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1.

Impact of the Patient-Reported Outcomes Management Information System (PROMIS) upon the design and operation of multi-center clinical trials: a qualitative research study.

Eisenstein EL, Diener LW, Nahm M, Weinfurt KP.

J Med Syst. 2011 Dec;35(6):1521-30. doi: 10.1007/s10916-010-9429-8. Epub 2010 Jan 23.

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3.

The NCI All Ireland Cancer Conference.

Johnston PG, Daly PA, Liu E.

Oncologist. 1999;4(4):275-277.

4.

The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.

Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M; PROMIS Cooperative Group.

Med Care. 2007 May;45(5 Suppl 1):S3-S11.

5.

Advancing PROMIS's methodology: results of the Third Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Psychometric Summit.

Carle AC, Cella D, Cai L, Choi SW, Crane PK, Curtis SM, Gruhl J, Lai JS, Mukherjee S, Reise SP, Teresi JA, Thissen D, Wu EJ, Hays RD.

Expert Rev Pharmacoecon Outcomes Res. 2011 Dec;11(6):677-84. doi: 10.1586/erp.11.74.

6.

Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative.

Garcia SF, Cella D, Clauser SB, Flynn KE, Lad T, Lai JS, Reeve BB, Smith AW, Stone AA, Weinfurt K.

J Clin Oncol. 2007 Nov 10;25(32):5106-12. Review. Erratum in: J Clin Oncol. 2008 Feb 20;26(6):1018. Lad, Thomas [added].

PMID:
17991929
7.

Informative value of Patient Reported Outcomes (PRO) in Health Technology Assessment (HTA).

Brettschneider C, Lühmann D, Raspe H.

GMS Health Technol Assess. 2011 Feb 2;7:Doc01. doi: 10.3205/hta000092.

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9.

Trial design and reporting standards for intra-arterial cerebral thrombolysis for acute ischemic stroke.

Higashida RT, Furlan AJ, Roberts H, Tomsick T, Connors B, Barr J, Dillon W, Warach S, Broderick J, Tilley B, Sacks D; Technology Assessment Committee of the American Society of Interventional and Therapeutic Neuroradiology; Technology Assessment Committee of the Society of Interventional Radiology.

Stroke. 2003 Aug;34(8):e109-37. Epub 2003 Jul 17. Erratum in: Stroke. 2003 Nov;34(11):2774.

10.

The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research.

Amtmann D, Cook KF, Johnson KL, Cella D.

Arch Phys Med Rehabil. 2011 Oct;92(10 Suppl):S12-9. doi: 10.1016/j.apmr.2011.04.025.

11.

The use of PROMIS and assessment center to deliver patient-reported outcome measures in clinical research.

Gershon RC, Rothrock N, Hanrahan R, Bass M, Cella D.

J Appl Meas. 2010;11(3):304-14.

12.

Outcomes assessment of clinical information system implementation: a practical guide.

Nahm ES, Vaydia V, Ho D, Scharf B, Seagull J.

Nurs Outlook. 2007 Nov-Dec;55(6):282-288. Review.

PMID:
18061012
13.

A web-based clinical trial management system for a sham-controlled multicenter clinical trial in depression.

Durkalski V, Wenle Zhao, Dillon C, Kim J.

Clin Trials. 2010 Apr;7(2):174-82. doi: 10.1177/1740774509358748. Epub 2010 Jan 18.

PMID:
20083496
14.

Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample.

Revicki DA, Kawata AK, Harnam N, Chen WH, Hays RD, Cella D.

Qual Life Res. 2009 Aug;18(6):783-91. doi: 10.1007/s11136-009-9489-8. Epub 2009 May 27.

15.

Fibromyalgia syndrome.

Mease P, Arnold LM, Bennett R, Boonen A, Buskila D, Carville S, Chappell A, Choy E, Clauw D, Dadabhoy D, Gendreau M, Goldenberg D, Littlejohn G, Martin S, Perera P, Russell IJ, Simon L, Spaeth M, Williams D, Crofford L.

J Rheumatol. 2007 Jun;34(6):1415-25.

PMID:
17552068
16.

Evaluation of patient reporting of adverse drug reactions to the UK 'Yellow Card Scheme': literature review, descriptive and qualitative analyses, and questionnaire surveys.

Avery AJ, Anderson C, Bond CM, Fortnum H, Gifford A, Hannaford PC, Hazell L, Krska J, Lee AJ, McLernon DJ, Murphy E, Shakir S, Watson MC.

Health Technol Assess. 2011 May;15(20):1-234, iii-iv. doi: 10.3310/hta15200. Review.

17.

Patient-reported outcomes in studies of complementary and alternative medicine: problems, solutions, and future directions.

Eton DT, Bauer BA, Sood A, Yost KJ, Sloan JA.

Explore (NY). 2011 Sep-Oct;7(5):314-9. doi: 10.1016/j.explore.2011.06.002.

PMID:
21907154
18.

Involving South Asian patients in clinical trials.

Hussain-Gambles M, Leese B, Atkin K, Brown J, Mason S, Tovey P.

Health Technol Assess. 2004 Oct;8(42):iii, 1-109. Review.

19.

Implementing a low-cost web-based clinical trial management system for community studies: a case study.

Geyer J, Myers K, Vander Stoep A, McCarty C, Palmer N, DeSalvo A.

Clin Trials. 2011 Oct;8(5):634-44. doi: 10.1177/1740774511416384. Epub 2011 Aug 3.

PMID:
21813582
20.

The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS).

Khanna D, Krishnan E, Dewitt EM, Khanna PP, Spiegel B, Hays RD.

Arthritis Care Res (Hoboken). 2011 Nov;63 Suppl 11:S486-90. doi: 10.1002/acr.20581. Review. No abstract available.

PMID:
22588770
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