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"I Can Breathe Again!" Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived from Qualitative Interviews.

Simon ST, Weingärtner V, Higginson IJ, Benalia H, Gysels M, Murtagh FE, Spicer J, Linde P, Voltz R, Bausewein C.

J Pain Symptom Manage. 2016 May 21. pii: S0885-3924(16)30109-9. doi: 10.1016/j.jpainsymman.2016.02.016. [Epub ahead of print]


How does a new breathlessness support service affect patients?

Gysels M, Reilly CC, Jolley CJ, Pannell C, Spoorendonk F, Bellas H, Madan P, Moxham J, Higginson IJ, Bausewein C.

Eur Respir J. 2015 Nov;46(5):1515-8. doi: 10.1183/13993003.00751-2015. Epub 2015 Sep 17. No abstract available.


An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial.

Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, McCrone P, Booth S, Jolley CJ, Moxham J.

Lancet Respir Med. 2014 Dec;2(12):979-87. doi: 10.1016/S2213-2600(14)70226-7. Epub 2014 Oct 29.


Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients.

Dunger C, Higginson IJ, Gysels M, Booth S, Simon ST, Bausewein C.

Palliat Support Care. 2015 Apr;13(2):229-37. doi: 10.1017/S147895151300120X. Epub 2014 Feb 13.


Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries.

Calanzani N, Moens K, Cohen J, Higginson IJ, Harding R, Deliens L, Toscani F, Ferreira PL, Bausewein C, Daveson BA, Gysels M, Ceulemans L, Gomes B; Project PRISMA.

BMC Palliat Care. 2014 Oct 23;13:48. doi: 10.1186/1472-684X-13-48.


WITHDRAWN: Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases.

Bausewein C, Booth S, Gysels M, Higginson IJ.

Cochrane Database Syst Rev. 2013 Nov 22;(11):CD005623. doi: 10.1002/14651858.CD005623.pub3. Review. No abstract available.


Diversity in defining end of life care: an obstacle or the way forward?

Gysels M, Evans N, Meñaca A, Higginson IJ, Harding R, Pool R; Project PRISMA.

PLoS One. 2013 Jul 3;8(7):e68002. doi: 10.1371/journal.pone.0068002. Print 2013.


'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study.

Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, Gwyther L, Mashao T, Mmoledi K, Moll T, Sebuyira LM, Ikin B, Higginson IJ, Harding R.

Health Qual Life Outcomes. 2013 Jun 10;11:94. doi: 10.1186/1477-7525-11-94.


Living with breathlessness: a survey of caregivers of breathless patients with lung cancer or heart failure.

Malik FA, Gysels M, Higginson IJ.

Palliat Med. 2013 Jul;27(7):647-56. doi: 10.1177/0269216313488812. Epub 2013 May 23.


Priorities for treatment, care and information if faced with serious illness: a comparative population-based survey in seven European countries.

Higginson IJ, Gomes B, Calanzani N, Gao W, Bausewein C, Daveson BA, Deliens L, Ferreira PL, Toscani F, Gysels M, Ceulemans L, Simon ST, Cohen J, Harding R; Project PRISMA.

Palliat Med. 2014 Feb;28(2):101-10. doi: 10.1177/0269216313488989. Epub 2013 May 23.


MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research.

Gysels M, Evans CJ, Lewis P, Speck P, Benalia H, Preston NJ, Grande GE, Short V, Owen-Jones E, Todd CJ, Higginson IJ.

Palliat Med. 2013 Dec;27(10):908-17. doi: 10.1177/0269216313488018. Epub 2013 May 21.


The selection and use of outcome measures in palliative and end-of-life care research: the MORECare International Consensus Workshop.

Evans CJ, Benalia H, Preston NJ, Grande G, Gysels M, Short V, Daveson BA, Bausewein C, Todd C, Higginson IJ; MORECare.

J Pain Symptom Manage. 2013 Dec;46(6):925-37. doi: 10.1016/j.jpainsymman.2013.01.010. Epub 2013 Apr 28.


Evaluating complex interventions in end of life care: the MORECare statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews.

Higginson IJ, Evans CJ, Grande G, Preston N, Morgan M, McCrone P, Lewis P, Fayers P, Harding R, Hotopf M, Murray SA, Benalia H, Gysels M, Farquhar M, Todd C; MORECare.

BMC Med. 2013 Apr 24;11:111. doi: 10.1186/1741-7015-11-111. Review.


If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis.

Harding R, Simms V, Calanzani N, Higginson IJ, Hall S, Gysels M, Meñaca A, Bausewein C, Deliens L, Ferreira P, Toscani F, Daveson BA, Ceulemans L, Gomes B; PRISMA.

Psychooncology. 2013 Oct;22(10):2298-305. doi: 10.1002/pon.3283. Epub 2013 Mar 18.


'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries.

Bausewein C, Calanzani N, Daveson BA, Simon ST, Ferreira PL, Higginson IJ, Bechinger-English D, Deliens L, Gysels M, Toscani F, Ceulemans L, Harding R, Gomes B; PRISMA.

BMC Cancer. 2013 Mar 8;13:105. doi: 10.1186/1471-2407-13-105.


Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe.

Daveson BA, Alonso JP, Calanzani N, Ramsenthaler C, Gysels M, Antunes B, Moens K, Groeneveld EI, Albers G, Finetti S, Pettenati F, Bausewein C, Higginson IJ, Harding R, Deliens L, Toscani F, Ferreira PL, Ceulemans L, Gomes B; PRISMA.

Eur J Public Health. 2014 Jun;24(3):521-7. doi: 10.1093/eurpub/ckt029. Epub 2013 Mar 13.


Episodes of breathlessness: types and patterns - a qualitative study exploring experiences of patients with advanced diseases.

Simon ST, Higginson IJ, Benalia H, Gysels M, Murtagh FE, Spicer J, Bausewein C.

Palliat Med. 2013 Jun;27(6):524-32. doi: 10.1177/0269216313480255. Epub 2013 Mar 13.


To be involved or not to be involved: a survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe.

Daveson BA, Bausewein C, Murtagh FE, Calanzani N, Higginson IJ, Harding R, Cohen J, Simon ST, Deliens L, Bechinger-English D, Hall S, Koffman J, Ferreira PL, Toscani F, Gysels M, Ceulemans L, Haugen DF, Gomes B; PRISMA.

Palliat Med. 2013 May;27(5):418-27. doi: 10.1177/0269216312471883. Epub 2013 Feb 20.


Heterogeneity and changes in preferences for dying at home: a systematic review.

Gomes B, Calanzani N, Gysels M, Hall S, Higginson IJ.

BMC Palliat Care. 2013 Feb 15;12:7. doi: 10.1186/1472-684X-12-7.


Episodic and continuous breathlessness: a new categorization of breathlessness.

Simon ST, Higginson IJ, Benalia H, Gysels M, Murtagh FE, Spicer J, Bausewein C.

J Pain Symptom Manage. 2013 Jun;45(6):1019-29. doi: 10.1016/j.jpainsymman.2012.06.008. Epub 2012 Sep 25.

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