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EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services - Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement.

Bausewein C, Daveson BA, Currow DC, Downing J, Deliens L, Radbruch L, Defilippi K, Lopes Ferreira P, Costantini M, Harding R, Higginson IJ.

Palliat Med. 2015 Jun 11. pii: 0269216315589898. [Epub ahead of print] Review.


Results of a transparent expert consultation on patient and public involvement in palliative care research.

Daveson BA, de Wolf-Linder S, Witt J, Newson K, Morris C, Higginson IJ, Evans CJ; BuildCARE.

Palliat Med. 2015 Apr 30. pii: 0269216315584875. [Epub ahead of print]


Emergency department attendance by patients with cancer in their last month of life: a systematic review and meta-analysis.

Henson LA, Gao W, Higginson IJ, Smith M, Davies JM, Ellis-Smith C, Daveson BA.

J Clin Oncol. 2015 Feb 1;33(4):370-6. doi: 10.1200/JCO.2014.57.3568. Epub 2014 Dec 22. Review.


The need for palliative care in ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions.

Kane PM, Daveson BA, Ryan K, McQuillan R, Higginson IJ, Murtagh FE; BuildCARE.

J Pain Symptom Manage. 2015 Apr;49(4):726-733.e1. doi: 10.1016/j.jpainsymman.2014.09.011. Epub 2014 Nov 8.


Avoid 'prognostic paralysis'--just get ahead and plan and co-ordinate care.

Epiphaniou E, Shipman C, Harding R, Mason B, Murray SA, Higginson IJ, Daveson BA.

NPJ Prim Care Respir Med. 2014 Oct 9;24:14085. doi: 10.1038/npjpcrm.2014.85. No abstract available.


Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review.

Etkind SN, Daveson BA, Kwok W, Witt J, Bausewein C, Higginson IJ, Murtagh FE.

J Pain Symptom Manage. 2015 Mar;49(3):611-24. doi: 10.1016/j.jpainsymman.2014.07.010. Epub 2014 Aug 15. Review.


'My body's falling apart.' Understanding the experiences of patients with advanced multimorbidity to improve care: serial interviews with patients and carers.

Mason B, Nanton V, Epiphaniou E, Murray SA, Donaldson A, Shipman C, Daveson BA, Harding R, Higginson IJ, Munday D, Barclay S, Dale J, Kendall M, Worth A, Boyd K.

BMJ Support Palliat Care. 2014 May 28. pii: bmjspcare-2013-000639. doi: 10.1136/bmjspcare-2013-000639. [Epub ahead of print]


Place and cause of death in centenarians: a population-based observational study in England, 2001 to 2010.

Evans CJ, Ho Y, Daveson BA, Hall S, Higginson IJ, Gao W; GUIDE_Care project.

PLoS Med. 2014 Jun 3;11(6):e1001653. doi: 10.1371/journal.pmed.1001653. eCollection 2014 Jun.


The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers.

Daveson BA, Harding R, Shipman C, Mason BL, Epiphaniou E, Higginson IJ, Ellis-Smith C, Henson L, Munday D, Nanton V, Dale JR, Boyd K, Worth A, Barclay S, Donaldson A, Murray S.

PLoS One. 2014 May 2;9(5):e95523. doi: 10.1371/journal.pone.0095523. eCollection 2014.


Public preferences and priorities for end-of-life care in Kenya: a population-based street survey.

Downing J, Gomes B, Gikaara N, Munene G, Daveson BA, Powell RA, Mwangi-Powell FN, Higginson IJ, Harding R; Project PRISMA.

BMC Palliat Care. 2014 Feb 15;13(1):4. doi: 10.1186/1472-684X-13-4.


Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study.

Epiphaniou E, Shipman C, Harding R, Mason B, Murray SA, Higginson IJ, Daveson BA.

Prim Care Respir J. 2014 Mar;23(1):46-51. doi: 10.4104/pcrj.2014.00004.


Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries.

Calanzani N, Moens K, Cohen J, Higginson IJ, Harding R, Deliens L, Toscani F, Ferreira PL, Bausewein C, Daveson BA, Gysels M, Ceulemans L, Gomes B; Project PRISMA.

BMC Palliat Care. 2014 Oct 23;13:48. doi: 10.1186/1472-684X-13-48.


"A quiet still voice that just touches": music's relevance for adults living with life-threatening cancer diagnoses.

O'Callaghan CC, McDermott F, Michael N, Daveson BA, Hudson PL, Zalcberg JR.

Support Care Cancer. 2014 Apr;22(4):1037-47. doi: 10.1007/s00520-013-2059-1. Epub 2013 Nov 28.


Music therapy assessment tool for awareness in disorders of consciousness (MATADOC): standardisation of the principal subscale to assess awareness in patients with disorders of consciousness.

Magee WL, Siegert RJ, Daveson BA, Lenton-Smith G, Taylor SM.

Neuropsychol Rehabil. 2014;24(1):101-24. doi: 10.1080/09602011.2013.844174. Epub 2013 Oct 18.


Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study.

Mason B, Epiphaniou E, Nanton V, Donaldson A, Shipman C, Daveson BA, Harding R, Higginson I, Munday D, Barclay S, Boyd K, Dale J, Kendall M, Worth A, Murray SA.

Br J Gen Pract. 2013 Aug;63(613):e580-8. doi: 10.3399/bjgp13X670714.


Priorities for treatment, care and information if faced with serious illness: a comparative population-based survey in seven European countries.

Higginson IJ, Gomes B, Calanzani N, Gao W, Bausewein C, Daveson BA, Deliens L, Ferreira PL, Toscani F, Gysels M, Ceulemans L, Simon ST, Cohen J, Harding R; Project PRISMA.

Palliat Med. 2014 Feb;28(2):101-10. doi: 10.1177/0269216313488989. Epub 2013 May 23.


The selection and use of outcome measures in palliative and end-of-life care research: the MORECare International Consensus Workshop.

Evans CJ, Benalia H, Preston NJ, Grande G, Gysels M, Short V, Daveson BA, Bausewein C, Todd C, Higginson IJ; MORECare.

J Pain Symptom Manage. 2013 Dec;46(6):925-37. doi: 10.1016/j.jpainsymman.2013.01.010. Epub 2013 Apr 28.


If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis.

Harding R, Simms V, Calanzani N, Higginson IJ, Hall S, Gysels M, MeƱaca A, Bausewein C, Deliens L, Ferreira P, Toscani F, Daveson BA, Ceulemans L, Gomes B; PRISMA.

Psychooncology. 2013 Oct;22(10):2298-305. doi: 10.1002/pon.3283. Epub 2013 Mar 18.


'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries.

Bausewein C, Calanzani N, Daveson BA, Simon ST, Ferreira PL, Higginson IJ, Bechinger-English D, Deliens L, Gysels M, Toscani F, Ceulemans L, Harding R, Gomes B; PRISMA.

BMC Cancer. 2013 Mar 8;13:105. doi: 10.1186/1471-2407-13-105.


Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe.

Daveson BA, Alonso JP, Calanzani N, Ramsenthaler C, Gysels M, Antunes B, Moens K, Groeneveld EI, Albers G, Finetti S, Pettenati F, Bausewein C, Higginson IJ, Harding R, Deliens L, Toscani F, Ferreira PL, Ceulemans L, Gomes B; PRISMA.

Eur J Public Health. 2014 Jun;24(3):521-7. doi: 10.1093/eurpub/ckt029. Epub 2013 Mar 13.

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