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1.

The culture of faith and hope: patients' justifications for their high estimations of expected therapeutic benefit when enrolling in early phase oncology trials.

Sulmasy DP, Astrow AB, He MK, Seils DM, Meropol NJ, Micco E, Weinfurt KP.

Cancer. 2010 Aug 1;116(15):3702-11. doi: 10.1002/cncr.25201.

2.

Two concepts of therapeutic optimism.

Jansen LA.

J Med Ethics. 2011 Sep;37(9):563-6. doi: 10.1136/jme.2010.038943. Epub 2011 May 7.

3.

Expectations of benefit in early-phase clinical trials: implications for assessing the adequacy of informed consent.

Weinfurt KP, Seils DM, Tzeng JP, Compton KL, Sulmasy DP, Astrow AB, Solarino NA, Schulman KA, Meropol NJ.

Med Decis Making. 2008 Jul-Aug;28(4):575-81. doi: 10.1177/0272989X08315242. Epub 2008 Mar 31.

4.

Research participants' high expectations of benefit in early-phase oncology trials: are we asking the right question?

Weinfurt KP, Seils DM, Lin L, Sulmasy DP, Astrow AB, Hurwitz HI, Cohen RB, Meropol NJ.

J Clin Oncol. 2012 Dec 10;30(35):4396-400. doi: 10.1200/JCO.2011.40.6587. Epub 2012 Oct 22.

5.

The correlation between patient characteristics and expectations of benefit from Phase I clinical trials.

Weinfurt KP, Castel LD, Li Y, Sulmasy DP, Balshem AM, Benson AB 3rd, Burnett CB, Gaskin DJ, Marshall JL, Slater EF, Schulman KA, Meropol NJ.

Cancer. 2003 Jul 1;98(1):166-75.

6.

Patient expectations of benefit from phase I clinical trials: linguistic considerations in diagnosing a therapeutic misconception.

Weinfurt KP, Sulmasy DP, Schulman KA, Meropol NJ.

Theor Med Bioeth. 2003;24(4):329-44.

PMID:
14620488
7.

Unrealistic optimism and the ethics of phase I cancer research.

Crites J, Kodish E.

J Med Ethics. 2013 Jun;39(6):403-6. doi: 10.1136/medethics-2012-100752. Epub 2012 Oct 31.

8.

Benefit in phase 1 oncology trials: therapeutic misconception or reasonable treatment option?

Miller FG, Joffe S.

Clin Trials. 2008;5(6):617-23. doi: 10.1177/1740774508097576.

PMID:
19029210
9.
10.

Reasons given by patients for participating, or not, in Phase 1 cancer trials.

Catt S, Langridge C, Fallowfield L, Talbot DC, Jenkins V.

Eur J Cancer. 2011 Jul;47(10):1490-7. doi: 10.1016/j.ejca.2011.02.020. Epub 2011 Mar 30.

PMID:
21454072
11.

Expectations and experiences of patients with cancer participating in phase I clinical trials.

Yoder LH, O'Rourke TJ, Etnyre A, Spears DT, Brown TD.

Oncol Nurs Forum. 1997 Jun;24(5):891-6.

PMID:
9201741
12.

Moral justification of Phase 1 oncology trials.

Dubov A.

J Pain Palliat Care Pharmacother. 2014 Jun;28(2):138-51. doi: 10.3109/15360288.2014.908994. Epub 2014 May 12.

PMID:
24813655
13.

The fair transaction model of informed consent: an alternative to autonomous authorization.

Miller FG, Wertheimer A.

Kennedy Inst Ethics J. 2011 Sep;21(3):201-18.

PMID:
22073815
14.

Therapeutic misconception in early phase gene transfer trials.

Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK.

Soc Sci Med. 2006 Jan;62(1):239-53. Epub 2005 Jul 5.

PMID:
16000230
15.

Therapeutic misconception, misestimation, and optimism in participants enrolled in phase 1 trials.

Pentz RD, White M, Harvey RD, Farmer ZL, Liu Y, Lewis C, Dashevskaya O, Owonikoko T, Khuri FR.

Cancer. 2012 Sep 15;118(18):4571-8. doi: 10.1002/cncr.27397. Epub 2012 Jan 31.

16.

Understanding the attitudes of the elderly towards enrolment into cancer clinical trials.

Townsley CA, Chan KK, Pond GR, Marquez C, Siu LL, Straus SE.

BMC Cancer. 2006 Feb 8;6:34.

17.

Reasons for participation in pain research: can they indicate a lack of informed consent?

Wasan AD, Taubenberger SP, Robinson WM.

Pain Med. 2009 Jan;10(1):111-9. doi: 10.1111/j.1526-4637.2008.00481.x. Epub 2008 Jul 24.

PMID:
18657219
18.

Perceptions of cancer patients and their physicians involved in phase I trials.

Daugherty C, Ratain MJ, Grochowski E, Stocking C, Kodish E, Mick R, Siegler M.

J Clin Oncol. 1995 May;13(5):1062-72. Erratum in: J Clin Oncol 1995 Sep;13(9):2476.

PMID:
7738612
19.

[The origin of informed consent].

Mallardi V.

Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27. Italian.

PMID:
16602332
20.

Perceptions of participation in a phase I, II, or III clinical trial among African American patients with cancer: what do refusers say?

Brown RF, Cadet DL, Houlihan RH, Thomson MD, Pratt EC, Sullivan A, Siminoff LA.

J Oncol Pract. 2013 Nov;9(6):287-93. doi: 10.1200/JOP.2013.001039. Epub 2013 Oct 15.

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