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Items: 1 to 20 of 135

1.

Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care.

Hogden A, Greenfield D, Nugus P, Kiernan MC.

Health Expect. 2015 Oct;18(5):1769-82. doi: 10.1111/hex.12169. Epub 2013 Dec 23.

PMID:
24372800
2.

What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?

Hogden A, Greenfield D, Nugus P, Kiernan MC.

Patient Prefer Adherence. 2013;7:171-81. doi: 10.2147/PPA.S40783. Epub 2013 Feb 28.

3.

What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives.

Hogden A, Greenfield D, Nugus P, Kiernan MC.

Patient Prefer Adherence. 2012;6:829-38. doi: 10.2147/PPA.S37851. Epub 2012 Nov 27.

4.

Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals.

Hogden A, Greenfield D, Nugus P, Kiernan MC.

Patient Prefer Adherence. 2012;6:691-701. doi: 10.2147/PPA.S36759. Epub 2012 Sep 27.

5.

Living with amyotrophic lateral sclerosis/motor neurone disease (ALS/MND): decision-making about 'ongoing change and adaptation'.

King SJ, Duke MM, O'Connor BA.

J Clin Nurs. 2009 Mar;18(5):745-54. doi: 10.1111/j.1365-2702.2008.02671.x.

PMID:
19239541
6.

Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): a prospective population study.

Martin NH, Landau S, Janssen A, Lyall R, Higginson I, Burman R, McCrone P, Sakel M, Ellis CM, Shaw CE, Al-Chalabi A, Leigh PN, Goldstein LH.

Amyotroph Lateral Scler Frontotemporal Degener. 2014 Sep;15(5-6):376-87. doi: 10.3109/21678421.2014.886700. Epub 2014 Mar 6.

PMID:
24597488
7.

Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers and professionals.

Bakker M, Creemers H, Schipper K, Beelen A, Grupstra H, Nollet F, Abma T.

Amyotroph Lateral Scler Frontotemporal Degener. 2015 Jun;16(3-4):180-6. doi: 10.3109/21678421.2014.971811. Epub 2015 Jan 22.

PMID:
25611162
8.
9.

Optimizing patient autonomy in amyotrophic lateral sclerosis: inclusive decision-making in multidisciplinary care.

Hogden A.

Neurodegener Dis Manag. 2014;4(1):1-3. doi: 10.2217/nmt.13.71. No abstract available.

10.

Acceptance and decision making in amyotrophic lateral sclerosis from a life-course perspective.

Foley G, Timonen V, Hardiman O.

Qual Health Res. 2014 Jan;24(1):67-77. doi: 10.1177/1049732313516545. Epub 2013 Dec 13.

PMID:
24336481
12.

Development and validation of the Family Decision-Making Self-Efficacy Scale.

Nolan MT, Hughes MT, Kub J, Terry PB, Astrow A, Thompson RE, Clawson L, Texeira K, Sulmasy DP.

Palliat Support Care. 2009 Sep;7(3):315-21. doi: 10.1017/S1478951509990241.

13.

Major stressors facing patients with amyotrophic lateral sclerosis (ALS): a survey to identify their concerns and to compare with those of their caregivers.

Trail M, Nelson N, Van JN, Appel SH, Lai EC.

Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 Mar;5(1):40-5.

PMID:
15204023
14.

Exerting control and adapting to loss in amyotrophic lateral sclerosis.

Foley G, Timonen V, Hardiman O.

Soc Sci Med. 2014 Jan;101:113-9. doi: 10.1016/j.socscimed.2013.11.003. Epub 2013 Nov 18.

PMID:
24560231
15.

Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives.

Bede P, Oliver D, Stodart J, van den Berg L, Simmons Z, O Brannagáin D, Borasio GD, Hardiman O.

J Neurol Neurosurg Psychiatry. 2011 Apr;82(4):413-8. doi: 10.1136/jnnp.2010.232637. Epub 2011 Feb 5. Review.

PMID:
21297150
16.

Family health care decision making and self-efficacy with patients with ALS at the end of life.

Nolan MT, Kub J, Hughes MT, Terry PB, Astrow AB, Carbo CA, Thompson RE, Clawson L, Texeira K, Sulmasy DP.

Palliat Support Care. 2008 Sep;6(3):273-80. doi: 10.1017/S1478951508000412.

17.

Patient journey to a specialist amyotrophic lateral sclerosis multidisciplinary clinic: an exploratory study.

Galvin M, Madden C, Maguire S, Heverin M, Vajda A, Staines A, Hardiman O.

BMC Health Serv Res. 2015 Dec 23;15:571. doi: 10.1186/s12913-015-1229-x.

18.

Communication styles of persons with ALS as recounted by surviving partners.

McKelvey M, Evans DL, Kawai N, Beukelman D.

Augment Altern Commun. 2012 Dec;28(4):232-42. doi: 10.3109/07434618.2012.737023.

PMID:
23256855
19.
20.

Patients' perceptions of services and preferences for care in amyotrophic lateral sclerosis: a review.

Foley G, Timonen V, Hardiman O.

Amyotroph Lateral Scler. 2012 Jan;13(1):11-24. doi: 10.3109/17482968.2011.607500. Epub 2011 Aug 31. Review.

PMID:
21879834
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