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19228158,17100950,17979203,16634981,19047216,16634980,17335529,20146741,8279805,15895058,17040616,18257786,21053660,22921138,15964869,19267962,21276034,17905745,17404138,24912377,15937040,2137003,22716263,18416405,18684513,19404835,17622808,17542655,6195194,16265845,12043036,18410641,8569638,16919134,21801262,19845885,11549967,17142153,21047211,16596826,1386742,15948882,18384537,17991009,2965890,16904024,16361079,18381511,15774387,17266404,18430761,18445738,18261021,15072518,18036142,10122430,17709353,15320922,22390744,18808642,18800982,19250254,18561737,16787479,19025200,18830840,11400032,19772188,16606432,17493028,129006,16442261,10067490,16051461,15556960,18796049,18466292,15975763,2970861,18788326,18500117,17326813,18650688,20876167,15660645,18991976,20108550,16721164,18028476,19159835,18834369,19404833,19298502,22771985,19764824,20819403,19171577,19404831,15160659,19680067,19255027,19034708,19298094,21279885,6715557,22974130,22007982,16784504,16162129,17676959,16338628,17827494,20561077,19482751,17947286,10215541,18852608,17845237,20153603,18282343,30442576,19175809,18361087,17167245,18440277,19363885,23901619,18415820,15556958,8527108,15482495,17991008,19522789,19689172,20395281,8883669,16891274,19054268,16287479,18498331,19436073,17463242,17627372,16115564,10208162,18194831,7991760,14587133,15764433,10559763,18367994,17214863,20146740,12447818,16287702,17211717,17298942,18796050,23644952,19320644,18650563,21095600,19533265,9340848,16863848,1834506,12205772,7854133,18063924,19916821,17910081,20930020,18519578,23461758,8782140,19681002,21668801,19626749,19154552,8412727,19228909,19284158,22126659,19272201,8518432,19444682,21501111,15098956,17641122,19461574,15039498,1281901,19346206,19238820,18785969,23909584,19614830,22861133,18287185,16918839,19327965,17319246,16919136,19402759,24129911,19950688,18492713,19594291,7546457,21554468,6449867,10319647,20735195,28536925,16425279,17702708,18451883,19228157,16035691,18321781,18791875,15061858,19638023,19052945,18952814,9930130,18569397,18350418,18954582,19943502,20628437,9018581,17416699,18300168,23095583,19742371,21916929,16202835,19403947,18955467,24450320,11887084,17853379,20441686,18310190,14720095,17902555,16919135,10900934,16162125,16776442,19434001,18387884,23775710,21942928,20453580,8022292,19132779,11484298,15070547,18775376,21563045,18754897,19526704,17968040,22775057,17029502,18627431,18331408,17050771,21381950,23356915,18210774,17319245,17117670,20973246,18257789,17474591,11552361,28105710,2523379,16807790,11484297,16138288,18974004,23304848,2956959,19127001,18692946,17910080,18564076,16085968,18853886,2148255,21597529,19933763,15331252,23025643,17979209,17404139,17404137,20414612,17606316,19091451,8710622,18230852,20945998,10466870,16052958,18252855,27098766,18995900,19102606,1830876,21360862,25504639,15367153,17656397,18481446,10030445,19186593,8680160,25810370,29232961,18783863,16823778,25367194,12408745,16897397,18720114,26019305,21400360,19187087,17524966,19069255,11242671,18649810,18354052,15801390,17692190,19197017,18569398,16682389,17010671,19220625,17545394,23034104,12125427,37107805,1938801,18560252,18180468,30879259,20453578,11938484,8692636,18702775,22489033,30859873,12597721,18178595,26455786,2148254,11265546,18792950,23570209,17290812,30240913,30101573,25059276,16277641,29073339,22545635,29022174,24051566,15707232,18569399,27111881,10313732,17135071,14964014,26482010,10478729,8990818,27174784,24447016,22431280,24651599,23144167,19098139,23823299,18760167,8412426,33145912,29020791,16000026,18977652,18678581,6728516,27655360,15200798,16901291,8990819,20224997,14714932,22546598,17598872,18929054,19041458,30920907,18304920,18856168,4243141,19569300,18761299,18642486,18097818,17584408,19213014,19211922,17890416,19475207,24919935,19179448,19060006,27197696,19176575,11578024,24356736,30815772,18254834,9140352,19212162,24733376,34597006,36647196,17925821,8502068,19087738,15243997,18728143,15840147,11723758,24311744,19098962,21171535,17639594,16162123,18684747,19189805,17941530,18678817,16821469,11949386,17293012,25549293,9463598,35665576,8582571,17351304,16921483,17896212,21624877,23834214,19171297,25042544,24331886,10818954,28592389,29948530,18459692,27697313,12787161,34340841,3170456,19011973,32535492,10088968,18512666,24367984,26908471,27084080,8286907,22820061,29875616,18705475,29667506,16869371,11975289,30357644,19236288,17910087,28685411,26105592,9809262,18981360,24564265,23771114,17595690,22808563,30529051,30715925,16697302,34503480,29126359,12043171,36053627,17548541,18771038,3159059,4253652,18261020,19212160,30445828,35550238,17404144,10478099,6226529,36706005,6598756,23080267,2525658,31913479,25224782,34435270,17910079,29281599,23732418,1535698,28833838,26098802,24122446,17404127,18761235,23118253,11986041,36624557,16675381,34374115,28092296,4246612,11856189,26031395,19212163,12488918,22712808,32471843,30937736,29243099,36999318,25753589,25662393,15782481,18793251,21727283,15043612,6237449,16869366,24548046,18294812,8140543,269756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Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome.

