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Results: 1 to 20 of 23

1.

Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research.

Institute of Medicine (US) Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule; Nass SJ, Levit LA, Gostin LO, editors.

Washington (DC): National Academies Press (US); 2009.

PMID:
20662116
[PubMed]
Books & Documents
2.

Re-examining respect for human research participants.

Dickert NW.

Kennedy Inst Ethics J. 2009 Dec;19(4):311-38.

PMID:
20191947
[PubMed - indexed for MEDLINE]
3.

Evaluating re-identification risks with respect to the HIPAA privacy rule.

Benitez K, Malin B.

J Am Med Inform Assoc. 2010 Mar-Apr;17(2):169-77. doi: 10.1136/jamia.2009.000026.

PMID:
20190059
[PubMed - indexed for MEDLINE]
Free PMC Article
4.

The role of race and trust in tissue/blood donation for genetic research.

Bussey-Jones J, Garrett J, Henderson G, Moloney M, Blumenthal C, Corbie-Smith G.

Genet Med. 2010 Feb;12(2):116-21. doi: 10.1097/GIM.0b013e3181cd6689.

PMID:
20098329
[PubMed - indexed for MEDLINE]
Free PMC Article
5.

Privacy versus public health: the impact of current confidentiality rules.

Wartenberg D, Thompson WD.

Am J Public Health. 2010 Mar;100(3):407-12. doi: 10.2105/AJPH.2009.166249. Epub 2010 Jan 14.

PMID:
20075316
[PubMed - indexed for MEDLINE]
Free PMC Article
6.

Public opinion about the importance of privacy in biobank research.

Kaufman DJ, Murphy-Bollinger J, Scott J, Hudson KL.

Am J Hum Genet. 2009 Nov;85(5):643-54. doi: 10.1016/j.ajhg.2009.10.002. Epub 2009 Oct 29.

PMID:
19878915
[PubMed - indexed for MEDLINE]
Free PMC Article
7.

Currents in contemporary ethics. Improving privacy in research by eliminating informed consent? IOM Report misses the mark.

Rothstein MA.

J Law Med Ethics. 2009 Fall;37(3):507-12. doi: 10.1111/j.1748-720X.2009.00411.x. No abstract available.

PMID:
19723261
[PubMed - indexed for MEDLINE]
Free PMC Article
8.

Pediatric biobanks: approaching informed consent for continuing research after children grow up.

Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS.

J Pediatr. 2009 Oct;155(4):578-83. doi: 10.1016/j.jpeds.2009.04.034.

PMID:
19595370
[PubMed - indexed for MEDLINE]
9.

Patients' views on identifiability of samples and informed consent for genetic research.

Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS.

Am J Bioeth. 2008 Oct;8(10):62-70. doi: 10.1080/15265160802478404.

PMID:
19003716
[PubMed - indexed for MEDLINE]
10.

Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.

Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, Pearson JV, Stephan DA, Nelson SF, Craig DW.

PLoS Genet. 2008 Aug 29;4(8):e1000167. doi: 10.1371/journal.pgen.1000167.

PMID:
18769715
[PubMed - indexed for MEDLINE]
Free PMC Article
11.

Automated de-identification of free-text medical records.

Neamatullah I, Douglass MM, Lehman LW, Reisner A, Villarroel M, Long WJ, Szolovits P, Moody GB, Mark RG, Clifford GD.

BMC Med Inform Decis Mak. 2008 Jul 24;8:32. doi: 10.1186/1472-6947-8-32.

PMID:
18652655
[PubMed - indexed for MEDLINE]
Free PMC Article
12.

Group risks, risks to groups, and group engagement in genetics research.

Hausman DM.

Kennedy Inst Ethics J. 2007 Dec;17(4):351-69.

PMID:
18363270
[PubMed - indexed for MEDLINE]
13.

Grappling with groups: protecting collective interests in biomedical research.

Sharp RR, Foster MW.

J Med Philos. 2007 Jul-Aug;32(4):321-37.

PMID:
17712706
[PubMed - indexed for MEDLINE]
14.

Rapidly retargetable approaches to de-identification in medical records.

Wellner B, Huyck M, Mardis S, Aberdeen J, Morgan A, Peshkin L, Yeh A, Hitzeman J, Hirschman L.

J Am Med Inform Assoc. 2007 Sep-Oct;14(5):564-73. Epub 2007 Jun 28.

PMID:
17600096
[PubMed - indexed for MEDLINE]
Free PMC Article
15.

Re-identification of familial database records.

Malin B.

AMIA Annu Symp Proc. 2006:524-8.

PMID:
17238396
[PubMed - indexed for MEDLINE]
Free PMC Article
16.

Genetics. No longer de-identified.

McGuire AL, Gibbs RA.

Science. 2006 Apr 21;312(5772):370-1. No abstract available.

PMID:
16627725
[PubMed - indexed for MEDLINE]
17.

Currents in contemporary ethics. Research privacy under HIPAA and the common rule.

Rothstein MA.

J Law Med Ethics. 2005 Spring;33(1):154-9. Review. No abstract available.

PMID:
15934672
[PubMed - indexed for MEDLINE]
18.

Harnessing the benefits of biobanks.

Andrews LB.

J Law Med Ethics. 2005 Spring;33(1):22-30. Review. No abstract available.

PMID:
15934663
[PubMed - indexed for MEDLINE]
19.

Biobanking: international norms.

Knoppers BM.

J Law Med Ethics. 2005 Spring;33(1):7-14. Review. No abstract available.

PMID:
15934661
[PubMed - indexed for MEDLINE]
20.

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