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1.

"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.

Townsend A, Adam S, Birch PH, Lohn Z, Rousseau F, Friedman JM.

Am J Med Genet A. 2012 Oct;158A(10):2519-25. doi: 10.1002/ajmg.a.35554. Epub 2012 Aug 17.

PMID:
22903777
2.

'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.

Daack-Hirsch S, Driessnack M, Hanish A, Johnson VA, Shah LL, Simon CM, Williams JK.

Clin Genet. 2013 Jul;84(1):11-8. doi: 10.1111/cge.12167. Epub 2013 May 3.

3.

Genetics specialists' perspectives on disclosure of genomic incidental findings in the clinical setting.

Downing NR, Williams JK, Daack-Hirsch S, Driessnack M, Simon CM.

Patient Educ Couns. 2013 Jan;90(1):133-8. doi: 10.1016/j.pec.2012.09.010. Epub 2012 Oct 12.

4.

Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study.

Lemke AA, Bick D, Dimmock D, Simpson P, Veith R.

Clin Genet. 2013 Sep;84(3):230-6. doi: 10.1111/cge.12060. Epub 2012 Dec 7.

5.

Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening.

Miller FA, Hayeems RZ, Bombard Y, Little J, Carroll JC, Wilson B, Allanson J, Paynter M, Bytautas JP, Christensen R, Chakraborty P.

J Med Ethics. 2009 Oct;35(10):626-34. doi: 10.1136/jme.2009.030346.

PMID:
19793944
6.

Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.

Yu JH, Harrell TM, Jamal SM, Tabor HK, Bamshad MJ.

Am J Hum Genet. 2014 Jul 3;95(1):77-84. doi: 10.1016/j.ajhg.2014.06.004. Epub 2014 Jun 26.

7.

Disclosing errors to patients: perspectives of registered nurses.

Shannon SE, Foglia MB, Hardy M, Gallagher TH.

Jt Comm J Qual Patient Saf. 2009 Jan;35(1):5-12.

PMID:
19213295
8.

From genetics to genomics: ethics, policy, and parental decision-making.

Wilfond B, Ross LF.

J Pediatr Psychol. 2009 Jul;34(6):639-47. doi: 10.1093/jpepsy/jsn075. Epub 2008 Jul 22.

9.

Incidental variants are critical for genomics.

Biesecker LG.

Am J Hum Genet. 2013 May 2;92(5):648-51. doi: 10.1016/j.ajhg.2013.04.001.

10.

[The origin of informed consent].

Mallardi V.

Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27. Italian.

PMID:
16602332
11.

Views of genetics health professionals on the return of genomic results.

Grove ME, Wolpert MN, Cho MK, Lee SS, Ormond KE.

J Genet Couns. 2014 Aug;23(4):531-8. doi: 10.1007/s10897-013-9611-5. Epub 2013 Jun 2.

PMID:
23728783
12.

A legacy for the children--attitudes of older adults in the United Kingdom to genetic testing.

Skirton H, Frazier LQ, Calvin AO, Cohen MZ.

J Clin Nurs. 2006 May;15(5):565-73.

PMID:
16629965
13.
14.

Norplant use by adolescents: viewpoints of three stakeholder groups.

Pies CA.

J Adolesc Health. 1995 May;16(5):405-11.

PMID:
7662692
15.

Public perspectives about pharmacogenetic testing and managing ancillary findings.

Haga SB, Tindall G, O'Daniel JM.

Genet Test Mol Biomarkers. 2012 Mar;16(3):193-7. doi: 10.1089/gtmb.2011.0118. Epub 2011 Nov 2.

16.
17.

Is the non-respect of ethical principles by health professionals during first-trimester sonographic Down syndrome screening damaging to patient autonomy?

Favre R, Guige V, Weingertner AS, Vayssière C, Kohler M, Nisand I, Hervé C, Moutel G.

Ultrasound Obstet Gynecol. 2009 Jul;34(1):25-32. doi: 10.1002/uog.6327.

18.

Professional perspectives about pharmacogenetic testing and managing ancillary findings.

Haga SB, Tindall G, O'Daniel JM.

Genet Test Mol Biomarkers. 2012 Jan;16(1):21-4. doi: 10.1089/gtmb.2011.0045. Epub 2011 Jul 19.

19.

Disclosing incidental findings in brain research: the rights of minors in decision-making.

Di Pietro NC, Illes J.

J Magn Reson Imaging. 2013 Nov;38(5):1009-13. doi: 10.1002/jmri.24230. Epub 2013 Sep 4. Review.

PMID:
24006134
20.

American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

American Society of Clinical Oncology.

J Clin Oncol. 2003 Jun 15;21(12):2397-406. Epub 2003 Apr 11.

PMID:
12692171
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