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Results: 1 to 20 of 22

1.

"Human non-subjects research": privacy and compliance.

Brothers KB, Clayton EW.

Am J Bioeth. 2010 Sep;10(9):15-7. doi: 10.1080/15265161.2010.492891. No abstract available.

PMID:
20818548
[PubMed - indexed for MEDLINE]
2.

Principles of human subjects protections applied in an opt-out, de-identified biobank.

Pulley J, Clayton E, Bernard GR, Roden DM, Masys DR.

Clin Transl Sci. 2010 Feb;3(1):42-8. doi: 10.1111/j.1752-8062.2010.00175.x.

PMID:
20443953
[PubMed - indexed for MEDLINE]
Free PMC Article
3.

Anonymization of electronic medical records for validating genome-wide association studies.

Loukides G, Gkoulalas-Divanis A, Malin B.

Proc Natl Acad Sci U S A. 2010 Apr 27;107(17):7898-903. doi: 10.1073/pnas.0911686107. Epub 2010 Apr 12.

PMID:
20385806
[PubMed - indexed for MEDLINE]
Free PMC Article
4.

Robust replication of genotype-phenotype associations across multiple diseases in an electronic medical record.

Ritchie MD, Denny JC, Crawford DC, Ramirez AH, Weiner JB, Pulley JM, Basford MA, Brown-Gentry K, Balser JR, Masys DR, Haines JL, Roden DM.

Am J Hum Genet. 2010 Apr 9;86(4):560-72. doi: 10.1016/j.ajhg.2010.03.003. Epub 2010 Apr 1. Erratum in: Am J Hum Genet. 2010 Aug 13;87(2):310.

PMID:
20362271
[PubMed - indexed for MEDLINE]
Free PMC Article
5.

Evaluating re-identification risks with respect to the HIPAA privacy rule.

Benitez K, Malin B.

J Am Med Inform Assoc. 2010 Mar-Apr;17(2):169-77. doi: 10.1136/jamia.2009.000026.

PMID:
20190059
[PubMed - indexed for MEDLINE]
Free PMC Article
6.

Biobanks: too long to wait for consent.

Brothers KB, Clayton EW.

Science. 2009 Nov 6;326(5954):798; author reply 799. doi: 10.1126/science.326_798a. No abstract available.

PMID:
19892963
[PubMed - indexed for MEDLINE]
7.

Research ethics. Children and population biobanks.

Gurwitz D, Fortier I, Lunshof JE, Knoppers BM.

Science. 2009 Aug 14;325(5942):818-9. doi: 10.1126/science.1173284. No abstract available.

PMID:
19679798
[PubMed - indexed for MEDLINE]
8.

Subjects matter: a survey of public opinions about a large genetic cohort study.

Kaufman D, Murphy J, Scott J, Hudson K.

Genet Med. 2008 Nov;10(11):831-9. doi: 10.1097/GIM.0b013e31818bb3ab.

PMID:
19011407
[PubMed - indexed for MEDLINE]
9.

Informed consent for biorepositories: assessing prospective participants' understanding and opinions.

Beskow LM, Dean E.

Cancer Epidemiol Biomarkers Prev. 2008 Jun;17(6):1440-51. doi: 10.1158/1055-9965.EPI-08-0086.

PMID:
18559560
[PubMed - indexed for MEDLINE]
Free Article
10.

Managing incidental findings in human subjects research: analysis and recommendations.

Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS.

J Law Med Ethics. 2008 Summer;36(2):219-48, 211. doi: 10.1111/j.1748-720X.2008.00266.x. Review.

PMID:
18547191
[PubMed - indexed for MEDLINE]
Free PMC Article
11.

Development of a large-scale de-identified DNA biobank to enable personalized medicine.

Roden DM, Pulley JM, Basford MA, Bernard GR, Clayton EW, Balser JR, Masys DR.

Clin Pharmacol Ther. 2008 Sep;84(3):362-9. doi: 10.1038/clpt.2008.89. Epub 2008 May 21.

PMID:
18500243
[PubMed - indexed for MEDLINE]
Free PMC Article
12.

Attitudes and perceptions of patients towards methods of establishing a DNA biobank.

Pulley JM, Brace MM, Bernard GR, Masys DR.

Cell Tissue Bank. 2008 Mar;9(1):55-65. Epub 2007 Oct 25.

PMID:
17960495
[PubMed - indexed for MEDLINE]
13.

Disclosing individual genetic results to research participants.

Ravitsky V, Wilfond BS.

Am J Bioeth. 2006 Nov-Dec;6(6):8-17.

PMID:
17085395
[PubMed - indexed for MEDLINE]
14.

The emergence of an ethical duty to disclose genetic research results: international perspectives.

Knoppers BM, Joly Y, Simard J, Durocher F.

Eur J Hum Genet. 2006 Nov;14(11):1170-8. Epub 2006 Jul 26. Erratum in: Eur J Hum Genet. 2006 Dec;14(12):1322.

PMID:
16868560
[PubMed - indexed for MEDLINE]
Free Article
15.

Ethical issues arising from the participation of children in genetic research.

Burke W, Diekema DS.

J Pediatr. 2006 Jul;149(1 Suppl):S34-8.

PMID:
16829241
[PubMed - indexed for MEDLINE]
16.

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.

Elger BS, Caplan AL.

EMBO Rep. 2006 Jul;7(7):661-6. No abstract available.

PMID:
16819458
[PubMed - indexed for MEDLINE]
Free PMC Article
17.

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV; NHLBI Working Group.

Am J Med Genet A. 2006 May 15;140(10):1033-40.

PMID:
16575896
[PubMed - indexed for MEDLINE]
Free PMC Article
18.

Communication of pharmacogenetic research results to HIV-infected treated patients: standpoints of professionals and patients.

Moutel G, Duchange N, Raffi F, Sharara LI, Théodorou I, Noël V, de Montgolfier S, Callies I, Bricaire F, Hervé C, Leport C; APROCO-COPILOTE Study Group.

Eur J Hum Genet. 2005 Sep;13(9):1055-62.

PMID:
15957002
[PubMed - indexed for MEDLINE]
Free PMC Article
19.

Challenges to informed consent.

Kegley JA.

EMBO Rep. 2004 Sep;5(9):832-6. No abstract available.

PMID:
15470376
[PubMed - indexed for MEDLINE]
Free PMC Article
20.

Informed consent and biobanks: a population-based study of attitudes towards tissue donation for genetic research.

Hoeyer K, Olofsson BO, Mjörndal T, Lynöe N.

Scand J Public Health. 2004;32(3):224-9.

PMID:
15204184
[PubMed - indexed for MEDLINE]

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