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Results: 1 to 20 of 119

Similar articles for PubMed (Select 21674523)

1.

Palliative care services in families of males with Duchenne muscular dystrophy.

Arias R, Andrews J, Pandya S, Pettit K, Trout C, Apkon S, Karwoski J, Cunniff C, Matthews D, Miller T, Davis MF, Meaney FJ.

Muscle Nerve. 2011 Jul;44(1):93-101. doi: 10.1002/mus.22005.

PMID:
21674523
2.

Health services received by individuals with Duchenne/Becker muscular dystrophy.

Pandya SK, Campbell KA, Andrews JG, Meaney FJ, Ciafaloni E.

Muscle Nerve. 2015 Jun 4. doi: 10.1002/mus.24727. [Epub ahead of print]

PMID:
26044770
3.

Management of severe faecal impaction in an adolescent with Duchenne muscular dystrophy (DMD) receiving palliative care.

Jordan-Ely J, Dobson KM, Appaduray S, Hynson J, Kornberg AJ, Hutson JM, Southwell BR.

J Paediatr Child Health. 2015 Mar;51(3):351-2. doi: 10.1111/jpc.12859. No abstract available.

PMID:
25758316
4.

Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?

de Moura MC, Wutzki HC, Voos MC, Resende MB, Reed UC, Hasue RH.

Arq Neuropsiquiatr. 2015 Jan;73(1):52-7. doi: 10.1590/0004-282X20140194. Epub 2015 Jan 1.

5.

Becoming a back-up carer: parenting sons with Duchenne muscular dystrophy transitioning into adulthood.

Yamaguchi M, Suzuki M.

Neuromuscul Disord. 2015 Jan;25(1):85-93. doi: 10.1016/j.nmd.2014.09.001. Epub 2014 Sep 10.

PMID:
25435264
6.

Transitioning to adulthood with a progressive condition: best practice assumptions and individual experiences of young men with Duchenne muscular dystrophy.

Hamdani Y, Mistry B, Gibson BE.

Disabil Rehabil. 2015;37(13):1144-51. doi: 10.3109/09638288.2014.956187. Epub 2014 Sep 5.

PMID:
25190331
7.

[Caring for disabled teenagers in intensive care, a specific form of care].

Micaƫlli D.

Soins Pediatr Pueric. 2014 Jul-Aug;(279):29-32. French.

PMID:
25174180
8.

Psychosocial challenges in family caregiving with children suffering from Duchenne muscular dystrophy.

Thomas PT, Rajaram P, Nalini A.

Health Soc Work. 2014 Aug;39(3):144-52.

PMID:
25095627
9.

A community-engaged approach to quantifying caregiver preferences for the benefits and risks of emerging therapies for Duchenne muscular dystrophy.

Peay HL, Hollin I, Fischer R, Bridges JF.

Clin Ther. 2014 May;36(5):624-37. doi: 10.1016/j.clinthera.2014.04.011. Erratum in: Clin Ther. 2014 Aug 1;36(8):1313.

10.

Complementary and alternative medicine for Duchenne and Becker muscular dystrophies: characteristics of users and caregivers.

Zhu Y, Romitti PA, Conway KM, Andrews J, Liu K, Meaney FJ, Street N, Puzhankara S, Druschel CM, Matthews DJ.

Pediatr Neurol. 2014 Jul;51(1):71-7. doi: 10.1016/j.pediatrneurol.2014.02.003. Epub 2014 Feb 15.

11.

An excerpt from "The boys, or waiting for the electrician's daughter".

Terpstra J.

Am J Med Genet A. 2014 Jun;164A(6):1396-9. doi: 10.1002/ajmg.a.36510. Epub 2014 Apr 8. No abstract available.

PMID:
24715296
12.

Patterns of decline in upper limb function of boys and men with DMD: an international survey.

Janssen MM, Bergsma A, Geurts AC, de Groot IJ.

J Neurol. 2014 Jul;261(7):1269-88. doi: 10.1007/s00415-014-7316-9. Epub 2014 Apr 1. Erratum in: J Neurol. 2014 Jul;261(7):1289-90.

PMID:
24687893
13.
14.

Independent living with Duchenne muscular dystrophy and home mechanical ventilation in areas of Japan with insufficient national welfare services.

Yamaguchi M, Suzuki M.

Int J Qual Stud Health Well-being. 2013 Aug 26;8:20914. doi: 10.3402/qhw.v8i0.20914.

15.

Pain management: lessons from palliative care.

Langlois JP.

N C Med J. 2013 May-Jun;74(3):226-8.

PMID:
23940893
16.

Evolution of life expectancy of patients with Duchenne muscular dystrophy at AFM Yolaine de Kepper centre between 1981 and 2011.

Kieny P, Chollet S, Delalande P, Le Fort M, Magot A, Pereon Y, Perrouin Verbe B.

Ann Phys Rehabil Med. 2013 Sep;56(6):443-54. doi: 10.1016/j.rehab.2013.06.002. Epub 2013 Jun 24.

17.

Opium.

Launer J.

Postgrad Med J. 2013 Aug;89(1054):491-2. doi: 10.1136/postgradmedj-2013-132218. No abstract available.

PMID:
23861501
18.

Self-reported quality of life and depressive symptoms in children, adolescents, and adults with Duchenne muscular dystrophy: a cross-sectional survey study.

Elsenbruch S, Schmid J, Lutz S, Geers B, Schara U.

Neuropediatrics. 2013 Oct;44(5):257-64. doi: 10.1055/s-0033-1347935. Epub 2013 Jun 21.

PMID:
23794445
19.

Transforming Duchenne care: meeting 25-26 June 2012, Ft. Lauderdale, Florida, USA.

Kinnett K, Cripe LH.

Neuromuscul Disord. 2013 Aug;23(8):690-5. doi: 10.1016/j.nmd.2013.05.002. Epub 2013 Jun 14. No abstract available.

PMID:
23770103
20.

[Being a mother: encounters between mothers of children with Duchenne muscular dystrophy and nurses in Taiwan].

Lee SL, Chou FH, Chin CC.

Hu Li Za Zhi. 2013 Jun;60(3):94-7. doi: 10.6224/JN.60.3.94. Chinese.

PMID:
23729346
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