Display Settings:

Format

Send to:

Choose Destination
See comment in PubMed Commons below
Theor Med. 1995 Dec;16(4):347-73.

Genetic research, adolescents, and informed consent.

Author information

  • 1Department of Paediatrics and School of Religion, University of Iowa College of Medicine, Iowa City 52242, USA.

Abstract

The participation of adolescents in genetic research engenders unusual problems concerning the nature of their informed consent. In this study we analyze 70 consent documents collected from genetics investigators in the United States who conduct research with children and adolescents. We find that many consent documents do not reflect either the current or the developing ethical and legal standards for research with adolescents and that in many cases the documents are simply confusing or unclear. We make recommendations for change to reflect more adequately the changing perspective concerning the autonomous decision-making capacity of adolescents.

PMID:
8820748
[PubMed - indexed for MEDLINE]
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Loading ...
    Write to the Help Desk