Display Settings:

Format
Items per page
Sort by

Send to:

Choose Destination

Results: 1 to 20 of 111

1.

A tiered-layered-staged model for informed consent in personal genome testing.

Bunnik EM, Janssens AC, Schermer MH.

Eur J Hum Genet. 2013 Jun;21(6):596-601. doi: 10.1038/ejhg.2012.237. Epub 2012 Nov 21.

PMID:
23169494
[PubMed - indexed for MEDLINE]
Free PMC Article
2.

Informed Consent in Direct-to-Consumer Personal Genome Testing: The Outline of A Model between Specific and Generic Consent.

Bunnik EM, Janssens AC, Schermer MH.

Bioethics. 2012 Nov 8. doi: 10.1111/bioe.12004. [Epub ahead of print]

PMID:
23137034
[PubMed - as supplied by publisher]
3.

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

Knoppers BM.

EMBO Rep. 2010 Jun;11(6):416-9. doi: 10.1038/embor.2010.69. Epub 2010 May 7. No abstract available.

PMID:
20448662
[PubMed - indexed for MEDLINE]
Free PMC Article
4.

Personal genome testing: test characteristics to clarify the discourse on ethical, legal and societal issues.

Bunnik EM, Schermer MH, Janssens AC.

BMC Med Ethics. 2011 Jun 14;12:11. doi: 10.1186/1472-6939-12-11. Review.

PMID:
21672210
[PubMed - indexed for MEDLINE]
Free PMC Article
5.

Direct-to-consumer personal genome testing: ethical and regulatory issues that arise from wanting to 'know' your DNA.

Samuel GN, Jordens CF, Kerridge I.

Intern Med J. 2010 Mar;40(3):220-4. doi: 10.1111/j.1445-5994.2010.02190.x. Review.

PMID:
20446967
[PubMed - indexed for MEDLINE]
6.

The role of disease characteristics in the ethical debate on personal genome testing.

Bunnik EM, Schermer MH, Janssens AC.

BMC Med Genomics. 2012 Jan 19;5:4. doi: 10.1186/1755-8794-5-4.

PMID:
22260407
[PubMed - indexed for MEDLINE]
Free PMC Article
7.

Customers or research participants? Guidance for research practices in commercialization of personal genomics.

Tobin SL, Cho MK, Lee SS, Magnus DC, Allyse M, Ormond KE, Garrison NA.

Genet Med. 2012 Oct;14(10):833-5. doi: 10.1038/gim.2012.64. Epub 2012 Jun 14. No abstract available.

PMID:
22699154
[PubMed - indexed for MEDLINE]
8.

The new genetics and informed consent: differentiating choice to preserve autonomy.

Bunnik EM, de Jong A, Nijsingh N, de Wert GM.

Bioethics. 2013 Jul;27(6):348-55. doi: 10.1111/bioe.12030. Epub 2013 May 30.

PMID:
23718722
[PubMed - in process]
9.

Direct-to-consumer genomics and research ethics: should a more robust informed consent process be included?

Wasson K.

Am J Bioeth. 2009;9(6-7):56-8. doi: 10.1080/15265160902893965. No abstract available.

PMID:
19998119
[PubMed - indexed for MEDLINE]
10.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

PMID:
23714101
[PubMed - indexed for MEDLINE]
Free PMC Article
11.

PGTandMe: social networking-based genetic testing and the evolving research model.

Koch VG.

Health Matrix Clevel. 2012;22(1):33-74.

PMID:
22616542
[PubMed - indexed for MEDLINE]
12.

A survey of UK public interest in internet-based personal genome testing.

Cherkas LF, Harris JM, Levinson E, Spector TD, Prainsack B.

PLoS One. 2010 Oct 19;5(10):e13473. doi: 10.1371/journal.pone.0013473.

PMID:
20976053
[PubMed - indexed for MEDLINE]
Free PMC Article
13.

[The origin of informed consent].

Mallardi V.

Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27. Italian.

PMID:
16602332
[PubMed - indexed for MEDLINE]
14.

Considerations for the impact of personal genome information: a study of genomic profiling among genetics and genomics professionals.

O'Daniel JM, Haga SB, Willard HF.

J Genet Couns. 2010 Aug;19(4):387-401. doi: 10.1007/s10897-010-9297-x. Epub 2010 Mar 30.

PMID:
20352309
[PubMed - indexed for MEDLINE]
15.

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small.

Sharp RR.

Genet Med. 2011 Mar;13(3):191-4. doi: 10.1097/GIM.0b013e31820f603f.

PMID:
21311340
[PubMed - indexed for MEDLINE]
16.

Preconceptional genetic carrier testing and the commercial offer directly-to-consumers.

Borry P, Henneman L, Lakeman P, ten Kate LP, Cornel MC, Howard HC.

Hum Reprod. 2011 May;26(5):972-7. doi: 10.1093/humrep/der042. Epub 2011 Feb 28.

PMID:
21362685
[PubMed - indexed for MEDLINE]
Free PMC Article
17.

Health system implications of direct-to-consumer personal genome testing.

McGuire AL, Burke W.

Public Health Genomics. 2011;14(1):53-8. doi: 10.1159/000321962. Epub 2010 Nov 13.

PMID:
21071927
[PubMed - indexed for MEDLINE]
Free PMC Article
18.

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes.

Porteri C, Borry P.

Patient Educ Couns. 2008 Apr;71(1):136-42. doi: 10.1016/j.pec.2007.12.003. Epub 2008 Feb 19.

PMID:
18243633
[PubMed - indexed for MEDLINE]
19.

Direct-to-consumer personal genome testing and cancer risk prediction.

Bellcross CA, Page PZ, Meaney-Delman D.

Cancer J. 2012 Jul-Aug;18(4):293-302. doi: 10.1097/PPO.0b013e3182610e38. Review.

PMID:
22846729
[PubMed - indexed for MEDLINE]
20.

Ethical communication in clinical trials. Issues faced by data managers in obtaining informed consent.

Loh WY, Butow PN, Brown RF, Boyle F.

Cancer. 2002 Dec 1;95(11):2414-21.

PMID:
12436450
[PubMed - indexed for MEDLINE]
Free Article

Display Settings:

Format
Items per page
Sort by

Send to:

Choose Destination

Supplemental Content

Write to the Help Desk