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Items: 20

1.

Conducting Precision Medicine Research with African Americans.

Halbert CH, McDonald J, Vadaparampil S, Rice L, Jefferson M.

PLoS One. 2016 Jul 21;11(7):e0154850. doi: 10.1371/journal.pone.0154850. eCollection 2016.

2.

Participant views on consent in cancer genetics research: preparing for the precision medicine era.

Edwards KL, Korngiebel DM, Pfeifer L, Goodman D, Renz A, Wenzel L, Bowen DJ, Condit CM.

J Community Genet. 2016 Apr;7(2):133-43. doi: 10.1007/s12687-015-0259-8. Epub 2016 Jan 22.

3.

Factors Motivating Individuals to Consider Genetic Testing for Type 2 Diabetes Risk Prediction.

Wessel J, Gupta J, de Groot M.

PLoS One. 2016 Jan 20;11(1):e0147071. doi: 10.1371/journal.pone.0147071. eCollection 2016.

4.

Participant use and communication of findings from exome sequencing: a mixed-methods study.

Lewis KL, Hooker GW, Connors PD, Hyams TC, Wright MF, Caldwell S, Biesecker LG, Biesecker BB.

Genet Med. 2016 Jun;18(6):577-83. doi: 10.1038/gim.2015.133. Epub 2015 Nov 5.

5.

Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research.

Skinner HG, Calancie L, Vu MB, Garcia B, DeMarco M, Patterson C, Ammerman A, Schisler JC.

PLoS One. 2015 May 4;10(5):e0125466. doi: 10.1371/journal.pone.0125466. eCollection 2015.

6.
7.

Genomic data-sharing: what will be our legacy?

Callier S, Husain R, Simpson R.

Front Genet. 2014 Mar 5;5:34. doi: 10.3389/fgene.2014.00034. eCollection 2014.

8.

Patient characteristics and participation in a genetic study: a type 2 diabetes cohort.

Amiri L, Cassidy-Bushrow AE, Dakki H, Li J, Wells K, Oliveria SA, Yood MU, Thomas A, Lanfear DE.

J Investig Med. 2014 Jan;62(1):26-32. doi: 10.2310/JIM.0000000000000022.

9.

Preferences for results delivery from exome sequencing/genome sequencing.

Wright MF, Lewis KL, Fisher TC, Hooker GW, Emanuel TE, Biesecker LG, Biesecker BB.

Genet Med. 2014 Jun;16(6):442-7. doi: 10.1038/gim.2013.170. Epub 2013 Dec 5.

10.

Acceptance of Asthma Pharmacogenetic Study by Children and Adults.

Wu AC, Davis R, Tantisira K, Dutta-Linn MM, Hemmes M, Weiss ST.

J Pharmacogenomics Pharmacoproteomics. 2011 Apr 4;2(103). pii: 1000103.

11.

Understanding participation by African Americans in cancer genetics research.

McDonald JA, Barg FK, Weathers B, Guerra CE, Troxel AB, Domchek S, Bowen D, Shea JA, Halbert CH.

J Natl Med Assoc. 2012 Jul-Aug;104(7-8):324-30.

12.

Consent for use of clinical leftover biosample: a survey among Chinese patients and the general public.

Ma Y, Dai H, Wang L, Zhu L, Zou H, Kong X.

PLoS One. 2012;7(4):e36050. doi: 10.1371/journal.pone.0036050. Epub 2012 Apr 27.

13.

Considerations in the construction of an instrument to assess attitudes regarding critical illness gene variation research.

Freeman BD, Kennedy CR, Bolcic-Jankovic D, Eastman A, Iverson E, Shehane E, Celious A, Barillas J, Clarridge B.

J Empir Res Hum Res Ethics. 2012 Feb;7(1):58-70. doi: 10.1525/jer.2012.7.1.58.

14.

Donation intentions for cancer genetics research among African Americans.

McDonald JA, Weathers B, Barg FK, Troxel AB, Shea JA, Bowen D, Guerra CE, Halbert CH.

Genet Test Mol Biomarkers. 2012 Apr;16(4):252-8. doi: 10.1089/gtmb.2011.0119. Epub 2012 Jan 6.

15.

Biobank Recruitment: Motivations for Nonparticipation.

Goddard KA, Smith KS, Chen C, McMullen C, Johnson C.

Biopreserv Biobank. 2009 Jun;7(2):119-121.

16.

Two large-scale surveys on community attitudes toward an opt-out biobank.

Brothers KB, Morrison DR, Clayton EW.

Am J Med Genet A. 2011 Dec;155A(12):2982-90. doi: 10.1002/ajmg.a.34304. Epub 2011 Nov 7.

17.

Motivations and perceptions of early adopters of personalized genomics: perspectives from research participants.

Gollust SE, Gordon ES, Zayac C, Griffin G, Christman MF, Pyeritz RE, Wawak L, Bernhardt BA.

Public Health Genomics. 2012;15(1):22-30. doi: 10.1159/000327296. Epub 2011 Jun 3.

18.

Public and biobank participant attitudes toward genetic research participation and data sharing.

Lemke AA, Wolf WA, Hebert-Beirne J, Smith ME.

Public Health Genomics. 2010;13(6):368-77. doi: 10.1159/000276767. Epub 2010 Jan 15.

19.

The role of race and trust in tissue/blood donation for genetic research.

Bussey-Jones J, Garrett J, Henderson G, Moloney M, Blumenthal C, Corbie-Smith G.

Genet Med. 2010 Feb;12(2):116-21. doi: 10.1097/GIM.0b013e3181cd6689.

20.

Brief report: Under-representation of African americans in autism genetic research: a rationale for inclusion of subjects representing diverse family structures.

Hilton CL, Fitzgerald RT, Jackson KM, Maxim RA, Bosworth CC, Shattuck PT, Geschwind DH, Constantino JN.

J Autism Dev Disord. 2010 May;40(5):633-9. doi: 10.1007/s10803-009-0905-2.

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