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Items: 1 to 20 of 129

1.

Assessment of parental decision-making in neonatal cardiac research: a pilot study.

Nathan AT, Hoehn KS, Ittenbach RF, Gaynor JW, Nicolson S, Wernovsky G, Nelson RM.

J Med Ethics. 2010 Feb;36(2):106-10. doi: 10.1136/jme.2009.030676.

PMID:
20133406
2.

What factors are important to parents making decisions about neonatal research?

Hoehn KS, Wernovsky G, Rychik J, Gaynor JW, Spray TL, Feudtner C, Nelson RM.

Arch Dis Child Fetal Neonatal Ed. 2005 May;90(3):F267-9.

3.

Parental perception of time and decision-making in neonatal research.

Hoehn KS, Nathan A, White LE, Ittenbach RF, Reynolds WW, Gaynor JW, Wernovsky G, Nicolson S, Nelson RM.

J Perinatol. 2009 Jul;29(7):508-11. doi: 10.1038/jp.2009.5. Epub 2009 Feb 5.

PMID:
19194453
4.

Chaos, vulnerability and control: parental beliefs about neonatal clinical trials.

Ward FR.

J Perinatol. 2009 Feb;29(2):156-62. doi: 10.1038/jp.2008.139. Epub 2008 Sep 25.

PMID:
18818665
5.

Parental decision-making in congenital heart disease.

Hoehn KS, Wernovsky G, Rychik J, Tian ZY, Donaghue D, Alderfer MA, Gaynor JW, Kazak AE, Spray TL, Nelson RM.

Cardiol Young. 2004 Jun;14(3):309-14.

PMID:
15680025
6.

Neonatal research and the validity of informed consent obtained in the perinatal period.

Ballard HO, Shook LA, Desai NS, Anand KJ.

J Perinatol. 2004 Jul;24(7):409-15.

PMID:
15152271
7.
9.

Accuracy of the MacArthur competence assessment tool for clinical research (MacCAT-CR) for measuring children's competence to consent to clinical research.

Hein IM, Troost PW, Lindeboom R, Benninga MA, Zwaan CM, van Goudoever JB, Lindauer RJ.

JAMA Pediatr. 2014 Dec;168(12):1147-53. doi: 10.1001/jamapediatrics.2014.1694.

PMID:
25317644
10.

Participation of children in clinical research: factors that influence a parent's decision to consent.

Tait AR, Voepel-Lewis T, Malviya S.

Anesthesiology. 2003 Oct;99(4):819-25.

PMID:
14508312
11.

Life support decisions for extremely premature infants: report of a pilot study.

Kavanaugh K, Savage T, Kilpatrick S, Kimura R, Hershberger P.

J Pediatr Nurs. 2005 Oct;20(5):347-59.

PMID:
16182094
12.

What do parents think about enrolling their premature babies in several research studies?

Morley CJ, Lau R, Davis PG, Morse C.

Arch Dis Child Fetal Neonatal Ed. 2005 May;90(3):F225-8.

13.

Children's consent and paediatric research: is it appropriate for healthy children to be the decision-makers in clinical research?

John T, Hope T, Savulescu J, Stein A, Pollard AJ.

Arch Dis Child. 2008 May;93(5):379-83. Epub 2007 Dec 18.

PMID:
18089635
14.

An approach to community consultation prior to initiating an emergency research study incorporating a waiver of informed consent.

Baren JM, Anicetti JP, Ledesma S, Biros MH, Mahabee-Gittens M, Lewis RJ.

Acad Emerg Med. 1999 Dec;6(12):1210-5.

15.

"...because I am something special" or "I think I will be something like a guinea pig": information and assent of legal minors in clinical trials--assessment of understanding, appreciation and reasoning.

Koelch M, Singer H, Prestel A, Burkert J, Schulze U, Fegert JM.

Child Adolesc Psychiatry Ment Health. 2009 Jan 28;3(1):2. doi: 10.1186/1753-2000-3-2.

16.

Clinical trials in pediatric cancer: parental perspectives on informed consent.

Kupst MJ, Patenaude AF, Walco GA, Sterling C.

J Pediatr Hematol Oncol. 2003 Oct;25(10):787-90.

PMID:
14528101
17.

International comparison of care for very low birth weight infants: parents' perceptions of counseling and decision-making.

Partridge JC, Martinez AM, Nishida H, Boo NY, Tan KW, Yeung CY, Lu JH, Yu VY.

Pediatrics. 2005 Aug;116(2):e263-71.

PMID:
16061579
18.

Illness severity and parental permission for clinical research in a pediatric ICU population.

Hulst JM, Peters JW, van den Bos A, Joosten KF, van Goudoever JB, Zimmermann LJ, Tibboel D.

Intensive Care Med. 2005 Jun;31(6):880-4. Epub 2005 May 13.

PMID:
15891862
19.
20.

Informed consent for the study of retained tissues from postmortem examination following sudden infant death.

Elliot JG, Ford DL, Beard JF, Fitzgerald KN, Robinson PJ, James AL.

J Med Ethics. 2008 Oct;34(10):742-6. doi: 10.1136/jme.2007.021428.

PMID:
18827107
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