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1.

The information needs and preferences of persons with longstanding inflammatory bowel disease.

Wong S, Walker JR, Carr R, Graff LA, Clara I, Promislow S, Rogala L, Miller N, Rawsthorne P, Bernstein CN.

Can J Gastroenterol. 2012 Aug;26(8):525-31.

2.

Health care and patients' education in a European inflammatory bowel disease inception cohort: an ECCO-EpiCom study.

Burisch J, Vegh Z, Pedersen N, Cuković-Čavka S, Turk N, Kaimakliotis I, Duricova D, Bortlik M, Shonová O, Thorsgaard N, Krabbe S, Andersen V, Dahlerup JF, Kjeldsen J, Salupere R, Olsen J, Nielsen KR, Manninen P, Collin P, Katsanos KH, Tsianos EV, Ladefoged K, Ragnarsson G, Björnsson E, Bailey Y, O'Morain C, Schwartz D, Odes S, Politi P, Santini A, Kiudelis G, Kupcinskas L, Turcan S, Magro F, Barros L, Lazar D, Goldis A, Nikulina I, Belousova E, Sanromán L, Martinez-Ares D, Almer S, Zhulina Y, Halfvarson J, Arebi N, Houston Y, Sebastian S, Langholz E, Lakatos PL, Munkholm P; EpiCom group.

J Crohns Colitis. 2014 Aug;8(8):811-8. doi: 10.1016/j.crohns.2013.12.023. Epub 2014 Jan 16.

PMID:
24439390
3.

How well does the Internet answer patients' questions about inflammatory bowel disease?

Promislow S, Walker JR, Taheri M, Bernstein CN.

Can J Gastroenterol. 2010 Nov;24(11):671-7.

4.

Population-based controlled study of social support, self-perceived stress, activity and work issues, and access to health care in inflammatory bowel disease.

Rogala L, Miller N, Graff LA, Rawsthorne P, Clara I, Walker JR, Lix L, Ediger JP, McPhail C, Bernstein CN.

Inflamm Bowel Dis. 2008 Apr;14(4):526-35. doi: 10.1002/ibd.20353.

PMID:
18183608
5.
6.

Satisfaction with patient-doctor relationships in inflammatory bowel diseases: examining patient-initiated change of specialist.

van Langenberg DR, Andrews JM.

World J Gastroenterol. 2012 May 14;18(18):2212-8. doi: 10.3748/wjg.v18.i18.2212.

7.

Effects of formal education for patients with inflammatory bowel disease: a randomized controlled trial.

Waters BM, Jensen L, Fedorak RN.

Can J Gastroenterol. 2005 Apr;19(4):235-44.

PMID:
15861266
8.

[Preference of patients with inflammatory bowel disease regarding information and shared decision-making: results from a cross-sectional survey in Germany].

Conrad S, Hüppe A, Raspe H.

Z Gastroenterol. 2012 Apr;50(4):364-72. doi: 10.1055/s-0031-1281949. Epub 2012 Apr 1. German.

PMID:
22467539
9.
10.

Patient educational media preferences for information about irritable bowel syndrome (IBS).

Halpert A, Dalton CB, Palsson O, Morris C, Hu Y, Bangdiwala S, Hankins J, Norton N, Drossman DA.

Dig Dis Sci. 2008 Dec;53(12):3184-90. doi: 10.1007/s10620-008-0280-4. Epub 2008 May 9.

PMID:
18463981
11.

[Internet as a source of information about infertility among infertile patients].

Talarczyk J, Hauke J, Poniewaz M, Serdyńska-Szuster M, Pawelczyk L, Jedrzejczak P.

Ginekol Pol. 2012 Apr;83(4):250-4. Polish.

PMID:
22712255
12.

The Manitoba Inflammatory Bowel Disease Cohort Study: prolonged symptoms before diagnosis--how much is irritable bowel syndrome?

Burgmann T, Clara I, Graff L, Walker J, Lix L, Rawsthorne P, McPhail C, Rogala L, Miller N, Bernstein CN.

Clin Gastroenterol Hepatol. 2006 May;4(5):614-20. Epub 2006 Apr 17.

PMID:
16630762
13.

Sources of information and factual knowledge in Europeans with inflammatory bowel diseases: a cross-cultural comparison between German and Irish patients.

Blumenstein I, McDermott E, Keegan D, Byrne K, Ellison M, Doherty G, Schröder O, Mulcahy H.

J Crohns Colitis. 2013 Oct;7(9):e331-6. doi: 10.1016/j.crohns.2013.01.006. Epub 2013 Feb 28.

PMID:
23453429
14.

An online resource of digital stories about cancer genetics: qualitative study of patient preferences and information needs.

Iredale R, Mundy L, Hilgart J.

J Med Internet Res. 2011 Sep 30;13(3):e78. doi: 10.2196/jmir.1735.

15.

Patient knowledge and educational needs in irritable bowel syndrome.

O'Sullivan MA, Mahmud N, Kelleher DP, Lovett E, O'Morain CA.

Eur J Gastroenterol Hepatol. 2000 Jan;12(1):39-43.

PMID:
10656208
16.

Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea.

Noh HI, Lee JM, Yun YH, Park SY, Bae DS, Nam JH, Park CT, Cho CH, Kye SY, Chang YJ.

Support Care Cancer. 2009 Oct;17(10):1277-83. doi: 10.1007/s00520-009-0581-y. Epub 2009 Jan 27.

PMID:
19172301
17.

Information needs of people with spinal cord injuries.

Matter B, Feinberg M, Schomer K, Harniss M, Brown P, Johnson K.

J Spinal Cord Med. 2009;32(5):545-54.

18.

Internet use among inflammatory bowel disease patients: an Italian multicenter survey.

Angelucci E, Orlando A, Ardizzone S, Guidi L, Sorrentino D, Fries W, Astegiano M, Sociale O, Cesarini M, Renna S, Cassinotti A, Marzo M, Quaglia A, Sergi MD, Simondi D, Vernia P, Malesci A, Danese S.

Eur J Gastroenterol Hepatol. 2009 Sep;21(9):1036-41. doi: 10.1097/MEG.0b013e328321b112.

PMID:
19543105
19.

Patient information in radiation oncology: a cross-sectional pilot study using the EORTC QLQ-INFO26 module.

Adler J, Paelecke-Habermann Y, Jahn P, Landenberger M, Leplow B, Vordermark D.

Radiat Oncol. 2009 Sep 28;4:40. doi: 10.1186/1748-717X-4-40.

20.

The burden of inflammatory bowel disease on health care utilization and quality of life.

Nurmi E, Haapamäki J, Paavilainen E, Rantanen A, Hillilä M, Arkkila P.

Scand J Gastroenterol. 2013 Jan;48(1):51-7. doi: 10.3109/00365521.2012.685750. Epub 2012 May 14.

PMID:
22577851
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