Minnes P, Steiner K. Minnes P, et al. Child Care Health Dev. 2009 Mar;35(2):250-6. doi: 10.1111/j.1365-2214.2008.00931.x. Child Care Health Dev. 2009. PMID: 19228158

Psychological well-being of mothers of youth with fragile X syndrome: syndrome specificity and within-syndrome variability.

Lewis P, Abbeduto L, Murphy M, Richmond E, Giles N, Bruno L, Schroeder S, Anderson J, Orsmond G. Lewis P, et al. J Intellect Disabil Res. 2006 Dec;50(Pt 12):894-904. doi: 10.1111/j.1365-2788.2006.00907.x. J Intellect Disabil Res. 2006. PMID: 17100950

Recognizing the role of parents in developmental outcomes: a systems approach to evaluating the child with developmental disabilities.

Head LS, Abbeduto L. Head LS, et al. Ment Retard Dev Disabil Res Rev. 2007;13(4):293-301. doi: 10.1002/mrdd.20169. Ment Retard Dev Disabil Res Rev. 2007. PMID: 17979203 Review.

Satisfaction with formal support and education for children with autism spectrum disorder: the voices of the parents.

Renty J, Roeyers H. Renty J, et al. Child Care Health Dev. 2006 May;32(3):371-85. doi: 10.1111/j.1365-2214.2006.00584.x. Child Care Health Dev. 2006. PMID: 16634981

A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.

Kogan MD, Strickland BB, Blumberg SJ, Singh GK, Perrin JM, van Dyck PC. Kogan MD, et al. Pediatrics. 2008 Dec;122(6):e1149-58. doi: 10.1542/peds.2008-1057. Pediatrics. 2008. PMID: 19047216

A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome.

King GA, Zwaigenbaum L, King S, Baxter D, Rosenbaum P, Bates A. King GA, et al. Child Care Health Dev. 2006 May;32(3):353-69. doi: 10.1111/j.1365-2214.2006.00571.x. Child Care Health Dev. 2006. PMID: 16634980

An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. What works well and what needs to be done to improve practice for the future?

Carter B, Cummings J, Cooper L. Carter B, et al. J Clin Nurs. 2007 Mar;16(3):527-39. doi: 10.1111/j.1365-2702.2006.01554.x. J Clin Nurs. 2007. PMID: 17335529

Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome.

Dabrowska A, Pisula E. Dabrowska A, et al. J Intellect Disabil Res. 2010 Mar;54(3):266-80. doi: 10.1111/j.1365-2788.2010.01258.x. Epub 2010 Feb 8. J Intellect Disabil Res. 2010. PMID: 20146741

[Content analysis of parents' descriptions of their autistic, trisomy 21 or normal children].

Donnadieu H, Aussilloux C. Donnadieu H, et al. Ann Pediatr (Paris). 1993 Nov;40(9):573-81. Ann Pediatr (Paris). 1993. PMID: 8279805 French.

Views and experiences of parents and siblings of adults with Down Syndrome regarding oral healthcare: a qualitative and quantitative study.

Kaye PL, Fiske J, Bower EJ, Newton JT, Fenlon M. Kaye PL, et al. Br Dent J. 2005 May 14;198(9):571-8, discussion 559. doi: 10.1038/sj.bdj.4812305. Br Dent J. 2005. PMID: 15895058

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