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Results: 1 to 20 of 103

1.

Understanding the experiences of youth living with sickle cell disease: a photovoice pilot.

Valenzuela JM, Vaughn LM, Crosby LE, Strong H, Kissling A, Mitchell MJ.

Fam Community Health. 2013 Apr-Jun;36(2):97-108. doi: 10.1097/FCH.0b013e318282b2f2.

PMID:
23455680
[PubMed - indexed for MEDLINE]
Free PMC Article
2.

Using photovoice to explore the unique life perspectives of youth with sickle cell disease: a pilot study.

Stegenga K, Burks LM.

J Pediatr Oncol Nurs. 2013 Sep-Oct;30(5):269-74. doi: 10.1177/1043454213493508. Epub 2013 Aug 20.

PMID:
23962960
[PubMed - indexed for MEDLINE]
3.

Care seeking for pain in young adults with sickle cell disease.

Jenerette CM, Brewer CA, Ataga KI.

Pain Manag Nurs. 2014 Mar;15(1):324-30. doi: 10.1016/j.pmn.2012.10.007. Epub 2013 Jan 21.

PMID:
23343879
[PubMed - indexed for MEDLINE]
Free PMC Article
4.

Feasibility of web-based technology to assess adherence to clinic appointments in youth with sickle cell disease.

Modi AC, Crosby LE, Hines J, Drotar D, Mitchell MJ.

J Pediatr Hematol Oncol. 2012 Apr;34(3):e93-6. doi: 10.1097/MPH.0b013e318240d531.

PMID:
22278205
[PubMed - indexed for MEDLINE]
Free PMC Article
5.

Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.

Smith GM, Lewis VR, Whitworth E, Gold DT, Thornburg CD.

J Pediatr Hematol Oncol. 2011 Jul;33(5):379-82. doi: 10.1097/MPH.0b013e318211bb2e.

PMID:
21602723
[PubMed - indexed for MEDLINE]
6.

Sickle cell disease: current activities, public health implications, and future directions.

Creary M, Williamson D, Kulkarni R.

J Womens Health (Larchmt). 2007 Jun;16(5):575-82. Review.

PMID:
17627395
[PubMed - indexed for MEDLINE]
7.

Validation of the sickle cell disease pain burden interview-youth.

Zempsky WT, O'Hara EA, Santanelli JP, Palermo TM, New T, Smith-Whitley K, Casella JF.

J Pain. 2013 Sep;14(9):975-82. doi: 10.1016/j.jpain.2013.03.007. Epub 2013 May 20.

PMID:
23701707
[PubMed - indexed for MEDLINE]
Free PMC Article
8.

Barriers to hematopoietic cell transplantation clinical trial participation of african american and black youth with sickle cell disease and their parents.

Omondi NA, Ferguson SE, Majhail NS, Denzen EM, Buchanan GR, Haight AE, Labotka RJ, Rizzo JD, Murphy EA.

J Pediatr Hematol Oncol. 2013 May;35(4):289-98. doi: 10.1097/MPH.0b013e31828d5e6a.

PMID:
23612380
[PubMed - indexed for MEDLINE]
Free PMC Article
9.

Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA, Alexander E, Davis M, Rennick J, Troini R.

Pediatrics. 2006 Jan;117(1):e48-60.

PMID:
16396848
[PubMed - indexed for MEDLINE]
10.

Correlates of pain-rating concordance for adolescents with sickle cell disease and their caregivers.

Barakat LP, Simon K, Schwartz LA, Radcliffe J.

Clin J Pain. 2008 Jun;24(5):438-46. doi: 10.1097/AJP.0b013e3181646038.

PMID:
18496309
[PubMed - indexed for MEDLINE]
11.

Perceived facilitators and barriers to physical activity for rural youth: an exploratory study using photovoice.

Walia S, Leipert B.

Rural Remote Health. 2012;12:1842. Epub 2012 Jan 23.

PMID:
22283830
[PubMed - indexed for MEDLINE]
Free Article
12.

Health status and healthcare use in a national sample of children with sickle cell disease.

Boulet SL, Yanni EA, Creary MS, Olney RS.

Am J Prev Med. 2010 Apr;38(4 Suppl):S528-35. doi: 10.1016/j.amepre.2010.01.003.

PMID:
20331954
[PubMed - indexed for MEDLINE]
13.

Transition and sickle cell disease.

DeBaun MR, Telfair J.

Pediatrics. 2012 Nov;130(5):926-35. doi: 10.1542/peds.2011-3049. Epub 2012 Oct 1. Review.

PMID:
23027174
[PubMed - indexed for MEDLINE]
Free Article
14.

Living with sickle cell disease: traversing 'race' and identity.

Royal CD, Jonassaint CR, Jonassaint JC, De Castro LM.

Ethn Health. 2011 Aug-Oct;16(4-5):389-404. doi: 10.1080/13557858.2011.563283.

PMID:
21797725
[PubMed - indexed for MEDLINE]
15.

Voices of Adults Living with Sickle Cell Disease Pain.

Adegbola MA, Barnes DM, Opollo JG, Herr K, Gray J, McCarthy AM.

J Natl Black Nurses Assoc. 2012 Dec;23(2):16-23.

PMID:
25003809
[PubMed]
Free PMC Article
16.

Health related quality of life among adolescents with sickle cell disease in Saudi Arabia.

Amr MA, Amin TT, Al-Omair OA.

Pan Afr Med J. 2011;8:10. Epub 2011 Feb 15.

PMID:
22121419
[PubMed - indexed for MEDLINE]
Free PMC Article
17.

A transition pilot program for adolescents with sickle cell disease.

Hankins JS, Osarogiagbon R, Adams-Graves P, McHugh L, Steele V, Smeltzer MP, Anderson SM.

J Pediatr Health Care. 2012 Nov-Dec;26(6):e45-9. doi: 10.1016/j.pedhc.2012.06.004. Epub 2012 Jul 19.

PMID:
22819193
[PubMed - indexed for MEDLINE]
18.

Reproductive decisions in people with sickle cell disease or sickle cell trait.

Gallo AM, Wilkie D, Suarez M, Labotka R, Molokie R, Thompson A, Hershberger P, Johnson B.

West J Nurs Res. 2010 Dec;32(8):1073-90. doi: 10.1177/0193945910371482. Epub 2010 Aug 11.

PMID:
20702680
[PubMed - indexed for MEDLINE]
Free PMC Article
19.

Multidimensional assessment of pain in pediatric sickle cell disease.

Graumlich SE, Powers SW, Byars KC, Schwarber LA, Mitchell MJ, Kalinyak KA.

J Pediatr Psychol. 2001 Jun;26(4):203-14.

PMID:
11329480
[PubMed - indexed for MEDLINE]
Free Article
20.

The Teen Photovoice Project: a pilot study to promote health through advocacy.

Necheles JW, Chung EQ, Hawes-Dawson J, Ryan GW, Williams SB, Holmes HN, Wells KB, Vaiana ME, Schuster MA.

Prog Community Health Partnersh. 2007 Fall;1(3):221-9. doi: 10.1353/cpr.2007.0027.

PMID:
20208284
[PubMed - indexed for MEDLINE]
Free PMC Article
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