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Items: 1 to 20 of 262

1.

A step forward for data protection and biomedical research.

Dove ES, Thompson B, Knoppers BM.

Lancet. 2016 Apr 2;387(10026):1374-5. doi: 10.1016/S0140-6736(16)30078-2. No abstract available.

PMID:
27115815
2.

Do It Yourself Newborn Screening.

Borry P, Sénécal K, Knoppers BM.

JAMA Pediatr. 2016 Apr 25. doi: 10.1001/jamapediatrics.2016.0166. [Epub ahead of print] No abstract available.

PMID:
27111240
3.

An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.

Rahimzadeh V, Dyke SO, Knoppers BM.

Biopreserv Biobank. 2016 Apr 15. [Epub ahead of print]

PMID:
27082668
4.

RESEARCH ETHICS. Ethics review for international data-intensive research.

Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM.

Science. 2016 Mar 25;351(6280):1399-400. doi: 10.1126/science.aad5269. No abstract available.

5.

Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium.

ICGC Data Access Compliance Office and the ICGC International Data Access Committee.

Nat Genet. 2016 Feb 24;48(3):224-5. doi: 10.1038/ng.3499. No abstract available.

PMID:
26906679
6.

GENETIC TECHNOLOGY REGULATION. Editing policy to fit the genome?

Isasi R, Kleiderman E, Knoppers BM.

Science. 2016 Jan 22;351(6271):337-9. doi: 10.1126/science.aad6778. No abstract available.

PMID:
26797999
7.

Consent Codes: Upholding Standard Data Use Conditions.

Dyke SO, Philippakis AA, Rambla De Argila J, Paltoo DN, Luetkemeier ES, Knoppers BM, Brookes AJ, Spalding JD, Thompson M, Roos M, Boycott KM, Brudno M, Hurles M, Rehm HL, Matern A, Fiume M, Sherry ST.

PLoS Genet. 2016 Jan 21;12(1):e1005772. doi: 10.1371/journal.pgen.1005772. eCollection 2016 Jan.

8.

INTRODUCTION: Harmonizing Privacy Laws to Enable International Biobank Research.

Rothstein MA, Knoppers BM.

J Law Med Ethics. 2015 Winter;43(4):673-4. doi: 10.1111/jlme.12310. No abstract available.

PMID:
26711408
9.

Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process.

Sénécal K, Rahimzadeh V, Knoppers BM, Fernandez CV, Avard D, Sinnett D.

Genome. 2015 Dec;58(12):541-8. doi: 10.1139/gen-2015-0092. Epub 2015 Nov 10.

PMID:
26613133
10.

Data sharing in stem cell translational science: policy statement by the International Stem Cell Forum Ethics Working Party.

Bredenoord AL, Mostert M, Isasi R, Knoppers BM.

Regen Med. 2015;10(7):857-61. doi: 10.2217/rme.15.42. Epub 2015 Oct 27.

PMID:
26506014
11.

Population genetic testing for cancer susceptibility: founder mutations to genomes.

Foulkes WD, Knoppers BM, Turnbull C.

Nat Rev Clin Oncol. 2016 Jan;13(1):41-54. doi: 10.1038/nrclinonc.2015.173. Epub 2015 Oct 20. Review.

PMID:
26483301
12.

A global reference for human genetic variation.

1000 Genomes Project Consortium, Auton A, Brooks LD, Durbin RM, Garrison EP, Kang HM, Korbel JO, Marchini JL, McCarthy S, McVean GA, Abecasis GR.

Nature. 2015 Oct 1;526(7571):68-74. doi: 10.1038/nature15393.

13.

Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study.

Fernandez CV, OʼConnell C, Ferguson M, Orr AC, Robitaille JM, Knoppers BM, McMaster CR.

Public Health Genomics. 2015;18(5):299-308. doi: 10.1159/000439244. Epub 2015 Sep 10.

PMID:
26352440
14.

The ethics weathervane.

Knoppers BM, Chadwick R.

BMC Med Ethics. 2015 Sep 4;16:58. doi: 10.1186/s12910-015-0054-4.

15.

Return of genetic testing results in the era of whole-genome sequencing.

Knoppers BM, Zawati MH, Sénécal K.

Nat Rev Genet. 2015 Sep;16(9):553-9. doi: 10.1038/nrg3960. Epub 2015 Aug 4. Review.

PMID:
26239711
16.

Where Next for Genetics and Genomics?

Tyler-Smith C, Yang H, Landweber LF, Dunham I, Knoppers BM, Donnelly P, Mardis ER, Snyder M, McVean G.

PLoS Biol. 2015 Jul 30;13(7):e1002216. doi: 10.1371/journal.pbio.1002216. eCollection 2015 Jul.

17.

Developing Educational Resources to Advance Umbilical Cord Blood Banking and Research: A Canadian Perspective.

Pereira Beak C, Chargé SB, Isasi R, Knoppers BM.

J Obstet Gynaecol Can. 2015 May;37(5):443-50.

PMID:
26168106
18.

Data analysis: Create a cloud commons.

Stein LD, Knoppers BM, Campbell P, Getz G, Korbel JO.

Nature. 2015 Jul 9;523(7559):149-51. doi: 10.1038/523149a. No abstract available.

PMID:
26156357
19.

Data Safe Havens in health research and healthcare.

Burton PR, Murtagh MJ, Boyd A, Williams JB, Dove ES, Wallace SE, Tassé AM, Little J, Chisholm RL, Gaye A, Hveem K, Brookes AJ, Goodwin P, Fistein J, Bobrow M, Knoppers BM.

Bioinformatics. 2015 Oct 15;31(20):3241-8. doi: 10.1093/bioinformatics/btv279. Epub 2015 Jun 25. Review.

20.

Streamlining review of research involving humans: Canadian models.

Zawati MH, Junker A, Knoppers BM, Rahimzadeh V.

J Med Genet. 2015 Aug;52(8):566-9. doi: 10.1136/jmedgenet-2014-102640. Epub 2015 Jun 3. No abstract available.

PMID:
26041760
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