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Items: 1 to 20 of 22

1.

Tailoring the process of informed consent in genetic and genomic research.

Rotimi CN, Marshall PA.

Genome Med. 2010 Mar 24;2(3):20. doi: 10.1186/gm141.

2.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408
3.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

4.

The tension between data sharing and the protection of privacy in genomics research.

Kaye J.

Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

5.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
6.

Informed consent in genetic research.

Williams ED.

Croat Med J. 2001 Aug;42(4):450-6. Review.

7.

Ethical and practical challenges in implementing informed consent in HIV/AIDS clinical trials in developing or resource-limited countries.

Mystakidou K, Panagiotou I, Katsaragakis S, Tsilika E, Parpa E.

SAHARA J. 2009 Sep;6(2):46-57. Review.

PMID:
19936406
8.

Cardiovascular genomics, personalized medicine, and the National Heart, Lung, and Blood Institute: part I: the beginning of an era.

O'Donnell CJ, Nabel EG.

Circ Cardiovasc Genet. 2008 Oct;1(1):51-7. doi: 10.1161/CIRCGENETICS.108.813337. Review.

9.

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Ries NM, LeGrandeur J, Caulfield T.

BMC Med Ethics. 2010 Mar 23;11:4. doi: 10.1186/1472-6939-11-4. Review.

10.

The ethical use of existing samples for genome research.

Bathe OF, McGuire AL.

Genet Med. 2009 Oct;11(10):712-5. doi: 10.1097/GIM.0b013e3181b2e168. Review.

PMID:
19745750
11.

Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?

Groisman IJ, Mathieu G, Godard B.

BMC Med Ethics. 2012 Dec 20;13:36. doi: 10.1186/1472-6939-13-36. Review.

12.

Audio-visual presentation of information for informed consent for participation in clinical trials.

Ryan RE, Prictor MJ, McLaughlin KJ, Hill SJ.

Cochrane Database Syst Rev. 2008 Jan 23;(1):CD003717. doi: 10.1002/14651858.CD003717.pub2. Review. Update in: Cochrane Database Syst Rev. 2014;5:CD003717.

PMID:
18254029
13.

Improving informed consent: insights from behavioral decision research.

Holmes-Rovner M, Wills CE.

Med Care. 2002 Sep;40(9 Suppl):V30-8. Review.

PMID:
12226583
14.

Using electronic health records to drive discovery in disease genomics.

Kohane IS.

Nat Rev Genet. 2011 Jun;12(6):417-28. doi: 10.1038/nrg2999. Epub 2011 May 18. Review.

PMID:
21587298
15.

Informed consent for genetic research on stored tissue samples.

Clayton EW, Steinberg KK, Khoury MJ, Thomson E, Andrews L, Kahn MJ, Kopelman LM, Weiss JO.

JAMA. 1995 Dec 13;274(22):1786-92. Review.

PMID:
7500511
16.

Ethical issues raised by whole genome sequencing.

Pinxten W, Howard HC.

Best Pract Res Clin Gastroenterol. 2014 Apr;28(2):269-79. doi: 10.1016/j.bpg.2014.02.004. Epub 2014 Mar 12. Review.

PMID:
24810188
17.

[Ethical issues in personal genome research].

Kato K, Minari J.

Brain Nerve. 2013 Mar;65(3):267-72. Review. Japanese.

PMID:
23475518
18.

Informed consent for clinical trials: a review.

Lema VM, Mbondo M, Kamau EM.

East Afr Med J. 2009 Mar;86(3):133-42. Review.

PMID:
19702101
19.

Informed consent and decision-making about adult-to-adult living donor liver transplantation: a systematic review of empirical research.

Gordon EJ, Daud A, Caicedo JC, Cameron KA, Jay C, Fryer J, Beauvais N, Skaro A, Baker T.

Transplantation. 2011 Dec 27;92(12):1285-96. doi: 10.1097/TP.0b013e31823817d5. Review.

PMID:
22143436
20.

Waiver of informed consent in pediatric resuscitation research: a systematic review.

Eltorki M, Uleryk E, Freedman SB.

Acad Emerg Med. 2013 Aug;20(8):822-34. doi: 10.1111/acem.12180. Review.

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