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Items: 1 to 20 of 197

1.

Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project.

Prior N, Remor E, Gómez-Traseira C, López-Serrano C, Cabañas R, Contreras J, Campos Á, Cardona V, Cimbollek S, González-Quevedo T, Guilarte M, de Rojas DH, Marcos C, Rubio M, Tejedor-Alonso MÁ, Caballero T.

Health Qual Life Outcomes. 2012 Jul 20;10:82. doi: 10.1186/1477-7525-10-82.

2.

Content validity of visual analog scales to assess symptom severity of acute angioedema attacks in adults with hereditary angioedema: an interview study.

McMillan CV, Speight J, Relan A, Bellizzi L, Haase G, Cicardi M.

Patient. 2012;5(2):113-26. doi: 10.2165/11597490-000000000-00000.

PMID:
22462765
3.

Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies.

Bonner N, Abetz-Webb L, Renault L, Caballero T, Longhurst H, Maurer M, Christiansen S, Zuraw B; Icatibant Outcome Survey (IOS) International Executive Committee and the Hereditary Angioedema Association (HAEA) Medical Advisory Board.

Health Qual Life Outcomes. 2015 Jul 1;13:92. doi: 10.1186/s12955-015-0292-7.

4.

Psychometric Field Study of Hereditary Angioedema Quality of Life Questionnaire for Adults: HAE-QoL.

Prior N, Remor E, Pérez-Fernández E, Caminoa M, Gómez-Traseira C, Gayá F, Aabom A, Aberer W, Betschel S, Boccon-Gibod I, Bouillet L, Bygum A, Csuka D, Farkas H, Gomide M, Grumach A, Leibovich I, Malbran A, Moldovan D, Mihaly E, Obtulowicz K, Perpén C, Peveling-Oberhag A, Porebski G, Chavannes CR, Reshef A, Staubach P, Wiednig M, Caballero T.

J Allergy Clin Immunol Pract. 2016 Mar 8. pii: S2213-2198(15)00785-0. doi: 10.1016/j.jaip.2015.12.010. [Epub ahead of print]

PMID:
26969268
5.

Development and construct validation of the angioedema quality of life questionnaire.

Weller K, Groffik A, Magerl M, Tohme N, Martus P, Krause K, Metz M, Staubach P, Maurer M.

Allergy. 2012 Oct;67(10):1289-98. doi: 10.1111/all.12007. Epub 2012 Aug 23.

6.

Hereditary angioedema: quality of life in Brazilian patients.

Gomide MA, Toledo E, Valle SO, Campos RA, França AT, Gomez NP, Andrade HF Jr, Caballero T, Grumach AS.

Clinics (Sao Paulo). 2013 Jan;68(1):81-3.

7.

The Turkish Hereditary Angioedema Pilot Study (TURHAPS): the first Turkish series of hereditary angioedema.

Kesim B, Uyguner ZO, Gelincik A, Mete Gökmen N, Sin AZ, Karakaya G, Erdenen F, Ardeniz O, Ozşeker F, Gülbahar O, Colakoğlu B, Dal M, Büyüköztürk S.

Int Arch Allergy Immunol. 2011;156(4):443-50. doi: 10.1159/000323915. Epub 2011 Aug 10. Erratum in: Int Arch Allergy Immunol. 2011;156(4):450.

PMID:
21832835
8.

Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: consensus report of an International Working Group.

Cicardi M, Bork K, Caballero T, Craig T, Li HH, Longhurst H, Reshef A, Zuraw B; HAWK (Hereditary Angioedema International Working Group).

Allergy. 2012 Feb;67(2):147-57. doi: 10.1111/j.1398-9995.2011.02751.x. Epub 2011 Nov 30.

9.

The hereditary angioedema burden of illness study in Europe (HAE-BOIS-Europe): background and methodology.

Bygum A, Aygören-Pürsün E, Caballero T, Beusterien K, Gholizadeh S, Musingarimi P, Wait S, Boysen H.

BMC Dermatol. 2012 Apr 26;12:4. doi: 10.1186/1471-5945-12-4.

10.

