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Results: 1 to 20 of 74

1.

Does policy grow on trees?

Knoppers BM.

BMC Med Ethics. 2014 Dec 22;15:87. doi: 10.1186/1472-6939-15-87.

2.

The best interests of the child and the return of results in genetic research: international comparative perspectives.

Zawati MH, Parry D, Knoppers BM.

BMC Med Ethics. 2014 Oct 4;15:72. doi: 10.1186/1472-6939-15-72.

3.

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS.

J Law Med Ethics. 2014 Fall;42(3):344-55. doi: 10.1111/jlme.12151.

4.

DataSHIELD: taking the analysis to the data, not the data to the analysis.

Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, Boyd AW, Newby CJ, Nuotio ML, Wilson R, Butters O, Murtagh B, Demir I, Doiron D, Giepmans L, Wallace SE, Budin-Ljøsne I, Oliver Schmidt C, Boffetta P, Boniol M, Bota M, Carter KW, deKlerk N, Dibben C, Francis RW, Hiekkalinna T, Hveem K, Kvaløy K, Millar S, Perry IJ, Peters A, Phillips CM, Popham F, Raab G, Reischl E, Sheehan N, Waldenberger M, Perola M, van den Heuvel E, Macleod J, Knoppers BM, Stolk RP, Fortier I, Harris JR, Woffenbuttel BH, Murtagh MJ, Ferretti V, Burton PR.

Int J Epidemiol. 2014 Dec;43(6):1929-44. doi: 10.1093/ije/dyu188. Epub 2014 Sep 26.

5.

Building a data sharing model for global genomic research.

Kosseim P, Dove ES, Baggaley C, Meslin EM, Cate FH, Kaye J, Harris JR, Knoppers BM.

Genome Biol. 2014 Aug 11;15(8):430. doi: 10.1186/s13059-014-0430-2.

6.

Beyond public health genomics: proposals from an international working group.

Boccia S, Mc Kee M, Adany R, Boffetta P, Burton H, Cambon-Thomsen A, Cornel MC, Gray M, Jani A, Knoppers BM, Khoury MJ, Meslin EM, Van Duijn CM, Villari P, Zimmern R, Cesario A, Puggina A, Colotto M, Ricciardi W.

Eur J Public Health. 2014 Dec;24(6):877-9. doi: 10.1093/eurpub/cku142. Epub 2014 Aug 27. No abstract available.

7.

International ethics harmonization and the global alliance for genomics and health.

Knoppers BM.

Genome Med. 2014 Feb 27;6(2):13. doi: 10.1186/gm530. eCollection 2014. No abstract available.

8.

To disclose, or not to disclose? Context matters.

Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D.

Eur J Hum Genet. 2015 Mar;23(3):279-84. doi: 10.1038/ejhg.2014.108. Epub 2014 Jun 11.

9.

Stem cell research funding policies and dynamic innovation: a survey of open access and commercialization requirements.

Lévesque M, Kim JR, Isasi R, Knoppers BM, Plomer A, Joly Y.

Stem Cell Rev. 2014 Aug;10(4):455-71. doi: 10.1007/s12015-014-9504-5.

10.

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.

McGuire AL, Knoppers BM, Zawati MH, Clayton EW.

Genome Res. 2014 May;24(5):719-23. doi: 10.1101/gr.170514.113. Epub 2014 Mar 27.

11.

An international effort towards developing standards for best practices in analysis, interpretation and reporting of clinical genome sequencing results in the CLARITY Challenge.

