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Items: 1 to 20 of 106

1.

Help or hindrance: young people's experiences of predictive testing for Huntington's disease.

Forrest Keenan K, McKee L, Miedzybrodzka Z.

Clin Genet. 2015 Jun;87(6):563-9. doi: 10.1111/cge.12439. Epub 2014 Jul 26.

PMID:
24891047
2.

Young people's experiences of growing up in a family affected by Huntington's disease.

Forrest Keenan K, Miedzybrodzka Z, van Teijlingen E, McKee L, Simpson SA.

Clin Genet. 2007 Feb;71(2):120-9.

PMID:
17250660
3.
4.

How young people find out about their family history of Huntington's disease.

Forrest Keenan K, van Teijlingen E, McKee L, Miedzybrodzka Z, Simpson SA.

Soc Sci Med. 2009 May;68(10):1892-900. doi: 10.1016/j.socscimed.2009.02.049. Epub 2009 Mar 26.

PMID:
19328606
5.

Psychological functioning before predictive testing for Huntington's disease: the role of the parental disease, risk perception, and subjective proximity of the disease.

Decruyenaere M, Evers-Kiebooms G, Boogaerts A, Cassiman JJ, Cloostermans T, Demyttenaere K, Dom R, Fryns JP.

J Med Genet. 1999 Dec;36(12):897-905.

6.

Experiences of predictive testing in young people at risk of Huntington's disease, familial cardiomyopathy or hereditary breast and ovarian cancer.

MacLeod R, Beach A, Henriques S, Knopp J, Nelson K, Kerzin-Storrar L.

Eur J Hum Genet. 2014 Mar;22(3):396-401. doi: 10.1038/ejhg.2013.143. Epub 2013 Jul 17.

7.

"Holding your breath": interviews with young people who have undergone predictive genetic testing for Huntington disease.

Duncan RE, Gillam L, Savulescu J, Williamson R, Rogers JG, Delatycki MB.

Am J Med Genet A. 2007 Sep 1;143A(17):1984-9.

PMID:
17663467
8.

Perception of predictive testing for Huntington's disease by young women: preferring uncertainty to certainty?

Decruyenaere M, Evers-Kiebooms G, Van den Berghe H.

J Med Genet. 1993 Jul;30(7):557-61.

9.

Predictive testing for Huntington's disease: relationship with partners after testing.

Decruyenaere M, Evers-Kiebooms G, Cloostermans T, Boogaerts A, Demyttenaere K, Dom R, Fryns JP.

Clin Genet. 2004 Jan;65(1):24-31.

PMID:
15032971
10.

Predictive testing for Huntington's disease: ten years' experience in two Italian centres.

Mandich P, Jacopini G, Di Maria E, Sabbadini G, Abbruzzese G, Chimirri F, Bellone E, Novelletto A, Ajmar F, Frontali M.

Ital J Neurol Sci. 1998 Apr;19(2):68-74. Erratum in: Ital J Neurol Sci 1998 Jun;19(3):149.

PMID:
10935839
11.

Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey.

Bombard Y, Veenstra G, Friedman JM, Creighton S, Currie L, Paulsen JS, Bottorff JL, Hayden MR; Canadian Respond-HD Collaborative Research Group.

BMJ. 2009 Jun 9;338:b2175. doi: 10.1136/bmj.b2175.

12.

Predictive gene testing for Huntington disease and other neurodegenerative disorders.

Wedderburn S, Panegyres PK, Andrew S, Goldblatt J, Liebeck T, McGrath F, Wiltshire M, Pestell C, Lee J, Beilby J.

Intern Med J. 2013 Dec;43(12):1272-9. doi: 10.1111/imj.12176.

PMID:
23654213
13.

Decreasing uptake of predictive testing for Huntington's disease in a German centre: 12 years' experience (1993-2004).

Bernhardt C, Schwan AM, Kraus P, Epplen JT, Kunstmann E.

Eur J Hum Genet. 2009 Mar;17(3):295-300. doi: 10.1038/ejhg.2008.164. Epub 2008 Sep 10.

14.

Analysis of the Reasons for Non-Uptake of Predictive Testing for Huntington's Disease in Spain: A Qualitative Study.

Rivera-Navarro J, Cubo E, Mariscal N.

J Genet Couns. 2015 Dec;24(6):1011-21. doi: 10.1007/s10897-015-9840-x. Epub 2015 Apr 30.

PMID:
25921556
15.
16.

"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).

Duncan RE, Gillam L, Savulescu J, Williamson R, Rogers JG, Delatycki MB.

Am J Med Genet C Semin Med Genet. 2008 Feb 15;148C(1):47-55. doi: 10.1002/ajmg.c.30158.

PMID:
18189288
17.

The utilization and outcome of diagnostic, predictive, and prenatal genetic testing for huntington disease in johannesburg, South Africa.

Sizer EB, Haw T, Wessels TM, Kromberg JG, Krause A.

Genet Test Mol Biomarkers. 2012 Jan;16(1):58-62. doi: 10.1089/gtmb.2011.0007. Epub 2011 Aug 12.

PMID:
21838519
18.

To know or not to know: a review of behaviour and suicidal ideation in preclinical Huntington's disease.

Robins Wahlin TB.

Patient Educ Couns. 2007 Mar;65(3):279-87. Epub 2006 Sep 26. Review.

PMID:
17000074
19.

The prenatal exclusion test for Huntington's disease: experience in the west of Scotland, 1986-1993.

Tolmie JL, Davidson HR, May HM, McIntosh K, Paterson JS, Smith B.

J Med Genet. 1995 Feb;32(2):97-101.

20.

The complexity of reproductive decision-making in asymptomatic carriers of the Huntington mutation.

Decruyenaere M, Evers-Kiebooms G, Boogaerts A, Philippe K, Demyttenaere K, Dom R, Vandenberghe W, Fryns JP.

Eur J Hum Genet. 2007 Apr;15(4):453-62. Epub 2007 Jan 24.

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