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Results: 1 to 20 of 98

1.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

PMID:
23453621
[PubMed - indexed for MEDLINE]
Free PMC Article
2.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

PMID:
23714101
[PubMed - indexed for MEDLINE]
Free PMC Article
3.

The tension between data sharing and the protection of privacy in genomics research.

Kaye J.

Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

PMID:
22404490
[PubMed - indexed for MEDLINE]
4.

Tailoring the process of informed consent in genetic and genomic research.

Rotimi CN, Marshall PA.

Genome Med. 2010 Mar 24;2(3):20. doi: 10.1186/gm141.

PMID:
20346094
[PubMed]
Free PMC Article
5.

Critical social theory approach to disclosure of genomic incidental findings.

Bevan JL, Senn-Reeves JN, Inventor BR, Greiner SM, Mayer KM, Rivard MT, Hamilton RJ.

Nurs Ethics. 2012 Nov;19(6):819-28. doi: 10.1177/0969733011433924. Epub 2012 May 4.

PMID:
22562957
[PubMed - indexed for MEDLINE]
6.

Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.

Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL.

Public Health Genomics. 2012;15(2):106-14. doi: 10.1159/000334718. Epub 2011 Dec 30.

PMID:
22213783
[PubMed - indexed for MEDLINE]
Free PMC Article
7.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
[PubMed - indexed for MEDLINE]
8.

Genomics and privacy: implications of the new reality of closed data for the field.

Greenbaum D, Sboner A, Mu XJ, Gerstein M.

PLoS Comput Biol. 2011 Dec;7(12):e1002278. doi: 10.1371/journal.pcbi.1002278. Epub 2011 Dec 1. Review.

PMID:
22144881
[PubMed - indexed for MEDLINE]
Free PMC Article
9.

[Ethical considerations in genomic cohort study].

Choi EK, Kim OJ.

J Prev Med Public Health. 2007 Mar;40(2):122-9. Korean.

PMID:
17426423
[PubMed - indexed for MEDLINE]
Free Article
10.

Patient-controlled encrypted genomic data: an approach to advance clinical genomics.

Trakadis YJ.

BMC Med Genomics. 2012 Jul 20;5:31. doi: 10.1186/1755-8794-5-31.

PMID:
22818218
[PubMed - indexed for MEDLINE]
Free PMC Article
11.

Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL.

J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42.

PMID:
24169421
[PubMed - indexed for MEDLINE]
Free PMC Article
12.

Grappling with genomic incidental findings in the clinical realm.

Hull SC, Berkman BE.

Chest. 2014 Feb;145(2):226-30. doi: 10.1378/chest.13-1976.

PMID:
24493507
[PubMed - indexed for MEDLINE]
13.

Ethical issues raised by whole genome sequencing.

Pinxten W, Howard HC.

Best Pract Res Clin Gastroenterol. 2014 Apr;28(2):269-79. doi: 10.1016/j.bpg.2014.02.004. Epub 2014 Mar 12. Review.

PMID:
24810188
[PubMed - indexed for MEDLINE]
14.

Ethical, legal, and social issues in the translation of genomics into health care.

Badzek L, Henaghan M, Turner M, Monsen R.

J Nurs Scholarsh. 2013 Mar;45(1):15-24. doi: 10.1111/jnu.12000. Epub 2013 Jan 31.

PMID:
23369261
[PubMed - indexed for MEDLINE]
15.

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.

Zawati MH, Knoppers BM.

Genet Med. 2012 Apr;14(4):484-9. doi: 10.1038/gim.2012.13. Epub 2012 Feb 16.

PMID:
22344229
[PubMed - indexed for MEDLINE]
16.

Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.

Tabor HK, Berkman BE, Hull SC, Bamshad MJ.

Am J Med Genet A. 2011 Dec;155A(12):2916-24. doi: 10.1002/ajmg.a.34357. Epub 2011 Oct 28.

PMID:
22038764
[PubMed - indexed for MEDLINE]
17.

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small.

Sharp RR.

Genet Med. 2011 Mar;13(3):191-4. doi: 10.1097/GIM.0b013e31820f603f.

PMID:
21311340
[PubMed - indexed for MEDLINE]
18.

Privacy issues in second stage genomics.

Robertson JA.

Jurimetrics. 1999 Fall;40:59-76.

PMID:
14621715
[PubMed - indexed for MEDLINE]
19.

Ethical issues in bipolar disorders pedigree research: privacy concerns, informed consent, and grounds for waiver.

Parker LS.

Bipolar Disord. 2002 Feb;4(1):1-16. Review.

PMID:
12047491
[PubMed - indexed for MEDLINE]
20.

The ethical use of existing samples for genome research.

Bathe OF, McGuire AL.

Genet Med. 2009 Oct;11(10):712-5. doi: 10.1097/GIM.0b013e3181b2e168. Review.

PMID:
19745750
[PubMed - indexed for MEDLINE]

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