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Items: 1 to 20 of 109

1.

Research participants' perspectives on genotype-driven research recruitment.

Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):3-20. doi: 10.1525/jer.2011.6.4.3.

2.

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.

Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):41-52. doi: 10.1525/jer.2011.6.4.41.

3.

Epilepsy patient-participants and genetic research results as "answers".

Namey EE, Beskow LM.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):21-9. doi: 10.1525/jer.2011.6.4.21.

4.

Ethics in population-based genetic research.

DeCamp M, Sugarman J.

Account Res. 2004 Jan-Mar;11(1):1-26. Review.

PMID:
15341044
5.

The meaning of genetic research results: reflections from individuals with and without a known genetic disorder.

Cadigan RJ, Michie M, Henderson G, Davis AM, Beskow LM.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):30-40. doi: 10.1525/jer.2011.6.4.30.

6.

When do genetic researchers have a duty to recontact study participants?

Wade CH, Kalfoglou AL.

Am J Bioeth. 2006 Nov-Dec;6(6):26-7; author reply W10-2. No abstract available.

PMID:
17085400
7.

IRB chairs' perspectives on genotype-driven research recruitment.

Beskow LM, Namey EE, Miller PR, Nelson DK, Cooper A.

IRB. 2012 May-Jun;34(3):1-10. No abstract available.

9.

Disclosing individual genetic results to research participants.

Ravitsky V, Wilfond BS.

Am J Bioeth. 2006 Nov-Dec;6(6):8-17.

PMID:
17085395
10.

Is it ethical to deny genetic research participants individualised results?

Affleck P.

J Med Ethics. 2009 Apr;35(4):209-13. doi: 10.1136/jme.2007.024034.

PMID:
19332574
11.

Taking our obligations to research participants seriously: disclosing individual results of genetic research.

Manolio TA.

Am J Bioeth. 2006 Nov-Dec;6(6):32-4; author reply W10-2. No abstract available.

PMID:
17085403
12.

Thresholds and boundaries in the disclosure of individual genetic research results.

Dressler LG, Juengst ET.

Am J Bioeth. 2006 Nov-Dec;6(6):18-20; author reply W10-2. No abstract available.

PMID:
17085396
13.

Considering the nature of individual research results.

Beskow LM.

Am J Bioeth. 2006 Nov-Dec;6(6):38-40; author reply W10-2. No abstract available.

PMID:
17085406
14.

Should genetic findings from genome research be reported back to the participants?

Steinsbekk KS, Solberg B.

Tidsskr Nor Laegeforen. 2012 Oct 16;132(19):2190-3. Review. English, Norwegian.

PMID:
23243670
15.

Recommendations for ethical approaches to genotype-driven research recruitment.

Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS.

Hum Genet. 2012 Sep;131(9):1423-31. doi: 10.1007/s00439-012-1177-z. Epub 2012 May 24.

16.

Informing study participants of research results: an ethical imperative.

Fernandez CV, Kodish E, Weijer C.

IRB. 2003 May-Jun;25(3):12-9. No abstract available.

PMID:
14569989
17.

Letting the gene out of the bottle: a comment on returning individual research results to participants.

Ossorio PN.

Am J Bioeth. 2006 Nov-Dec;6(6):24-5; author reply W10-2. No abstract available.

PMID:
17085399
18.

Questions, complexities, and limitations in disclosing individual genetic results.

Klitzman R.

Am J Bioeth. 2006 Nov-Dec;6(6):34-6; author reply W10-2. No abstract available.

PMID:
17085404
19.

Tiered disclosure options promote the autonomy and well-being of research subjects.

Rothstein MA.

Am J Bioeth. 2006 Nov-Dec;6(6):20-1; author reply W10-2. No abstract available.

PMID:
17085397
20.

Duty to disclose what? Querying the putative obligation to return research results to participants.

Miller FA, Christensen R, Giacomini M, Robert JS.

J Med Ethics. 2008 Mar;34(3):210-3. doi: 10.1136/jme.2006.020289.

PMID:
18316466
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