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Items: 1 to 20 of 90

1.

The personal experience of parenting a child with juvenile Huntington's disease: perceptions across Europe.

Eatough V, Santini H, Eiser C, Goller ML, Krysa W, de Nicola ', Paduanello M, Petrollini M, Rakowicz M, Squitieri F, Tibben A, Weille KL, Landwehrmeyer B, Quarrell O, Smith JA.

Eur J Hum Genet. 2013 Oct;21(10):1042-8. doi: 10.1038/ejhg.2013.15. Epub 2013 Feb 27.

2.
3.

Caring for a child with Juvenile Huntington's Disease: helpful and unhelpful support.

Brewer HM, Smith JA, Eatough V, Stanley CA, Glendinning NW, Quarrell OW.

J Child Health Care. 2007 Mar;11(1):40-52.

PMID:
17287223
4.

Young people's experiences of growing up in a family affected by Huntington's disease.

Forrest Keenan K, Miedzybrodzka Z, van Teijlingen E, McKee L, Simpson SA.

Clin Genet. 2007 Feb;71(2):120-9.

PMID:
17250660
5.

An exploration of the experience of Huntington's disease in family dyads: an interpretative phenomenological analysis.

Maxted C, Simpson J, Weatherhead S.

J Genet Couns. 2014 Jun;23(3):339-49. doi: 10.1007/s10897-013-9666-3. Epub 2013 Nov 10.

PMID:
24214466
7.

Living with Huntington's disease: need for supportive care.

Dawson S, Kristjanson LJ, Toye CM, Flett P.

Nurs Health Sci. 2004 Jun;6(2):123-30.

PMID:
15130098
8.

Being a parent of the adolescent with complex chronic pain: an interpretative phenomenological analysis.

Jordan AL, Eccleston C, Osborn M.

Eur J Pain. 2007 Jan;11(1):49-56. Epub 2006 Feb 3.

PMID:
16458550
9.
10.

More appreciation of life or regretting the test? Experiences of living as a mutation carrier of Huntington's disease.

Hagberg A, Bui TH, Winnberg E.

J Genet Couns. 2011 Feb;20(1):70-9. doi: 10.1007/s10897-010-9329-6. Epub 2010 Sep 28.

PMID:
20878217
11.

Prenatal testing for Huntington's disease: a European collaborative study.

Simpson SA, Zoeteweij MW, Nys K, Harper P, Dürr A, Jacopini G, Yapijakis C, Evers-Kiebooms G.

Eur J Hum Genet. 2002 Nov;10(11):689-93.

12.

The impact of Juvenile Huntington's Disease on the family: the case of a rare childhood condition.

Brewer HM, Eatough V, Smith JA, Stanley CA, Glendinning NW, Quarrell OW.

J Health Psychol. 2008 Jan;13(1):5-16.

PMID:
18086713
13.
14.

Attachment in families with Huntington's disease. A paradigm in clinical genetics.

Van der Meer L, Timman R, Trijsburg W, Duisterhof M, Erdman R, Van Elderen T, Tibben A.

Patient Educ Couns. 2006 Oct;63(1-2):246-54. Epub 2006 Jan 20.

PMID:
16427763
15.

Experiences of teens living in the shadow of Huntington Disease.

Sparbel KJ, Driessnack M, Williams JK, Schutte DL, Tripp-Reimer T, McGonigal-Kenney M, Jarmon L, Paulsen JS.

J Genet Couns. 2008 Aug;17(4):327-35. doi: 10.1007/s10897-008-9151-6. Epub 2008 Mar 18.

16.

Children having spinal surgery to correct scoliosis: a qualitative study of parents' experiences.

Bull J, Grogan S.

J Health Psychol. 2010 Mar;15(2):299-309. doi: 10.1177/1359105309351607.

PMID:
20207673
17.

Parental perceptions of neighborhood processes, stress, personal control, and risk for physical child abuse and neglect.

Guterman NB, Lee SJ, Taylor CA, Rathouz PJ.

Child Abuse Negl. 2009 Dec;33(12):897-906. doi: 10.1016/j.chiabu.2009.09.008. Epub 2009 Nov 8.

PMID:
19900705
18.

How young people find out about their family history of Huntington's disease.

Forrest Keenan K, van Teijlingen E, McKee L, Miedzybrodzka Z, Simpson SA.

Soc Sci Med. 2009 May;68(10):1892-900. doi: 10.1016/j.socscimed.2009.02.049. Epub 2009 Mar 26.

PMID:
19328606
19.

Huntington's disease of early onset or juvenile Huntington's disease.

Gordon N.

Hosp Med. 2003 Oct;64(10):576-80. Review.

PMID:
14584235
20.

Being a parent of a child with cancer throughout the end-of-life course.

Kars MC, Grypdonck MH, van Delden JJ.

Oncol Nurs Forum. 2011 Jul;38(4):E260-71. doi: 10.1188/11.ONF.E260-E271.

PMID:
21708521
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