Epidermolysis bullosa in France: management in the National Reference Center for Genodermatosis

Christine Bodemer; MAGEC-Necker Team

doi:10.1016/j.det.2010.02.007

Epidermolysis bullosa in France: management in the National Reference Center for Genodermatosis

Dermatol Clin. 2010 Apr;28(2):401-3, xiv. doi: 10.1016/j.det.2010.02.007.

Authors

Christine Bodemer¹; MAGEC-Necker Team

Affiliation

¹ Department of Dermatology, Necker Enfants Malades Hospital, APHP Paris 75015, France. christine.bodemer@nck.aphp.fr

PMID: 20447513
DOI: 10.1016/j.det.2010.02.007

Abstract

For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa-specific multidisciplinary management. The French Ministry of Health distinguished this hospital as a reference center for rare diseases. MAGEC-Necker now aims to offer the best medical and social management of epidermolysis bullosa.

Publication types

Review

MeSH terms

Databases, Factual
Epidermolysis Bullosa / therapy*
France
Humans
National Health Programs / organization & administration*
Patient Care Team / organization & administration*
Referral and Consultation / organization & administration*