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Results: 1 to 20 of 115

Similar articles for PubMed (Select 22228057)

1.

Epilepsy patient-participants and genetic research results as "answers".

Namey EE, Beskow LM.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):21-9. doi: 10.1525/jer.2011.6.4.21.

2.

Researchers discover genetic cause of rare type of epilepsy.

Printz C.

Clin Transl Sci. 2015 Apr;8(2):86. No abstract available.

PMID:
26079015
3.

Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.

Kerasidou A.

Dev World Bioeth. 2014 Oct 8. doi: 10.1111/dewb.12071. [Epub ahead of print]

PMID:
25292263
5.

Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.

Marshall PA, Adebamowo CA, Adeyemo AA, Ogundiran TO, Strenski T, Zhou J, Rotimi CN.

BMC Med Ethics. 2014 May 13;15:38. doi: 10.1186/1472-6939-15-38.

6.

Return of results: ethical and legal distinctions between research and clinical care.

Burke W, Evans BJ, Jarvik GP.

Am J Med Genet C Semin Med Genet. 2014 Mar;166C(1):105-11. doi: 10.1002/ajmg.c.31393. Epub 2014 Mar 10.

7.

Stakeholder views on returning research results.

Haga SB, Zhao JQ.

Adv Genet. 2013;84:41-81. doi: 10.1016/B978-0-12-407703-4.00002-5. Review.

PMID:
24262096
8.

Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL.

J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42.

9.

Processes and factors involved in decisions regarding return of incidental genomic findings in research.

Klitzman R, Buquez B, Appelbaum PS, Fyer A, Chung WK.

Genet Med. 2014 Apr;16(4):311-7. doi: 10.1038/gim.2013.140. Epub 2013 Sep 26.

10.

Hope language in patients undergoing epilepsy surgery.

Patton DJ, Busch RM, Yee KM, Kubu CS, Gonzalez-Martinez J, Ford PJ.

Epilepsy Behav. 2013 Oct;29(1):90-5. doi: 10.1016/j.yebeh.2013.07.005. Epub 2013 Aug 10.

PMID:
23941902
11.

Curiosity as holistic engagement: experiences of hospitalized patients as research participants.

Glass N, Ogle KR.

Holist Nurs Pract. 2013 Sep-Oct;27(5):292-302. doi: 10.1097/HNP.0b013e31829b9360.

PMID:
23925350
12.

Does a duty of disclosure foster special treatment of genetic research participants?

Hayeems RZ, Miller FA, Bytautas JP, Li L.

J Genet Couns. 2013 Oct;22(5):654-61. doi: 10.1007/s10897-013-9597-z. Epub 2013 May 17.

PMID:
23681280
13.

Disclosure of individual pharmacogenomic results in research projects: when and what kind of information to return to research participants.

Korol S, Hurlimann T, Godard B, de Denus S.

Pharmacogenomics. 2013 Apr;14(6):675-88. doi: 10.2217/pgs.13.50. Review.

PMID:
23570470
14.

A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs.

Brandt DS, Shinkunas L, Hillis SL, Daack-Hirsch SE, Driessnack M, Downing NR, Liu MF, Shah LL, Williams JK, Simon CM.

J Genet Couns. 2013 Aug;22(4):544-53. doi: 10.1007/s10897-013-9583-5. Epub 2013 Apr 2.

15.

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting.

Fernandez CV, Strahlendorf C, Avard D, Knoppers BM, O'Connell C, Bouffet E, Malkin D, Jabado N, Boycott K, Sorensen PH.

Genet Med. 2013 Jul;15(7):558-64. doi: 10.1038/gim.2012.183. Epub 2013 Jan 31.

16.

Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?

Groisman IJ, Mathieu G, Godard B.

BMC Med Ethics. 2012 Dec 20;13:36. doi: 10.1186/1472-6939-13-36. Review.

17.

Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.

Fernandez CV, Ruccione K, Wells RJ, Long JB, Pelletier W, Hooke MC, Pentz RD, Noll RB, Baker JN, O'Leary M, Reaman G, Adamson PC, Joffe S; COG Return of Results Task Force.

J Clin Oncol. 2012 Dec 20;30(36):4573-9. doi: 10.1200/JCO.2012.45.2086. Epub 2012 Oct 29.

18.

Am I a control?: Genotype-driven research recruitment and self-understandings of study participants.

Michie M, Cadigan RJ, Henderson G, Beskow LM.

Genet Med. 2012 Dec;14(12):983-9. doi: 10.1038/gim.2012.88. Epub 2012 Aug 30.

19.

Evaluation of the content and process of informed consent discussions for neonatal research.

Marc-Aurele KL, Steinman SL, Ransom KM, Finer NN, Dunn LB.

J Empir Res Hum Res Ethics. 2012 Jul;7(3):78-83. doi: 10.1525/jer.2012.7.3.78.

PMID:
22850145
20.

IRB chairs' perspectives on genotype-driven research recruitment.

Beskow LM, Namey EE, Miller PR, Nelson DK, Cooper A.

IRB. 2012 May-Jun;34(3):1-10. No abstract available.

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