Brownstein CA, Beggs AH, Homer N, Merriman B, Yu TW, Flannery KC, DeChene ET, Towne MC, Savage SK, Price EN, Holm IA, Luquette LJ, Lyon E, Majzoub J, Neupert P, McCallie D Jr, Szolovits P, Willard HF, Mendelsohn NJ, Temme R, Finkel RS, Yum SW, Medne L, Sunyaev SR, Adzhubey I, Cassa CA, de Bakker PI, Duzkale H, Dworzyński P, Fairbrother W, Francioli L, Funke BH, Giovanni MA, Handsaker RE, Lage K, Lebo MS, Lek M, Leshchiner I, MacArthur DG, McLaughlin HM, Murray MF, Pers TH, Polak PP, Raychaudhuri S, Rehm HL, Soemedi R, Stitziel NO, Vestecka S, Supper J, Gugenmus C, Klocke B, Hahn A, Schubach M, Menzel M, Biskup S, Freisinger P, Deng M, Braun M, Perner S, Smith RJ, Andorf JL, Huang J, Ryckman K, Sheffield VC, Stone EM, Bair T, Black-Ziegelbein EA, Braun TA, Darbro B, DeLuca AP, Kolbe DL, Scheetz TE, Shearer AE, Sompallae R, Wang K, Bassuk AG, Edens E, Mathews K, Moore SA, Shchelochkov OA, Trapane P, Bossler A, Campbell CA, Heusel JW, Kwitek A, Maga T, Panzer K, Wassink T, Van Daele D, Azaiez H, Booth K, Meyer N, Segal MM, Williams MS, Tromp G, White P, Corsmeier D, Fitzgerald-Butt S, Herman G, Lamb-Thrush D, McBride KL, Newsom D, Pierson CR, Rakowsky AT, Maver A, Lovrečić L, Palandačić A, Peterlin B, Torkamani A, Wedell A, Huss M, Alexeyenko A, Lindvall JM, Magnusson M, Nilsson D, Stranneheim H, Taylan F, Gilissen C, Hoischen A, van Bon B, Yntema H, Nelen M, Zhang W, Sager J, Zhang L, Blair K, Kural D, Cariaso M, Lennon GG, Javed A, Agrawal S, Ng PC, Sandhu KS, Krishna S, Veeramachaneni V, Isakov O, Halperin E, Friedman E, Shomron N, Glusman G, Roach JC, Caballero J, Cox HC, Mauldin D, Ament SA, Rowen L, Richards DR, San Lucas FA, Gonzalez-Garay ML, Caskey CT, Bai Y, Huang Y, Fang F, Zhang Y, Wang Z, Barrera J, Garcia-Lobo JM, González-Lamuño D, Llorca J, Rodriguez MC, Varela I, Reese MG, De La Vega FM, Kiruluta E, Cargill M, Hart RK, Sorenson JM, Lyon GJ, Stevenson DA, Bray BE, Moore BM, Eilbeck K, Yandell M, Zhao H, Hou L, Chen X, Yan X, Chen M, Li C, Yang C, Gunel M, Li P, Kong Y, Alexander AC, Albertyn ZI, Boycott KM, Bulman DE, Gordon PM, Innes AM, Knoppers BM, Majewski J, Marshall CR, Parboosingh JS, Sawyer SL, Samuels ME, Schwartzentruber J, Kohane IS, Margulies DM.

Genome Biol. 2014 Mar 25;15(3):R53. doi: 10.1186/gb-2014-15-3-r53.

12.

A human rights approach to an international code of conduct for genomic and clinical data sharing.

Knoppers BM, Harris JR, Budin-Ljøsne I, Dove ES.

Hum Genet. 2014 Jul;133(7):895-903. doi: 10.1007/s00439-014-1432-6. Epub 2014 Feb 27.

13.

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.

Kleiderman E, Knoppers BM, Fernandez CV, Boycott KM, Ouellette G, Wong-Rieger D, Adam S, Richer J, Avard D.

J Med Ethics. 2014 Oct;40(10):691-6. doi: 10.1136/medethics-2013-101648. Epub 2013 Dec 19.

14.

An ethics safe harbor for international genomics research?

Dove ES, Knoppers BM, Zawati MH.

Genome Med. 2013 Nov 22;5(11):99. doi: 10.1186/gm503. eCollection 2013.

15.

Life insurance: genomic stratification and risk classification.

Joly Y, Burton H, Knoppers BM, Feze IN, Dent T, Pashayan N, Chowdhury S, Foulkes W, Hall A, Hamet P, Kirwan N, Macdonald A, Simard J, Van Hoyweghen I.

Eur J Hum Genet. 2014 May;22(5):575-9. doi: 10.1038/ejhg.2013.228. Epub 2013 Oct 16.

16.

From tissues to genomes.

Knoppers BM.

G3 (Bethesda). 2013 Aug 7;3(8):1203-4. doi: 10.1534/g3.113.007443. No abstract available.

17.

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.

Knoppers BM, Avard D, Sénécal K, Zawati MH; P3G International Paediatrics Platform Members.

Eur J Hum Genet. 2014 Jan;22(1):3-5. doi: 10.1038/ejhg.2013.176. Epub 2013 Aug 7. No abstract available. Erratum in: Eur J Hum Genet. 2014 Jan;22(1):153-4.

18.

Recommendations for returning genomic incidental findings? We need to talk!

Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, Wilfond B, Wolf SM, Zimmern R.

Genet Med. 2013 Nov;15(11):854-9. doi: 10.1038/gim.2013.113. Epub 2013 Aug 1. Review.

19.

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics.

van El CG, Cornel MC, Borry P, Hastings RJ, Fellmann F, Hodgson SV, Howard HC, Cambon-Thomsen A, Knoppers BM, Meijers-Heijboer H, Scheffer H, Tranebjaerg L, Dondorp W, de Wert GM; ESHG Public and Professional Policy Committee.

Eur J Hum Genet. 2013 Jun;21 Suppl 1:S1-5. No abstract available.

20.

Data sharing in large research consortia: experiences and recommendations from ENGAGE.

Budin-Ljøsne I, Isaeva J, Knoppers BM, Tassé AM, Shen HY, McCarthy MI, Harris JR; ENGAGE Consortium.

Eur J Hum Genet. 2014 Mar;22(3):317-21. doi: 10.1038/ejhg.2013.131. Epub 2013 Jun 19.

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