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Results: 1 to 20 of 222


Exposing participants? Population biobanks go geo.

Bovenberg JA, Knoppers BM, Hansell A, de Hoogh K.

Eur J Hum Genet. 2015 Mar 25. doi: 10.1038/ejhg.2015.43. [Epub ahead of print] No abstract available.


From the principles of genomic data sharing to the practices of data access committees.

Shabani M, Knoppers BM, Borry P.

EMBO Mol Med. 2015 Mar 9. pii: e201405002. doi: 10.15252/emmm.201405002. [Epub ahead of print] No abstract available.


Nature, nurture and exposure: Connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed.

Bovenberg JA, Hansell A, de Hoogh K, Knoppers BM.

EMBO Rep. 2015 Apr;16(4):404-6. doi: 10.15252/embr.201439902. Epub 2015 Mar 5. No abstract available.


Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes.

Howard HC, Knoppers BM, Cornel MC, Wright Clayton E, Sénécal K, Borry P; endorsed by the European Society of Human Genetics; the P3G International Paediatric Platform; the Human Genome Organisation; and the PHG Foundation.

Eur J Hum Genet. 2015 Jan 28. doi: 10.1038/ejhg.2014.289. [Epub ahead of print]


An implementation framework for the feedback of individual research results and incidental findings in research.

Thorogood A, Joly Y, Knoppers BM, Nilsson T, Metrakos P, Lazaris A, Salman A.

BMC Med Ethics. 2014 Dec 23;15(1):88.


Does policy grow on trees?

Knoppers BM.

BMC Med Ethics. 2014 Dec 22;15:87. doi: 10.1186/1472-6939-15-87.


What are some of the ELSI challenges of international collaborations involving biobanks, global sample collection, and genomic data sharing and how should they be addressed?

Dove ES, Tassé AM, Knoppers BM.

Biopreserv Biobank. 2014 Dec;12(6):363-4. doi: 10.1089/bio.2014.1263. No abstract available.


[Personalized medicine: equity and access].

Joly Y, Knoppers BM.

Med Sci (Paris). 2014 Nov;30 Spec No 2:27-31. doi: 10.1051/medsci/201430s206. Epub 2014 Nov 17. French.


Data sharing, year 1--access to data from industry-sponsored clinical trials.

Strom BL, Buyse M, Hughes J, Knoppers BM.

N Engl J Med. 2014 Nov 27;371(22):2052-4. doi: 10.1056/NEJMp1411794. Epub 2014 Oct 15. No abstract available.


The best interests of the child and the return of results in genetic research: international comparative perspectives.

Zawati MH, Parry D, Knoppers BM.

BMC Med Ethics. 2014 Oct 4;15:72. doi: 10.1186/1472-6939-15-72.


The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS.

J Law Med Ethics. 2014 Fall;42(3):344-55. doi: 10.1111/jlme.12151.


DataSHIELD: taking the analysis to the data, not the data to the analysis.

Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, Boyd AW, Newby CJ, Nuotio ML, Wilson R, Butters O, Murtagh B, Demir I, Doiron D, Giepmans L, Wallace SE, Budin-Ljøsne I, Oliver Schmidt C, Boffetta P, Boniol M, Bota M, Carter KW, deKlerk N, Dibben C, Francis RW, Hiekkalinna T, Hveem K, Kvaløy K, Millar S, Perry IJ, Peters A, Phillips CM, Popham F, Raab G, Reischl E, Sheehan N, Waldenberger M, Perola M, van den Heuvel E, Macleod J, Knoppers BM, Stolk RP, Fortier I, Harris JR, Woffenbuttel BH, Murtagh MJ, Ferretti V, Burton PR.

Int J Epidemiol. 2014 Dec;43(6):1929-44. doi: 10.1093/ije/dyu188. Epub 2014 Sep 26.


International Charter of principles for sharing bio-specimens and data.

Mascalzoni D, Dove ES, Rubinstein Y, Dawkins HJ, Kole A, McCormack P, Woods S, Riess O, Schaefer F, Lochmüller H, Knoppers BM, Hansson M.

Eur J Hum Genet. 2014 Sep 24. doi: 10.1038/ejhg.2014.197. [Epub ahead of print]


Genomic cloud computing: legal and ethical points to consider.

Dove ES, Joly Y, Tassé AM; Public Population Project in Genomics and Society (P3G) International Steering Committee; International Cancer Genome Consortium (ICGC) Ethics and Policy Committee, Knoppers BM; Public Population Project in Genomics and Society P3G International Steering Committee; International Cancer Genome Consortium ICGC Ethics and Policy Committee.

Eur J Hum Genet. 2014 Sep 24. doi: 10.1038/ejhg.2014.196. [Epub ahead of print]


Building a data sharing model for global genomic research.

Kosseim P, Dove ES, Baggaley C, Meslin EM, Cate FH, Kaye J, Harris JR, Knoppers BM.

Genome Biol. 2014 Aug 11;15(8):430. doi: 10.1186/s13059-014-0430-2.


Data protection and consent to biomedical research: a step forward?

Dove ES, Townend D, Knoppers BM.

Lancet. 2014 Sep 6;384(9946):855. doi: 10.1016/S0140-6736(14)61488-4. No abstract available.


Beyond public health genomics: proposals from an international working group.

Boccia S, Mc Kee M, Adany R, Boffetta P, Burton H, Cambon-Thomsen A, Cornel MC, Gray M, Jani A, Knoppers BM, Khoury MJ, Meslin EM, Van Duijn CM, Villari P, Zimmern R, Cesario A, Puggina A, Colotto M, Ricciardi W.

Eur J Public Health. 2014 Dec;24(6):877-9. doi: 10.1093/eurpub/cku142. Epub 2014 Aug 27. No abstract available.


The ethical framing of personalized medicine.

Joly Y, Saulnier KM, Osien G, Knoppers BM.

Curr Opin Allergy Clin Immunol. 2014 Oct;14(5):404-8. doi: 10.1097/ACI.0000000000000091.


International ethics harmonization and the global alliance for genomics and health.

Knoppers BM.

Genome Med. 2014 Feb 27;6(2):13. doi: 10.1186/gm530. eCollection 2014. No abstract available.


To disclose, or not to disclose? Context matters.

Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D.

Eur J Hum Genet. 2015 Mar;23(3):279-84. doi: 10.1038/ejhg.2014.108. Epub 2014 Jun 11.

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