Hereditary angioedema due to C1 inhibitor deficiency: patient registry and approach to the prevalence in Spain.

Roche O, Blanch A, Caballero T, Sastre N, Callejo D, López-Trascasa M.

Ann Allergy Asthma Immunol. 2005 Apr;94(4):498-503.

PMID:
15875532
11.

Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials.

McKenna SP, Cook SA, Whalley D, Doward LC, Richards HL, Griffiths CE, Van Assche D.

Br J Dermatol. 2003 Aug;149(2):323-31.

PMID:
12932239
12.

US Hereditary Angioedema Association Medical Advisory Board 2013 recommendations for the management of hereditary angioedema due to C1 inhibitor deficiency.

Zuraw BL, Banerji A, Bernstein JA, Busse PJ, Christiansen SC, Davis-Lorton M, Frank MM, Li HH, Lumry WR, Riedl M; US Hereditary Angioedema Association Medical Advisory Board.

J Allergy Clin Immunol Pract. 2013 Sep-Oct;1(5):458-67. doi: 10.1016/j.jaip.2013.07.002. Epub 2013 Aug 30.

PMID:
24565617
13.

Development of a questionnaire to measure health-related quality of life (HRQoL) in patients with atrial fibrillation (AF-QoL).

Badia X, Arribas F, Ormaetxe JM, Peinado R, de Los Terreros MS.

Health Qual Life Outcomes. 2007 Jul 4;5:37.

14.

A new instrument for assessing quality of life in atopic dermatitis: international development of the Quality of Life Index for Atopic Dermatitis (QoLIAD).

Whalley D, McKenna SP, Dewar AL, Erdman RA, Kohlmann T, Niero M, Cook SA, Crickx B, Herdman MJ, Frech F, Van Assche D.

Br J Dermatol. 2004 Feb;150(2):274-83.

PMID:
14996098
15.

[Creating a specific quality-of-life questionnaire in patients with glaucoma: item generation].

Rouland JF, Denis P, Béchetoille A, Rigeade MC, Brouquet Y, Arnould B, Baudouin C, Renard JP, Bron A, Nordmann JP, Sellem E; Du Groupe D'étude Glaucome Et Qualité De Vie.

J Fr Ophtalmol. 2002 Oct;25(8):785-94. French.

16.

The humanistic burden of hereditary angioedema: Impact on health-related quality of life, productivity, and depression.

Lumry WR, Castaldo AJ, Vernon MK, Blaustein MB, Wilson DA, Horn PT.

Allergy Asthma Proc. 2010 Sep-Oct;31(5):407-14. doi: 10.2500/aap.2010.31.3394.

PMID:
20929608
17.

Psychometric validation of two patient-reported outcome measures to assess symptom severity and changes in symptoms in hereditary angioedema.

Vernon MK, Rentz AM, Wyrwich KW, White MV, Grienenberger A.

Qual Life Res. 2009 Sep;18(7):929-39. doi: 10.1007/s11136-009-9509-8. Epub 2009 Jul 14.

PMID:
19597964
18.

Development and evaluation of an Asthma-Specific Quality of Life (A-QOL) questionnaire.

Lee EH, Kim SH, Choi JH, Jee YK, Nahm DH, Park HS.

J Asthma. 2009 Sep;46(7):716-21. doi: 10.1080/02770900903067887.

PMID:
19728212
19.

Quantifying the burden of disease and perceived health state in patients with hereditary angioedema in Sweden.

Nordenfelt P, Dawson S, Wahlgren CF, Lindfors A, Mallbris L, Björkander J.

Allergy Asthma Proc. 2014 Mar-Apr;35(2):185-90. doi: 10.2500/aap.2014.35.3738. Epub 2014 Jan 9.

PMID:
24411585
20.

Hereditary angioedema in Greece: the first results of the greek hereditary angioedema registry.

Psarros F, Koutsostathis N, Farmaki E, Speletas MG, Germenis AE.

Int Arch Allergy Immunol. 2014;164(4):326-32. doi: 10.1159/000366276. Epub 2014 Sep 23.

PMID:
25277223
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