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Results: 1 to 20 of 97

1.

Power to the people: a wiki-governance model for biobanks.

Dove ES, Joly Y, Knoppers BM.

Genome Biol. 2012 May 29;13(5):158. doi: 10.1186/gb-2012-13-5-158.

PMID:
22647613
[PubMed - indexed for MEDLINE]
Free PMC Article
2.

Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation.

O'Doherty KC, Hawkins AK, Burgess MM.

Soc Sci Med. 2012 Nov;75(9):1604-11. doi: 10.1016/j.socscimed.2012.06.026. Epub 2012 Jul 28.

PMID:
22867865
[PubMed - indexed for MEDLINE]
3.

Biobank governance: trends and perspectives.

Gottweis H, Zatloukal K.

Pathobiology. 2007;74(4):206-11.

PMID:
17709961
[PubMed - indexed for MEDLINE]
4.

Informed consent in biobank research: a deliberative approach to the debate.

Secko DM, Preto N, Niemeyer S, Burgess MM.

Soc Sci Med. 2009 Feb;68(4):781-9. doi: 10.1016/j.socscimed.2008.11.020. Epub 2008 Dec 16.

PMID:
19095337
[PubMed - indexed for MEDLINE]
5.

Recruiting for representation in public deliberation on the ethics of biobanks.

Longstaff H, Burgess MM.

Public Underst Sci. 2010 Mar;19(2):212-24.

PMID:
20533799
[PubMed - indexed for MEDLINE]
6.

Structuring public engagement for effective input in policy development on human tissue biobanking.

O'Doherty KC, Hawkins A.

Public Health Genomics. 2010;13(4):197-206. doi: 10.1159/000279621. Epub 2010 Apr 15.

PMID:
20395688
[PubMed - indexed for MEDLINE]
Free PMC Article
7.

'Access arrangements' for biobanks: a fine line between facilitating and hindering collaboration.

Fortin S, Pathmasiri S, Grintuch R, Deschênes M.

Public Health Genomics. 2011;14(2):104-14. doi: 10.1159/000309852. Epub 2010 Jul 30.

PMID:
20689244
[PubMed - indexed for MEDLINE]
8.

The value of using top-down and bottom-up approaches for building trust and transparency in biobanking.

Meslin EM.

Public Health Genomics. 2010;13(4):207-14. doi: 10.1159/000279622. Epub 2010 Apr 15.

PMID:
20395689
[PubMed - indexed for MEDLINE]
Free PMC Article
9.

Engaging the public on biobanks: outcomes of the BC biobank deliberation.

O'Doherty KC, Burgess MM.

Public Health Genomics. 2009;12(4):203-15. doi: 10.1159/000167801. Epub 2008 Oct 31.

PMID:
19367089
[PubMed - indexed for MEDLINE]
10.

Safeguarding donors' personal rights and biobank autonomy in biobank networks: the CRIP privacy regime.

Schröder C, Heidtke KR, Zacherl N, Zatloukal K, Taupitz J.

Cell Tissue Bank. 2011 Aug;12(3):233-40. doi: 10.1007/s10561-010-9190-8. Epub 2010 Jul 15.

PMID:
20632213
[PubMed - indexed for MEDLINE]
11.

Evolutionary concepts in biobanking - the BC BioLibrary.

Watson PH, Wilson-McManus JE, Barnes RO, Giesz SC, Png A, Hegele RG, Brinkman JN, Mackenzie IR, Huntsman DG, Junker A, Gilks B, Skarsgard E, Burgess M, Aparicio S, McManus BM.

J Transl Med. 2009 Nov 12;7:95. doi: 10.1186/1479-5876-7-95.

PMID:
19909513
[PubMed - indexed for MEDLINE]
Free PMC Article
12.

[Attitudes towards biobanks among Finnish people].

Snell K, Tupasela A.

Duodecim. 2012;128(16):1685-90. Finnish.

PMID:
23025152
[PubMed - indexed for MEDLINE]
13.

Public consultation in ethics: an experiment in representative ethics.

Burgess MM.

J Bioeth Inq. 2004;1(1):4-13.

PMID:
16025591
[PubMed - indexed for MEDLINE]
14.

Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study.

Godard B, Ozdemir V, Fortin M, Egalité N.

Public Underst Sci. 2010 Jul;19(4):469-85.

PMID:
20977184
[PubMed - indexed for MEDLINE]
15.

Who's minding the shop? The role of Canadian research ethics boards in the creation and uses of registries and biobanks.

Gibson E, Brazil K, Coughlin MD, Emerson C, Fournier F, Schwartz L, Szala-Meneok KV, Weisbaum KM, Willison DJ.

BMC Med Ethics. 2008 Nov 14;9:17. doi: 10.1186/1472-6939-9-17.

PMID:
19014594
[PubMed - indexed for MEDLINE]
Free PMC Article
16.

In the public interest: assessing expert and stakeholder influence in public deliberation about biobanks.

MacLean S, Burgess MM.

Public Underst Sci. 2010 Jul;19(4):486-96.

PMID:
20977185
[PubMed - indexed for MEDLINE]
17.
18.

Consent for biobank tissue in somatic-cell nuclear transfer.

Jones DA, MacKellar C.

Lancet. 2009 Sep 12;374(9693):861-3. doi: 10.1016/S0140-6736(09)61609-3. Review. No abstract available.

PMID:
19748385
[PubMed - indexed for MEDLINE]
19.

Personal privacy, public benefits, and biobanks: a conjoint analysis of policy priorities and public perceptions.

Pullman D, Etchegary H, Gallagher K, Hodgkinson K, Keough M, Morgan D, Street C.

Genet Med. 2012 Feb;14(2):229-35. doi: 10.1038/gim.0b013e31822e578f.

PMID:
22261752
[PubMed - indexed for MEDLINE]
20.

Re-examining medical modernization: framing the public in Finnish biomedical research policy.

Tupasela A.

Public Underst Sci. 2007 Jan;16(1):63-78.

PMID:
17575709
[PubMed - indexed for MEDLINE]

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