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The NIDDK Central Repository at 8 years--ambition, revision, use and impact.

Turner CF, Pan H, Silk GW, Ardini MA, Bakalov V, Bryant S, Cantor S, Chang KY, DeLatte M, Eggers P, Ganapathi L, Lakshmikanthan S, Levy J, Li S, Pratt J, Pugh N, Qin Y, Rasooly R, Ray H, Richardson JE, Riley AF, Rogers SM, Scheper C, Tan S, White S, Cooley PC.

Database (Oxford). 2011 Sep 29;2011:bar043. doi: 10.1093/database/bar043. Print 2011.


NIDDK data repository: a central collection of clinical trial data.

Cuticchia AJ, Cooley PC, Hall RD, Qin Y.

BMC Med Inform Decis Mak. 2006 Apr 4;6:19.


'What's in the NIDDK CDR?'--public query tools for the NIDDK central data repository.

Pan H, Ardini MA, Bakalov V, DeLatte M, Eggers P, Ganapathi L, Hollingsworth CR, Levy J, Li S, Pratt J, Pugh N, Qin Y, Rasooly R, Ray H, Richardson JE, Flynn Riley A, Rogers SM, Tan S, Turner CF, White S, Cooley PC.

Database (Oxford). 2013 Feb 8;2013:bas058. doi: 10.1093/database/bas058. Print 2013.


Sample and data sharing: observations from a central data repository.

Ardini MA, Pan H, Qin Y, Cooley PC.

Clin Biochem. 2014 Mar;47(4-5):252-7. doi: 10.1016/j.clinbiochem.2013.11.014. Epub 2013 Nov 26.


The national institute of diabetes and digestive and kidney diseases central repositories: a valuable resource for nephrology research.

Rasooly RS, Akolkar B, Spain LM, Guill MH, Del Vecchio CT, Carroll LE.

Clin J Am Soc Nephrol. 2015 Apr 7;10(4):710-5. doi: 10.2215/CJN.06570714. Epub 2014 Nov 6.


Research resource: dkCOIN, the National Institute of Diabetes, Digestive and Kidney Diseases (NIDDK) consortium interconnectivity network: a pilot program to aggregate research resources generated by multiple research consortia.

McKenna NJ, Howard CL, Aufiero M, Easton-Marks J, Steffen DL, Becnel LB, Magnuson MA, McIndoe RA, Cartailler JP.

Mol Endocrinol. 2012 Oct;26(10):1675-81. Epub 2012 Jun 25.


A new vision for the study of benign prostate disease: the NIDDK Prostate Research Strategic Plan.

Mullins C, Kaplan SA.

J Urol. 2009 Mar;181(3):963-71. doi: 10.1016/j.juro.2008.11.033. Epub 2009 Jan 16.


Diabetic nephropathy: a national dialogue.

Breyer MD, Coffman TM, Flessner MF, Fried LF, Harris RC, Ketchum CJ, Kretzler M, Nelson RG, Sedor JR, Susztak K; Kidney Research National Dialogue (KRND).

Clin J Am Soc Nephrol. 2013 Sep;8(9):1603-5. doi: 10.2215/CJN.03640413. Epub 2013 Jun 20.


The establishment of an ISO compliant cancer biobank for Jordan and its neighboring countries through knowledge transfer and training.

Barr M, Souan L, MacGabhann P, Müller J, Al Ashhab M, Jasser M, Hamza K, Al Hassoon S, Kuhn U, Infante D, Lawlor D, Gately K, Amireh E, O'Byrne K, Sughayer MA.

Biopreserv Biobank. 2014 Feb;12(1):3-12. doi: 10.1089/bio.2013.0072.


The NCI Biospecimen Research Network.

Moore HM.

Biotech Histochem. 2012 Jan;87(1):18-23. doi: 10.3109/10520295.2011.591833. Epub 2011 Jul 12.


Designing and implementing sample and data collection for an international genetics study: the Type 1 Diabetes Genetics Consortium (T1DGC).

Hilner JE, Perdue LH, Sides EG, Pierce JJ, Wägner AM, Aldrich A, Loth A, Albret L, Wagenknecht LE, Nierras C, Akolkar B; T1DGC.

Clin Trials. 2010;7(1 Suppl):S5-S32. doi: 10.1177/1740774510373497. Epub 2010 Jul 5.


Funding for research in digestive diseases by NIH and NIDDK.

James SP.

Gastroenterology. 2012 Dec;143(6):1407-9. doi: 10.1053/j.gastro.2012.10.012. Epub 2012 Oct 15. No abstract available.


Kidney research national dialogue overview and commentary.

Rys-Sikora KE, Ketchum CJ, Star RA; Kidney Research National Dialogue (KRND) Editorial Board.

Clin J Am Soc Nephrol. 2013 Sep;8(9):1599-602. doi: 10.2215/CJN.03590413. Epub 2013 Jun 20. Review.


Opportunities and Challenges at NIDDK in Digestive Diseases Research.

James SP.

Gastroenterology. 2007 Apr;132(4):1219-20. No abstract available.


How to design biospecimen identifiers and integrate relevant functionalities into your biospecimen management system.

Nussbeck SY, Skrowny D, O'Donoghue S, Schulze TG, Helbing K.

Biopreserv Biobank. 2014 Jun;12(3):199-205. doi: 10.1089/bio.2013.0085.


The Addgene repository: an international nonprofit plasmid and data resource.

Kamens J.

Nucleic Acids Res. 2015 Jan;43(Database issue):D1152-7. doi: 10.1093/nar/gku893. Epub 2014 Nov 11.


National Cancer Institute Biospecimen Evidence-Based Practices: a novel approach to pre-analytical standardization.

Engel KB, Vaught J, Moore HM.

Biopreserv Biobank. 2014 Apr;12(2):148-50. doi: 10.1089/bio.2013.0091.


Mapping clinical phenotype data elements to standardized metadata repositories and controlled terminologies: the eMERGE Network experience.

Pathak J, Wang J, Kashyap S, Basford M, Li R, Masys DR, Chute CG.

J Am Med Inform Assoc. 2011 Jul-Aug;18(4):376-86. doi: 10.1136/amiajnl-2010-000061. Epub 2011 May 19.


Pitfalls of merging GWAS data: lessons learned in the eMERGE network and quality control procedures to maintain high data quality.

Zuvich RL, Armstrong LL, Bielinski SJ, Bradford Y, Carlson CS, Crawford DC, Crenshaw AT, de Andrade M, Doheny KF, Haines JL, Hayes MG, Jarvik GP, Jiang L, Kullo IJ, Li R, Ling H, Manolio TA, Matsumoto ME, McCarty CA, McDavid AN, Mirel DB, Olson LM, Paschall JE, Pugh EW, Rasmussen LV, Rasmussen-Torvik LJ, Turner SD, Wilke RA, Ritchie MD.

Genet Epidemiol. 2011 Dec;35(8):887-98. doi: 10.1002/gepi.20639.

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