PMC Article
19.

Variation in use of Internet-based patient portals by parents of children with chronic disease.

Byczkowski TL, Munafo JK, Britto MT.

Arch Pediatr Adolesc Med. 2011 May;165(5):405-11. doi: 10.1001/archpediatrics.2011.55.

PMID:
21536954
[PubMed - indexed for MEDLINE]
20.

Factors affecting home care patients' acceptance of a web-based interactive self-management technology.

Or CK, Karsh BT, Severtson DJ, Burke LJ, Brown RL, Brennan PF.

J Am Med Inform Assoc. 2011 Jan-Feb;18(1):51-9. doi: 10.1136/jamia.2010.007336. Epub 2010 Dec 3.

PMID:
21131605
[PubMed - indexed for MEDLINE]
Free PMC Article

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